Day 99 First Land Physio

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

The day is finally here, my first official land physio appointment. Thankfully I’ve retained my Physiotherapist that I’ve worked with for years, through various different surgeries. So it’s fair to say she knows me well and my abilities too.

So I loved it when straight away, she noticed that some of the waddle has gone. Yes it’s there when the leg is fatigued but no longer is it there 100% of the time.

First off it’s Stationary bike 5 mins

With the bike it was on level 3, so the first time in many years I’ve had a resistance on it.

Then Sit down/Stand ups 15 reps

Sat fully down, then got up again, without holding onto anything.

Dreaded Clam Raises 15 reps

I say raise but it’s not actually raising, but the muscle is tightening, so although I’m not successful yet, the muscle is still being worked.

Keeping bottom leg bent, into a Side Leg Raise 15 reps

Weirdly found these quite easy. Only doing the operated side at the moment at physio.

Into Prone Lying, Bent Knee Raise 15 reps

This feels a lot better than before, it used to want to fall outwards, so I’ve obviously gained some strength to hold it upwards and straight.

Next up is some Green Resistance Band exercises Hip Extension 15 reps

Hip Abduction 15 reps

Hip Flexion 15 reps

Found these not too bad as I’ve been practicing at home already.

Next up is my enemy!! Bosu Ball Lunge 15 reps

Single leg lunge into the unsteady unbalanced ball surface. My knee HATED it.

Staying with the Body Ball Walkover 15 reps

From the lunge then holding onto balance bars I had to walk over and return backwards. Emphasis on the single leg taking all the weight and balance. Thank goodness for the bars holding me up!!

Ended on one I’ve been doing at home, so felt a lot easier to me Side Steps Green Resistance Band 15 reps

I was absolutely shattered leg wise after this, walked out like Bambi, feeling muscles and aches I forgot existed. I’m glad I still have my walking stick, else I would not be walking out of there.

Knee very very sore, so home to a hot water bottle and lots of rest now.

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Week 14 #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

A week of mini victories, first I had walked down the stairs once without holding on for dear life, and one step at a time.

Next I put on trousers standing up, wasn’t totally graceful but I did it!!

I’ve bought some skinny jeans for my out out evening Friday. Skinny style though not a skinny size (but that is something I am and I will work on) They both have a stretch in them so they aren’t too weird over the scar. As I still don’t like seams over scars.

Slowly slowly I’m regaining myself back which is wonderful news.

Then of course I’m going to a techno night out on Friday night, a night a friend runs in Birmingham. Chapel Of Chaos

So I can’t do too much physio this week, so I save my energies for this. We’d bought tickets for this before Christmas,and before my surgery dates changed too. Determined not to miss another one. Does anyone else rest a lot before a thing? I know I have too.

Heres week 14 scar, looking pretty deep still at the top, but almost disappeared at the bottom, looks as faded as the two scars that are either side of it. Should be fine wearing shorts if we get some sunshine this summer.

Day 95 Sunday Funday

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

At weekends we are normally at our busiest with visiting family members, so there’s never a chance of physio. Although I do class climbing their stairs as physio. As I don’t have stairs at home to practice on like others do.

My hands have been feeling a bit calmer since Saturday morning, is it from weather or taking ibuprofen religiously? Not sure yet, either way it’s definitely welcomed.

Using ankle weights certainly kicked my butt, but huge improvement from how I was before to how I am now, so that’s encouraging. But I am waddling all the time if I walk unaided. Aarrrgggghhh super frustrating. Am I waddling from this hip, or maybe other one? Must ask physio on Thursday.

Anyone else thinking their weekend just flies by in a blink? I know I do. I feel like it’s over in a split second and boom its Monday all over again!!

I’m glad I use weekends as my main rest days, as I truly appreciate them, and it’s easier to just enjoy being with family, rather than trying so hard to squeeze in physio, and being exhausted.

Day 93 #hipreplacement #EhlersDanlosSyndrome

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

After receiving a comment from a fellow blogger (find them here) they suggested I should explain more about #EhlersDanlosSyndrome and honestly I should.

What is Eds?

So Ehlers-Danlos syndromes (EDS) is a group of 13 individual genetic conditions, all of which affect the body’s connective tissue.This Connective tissue lies between other tissues and organs like a glue, keeping these separate whilst connecting them, this glue is tasked with holding everything in place and providing support.

In EDS, there is a gene mutation (like an X Man, the nerd in me loves this!!) that causes a certain kind of connective tissue, what kind will depend on the type of EDS (which type out of 13) (Hypermobile Eds, Hypermobility spectrum disorders, Classical Eds, Vascular Eds. They all fit under these umbrella labels)

This gene mutation is usually a form of collagen, this causes it to be fragile and stretchy. This stretchiness can sometimes be seen in the skin of someone with EDS (NOT ME) My skin has never stretched like that, but I scar and bruise incredibly easy. Individuals with the condition may also be able to extend their joints further than is usual (This is ME) this is known as being hypermobile, bendy or double-jointed. As collagen is present throughout the body, Everyone’s bodies, people with EDS tend to experience a broad range of symptoms, most of them less visible than the skin and joint differences. These are complex syndromes affecting many systems of the body at once, this makes it hard to connect and diagnose, despite this EDS is often an invisible disability.

Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person, even in the same type of EDS and within the same family.

Now it’s important to remember my #EDS isn’t the same as another #EDS as we are all individuals, and with that said it’s also why it’s incredibly hard to diagnose. We have a collection of symptoms, that are easily explained away and not connected.

I mean who thinks, velvet soft skin is connected to a thundering heartbeat because you stood up? So they came up with a series of movements to test for it.

The old way to classify Ehlers Danlos Syndrome was to use the Beighton Scale. The Beighton score is a set of manoeuvres used to judge if there is evidence of joint hypermobility. There are 9 points, and a score of 4 or more is considered a sign of there likely being generalised joint hypermobility present.

Now at the time of diagnosis in my early 30s I scored 8 of 9. Now there’s a more comprehensive way of scoring, found here Now I’m older and a lot more stiffer, so flexible I am not anymore. Therefore I would fail this tests above, but that doesn’t mean I don’t have it.

But these new ways of scoring takes that into account. So if you could touch the floor with flat hands without bending legs, bit no longer can you still score a point.

This helps the reclassification of certain symptoms, so I was diagnosed with EDS type 3 which is the Hypermobility type. Now it’s known as hEds Hypermobility Ehlers Danlos.

How does it affect you?

How does it affect me? Good question that I’m not entirely sure of myself. I know I feel pain all the time, from holding my own skeleton together and in the correct position. It’s so easy for my shoulders and hands to go beyond their natural range. Now I personally find this extra lax during my menstrual cycle, it’s like every joint I have comes out of joint, super super easy. It’s due to hormones creating the environment for this to happen around the cycle.

But as I said earlier it affects how I heal, so bones take longer to knit together, but likewise I’ll produce more scar tissue inside healing sites. Scars are often keloid or stretched and wrinkly. I bruise from being barely touched at times.

My three biggest ways I’m personally affected is the early onset of Osteoarthritis, my hip was grade 4, my mobility is awful, but I use to do gymnastics and horse ride. Now I can barely walk unaided. My hands are stiff and painful as they too have Osteoarthritis too.

My teeth are weak and crumbling, and dental visits are scary. For many years I have cried and complained that the anaesthetic doesn’t work, but no one listened to me, and then a few years ago they found it was an EDS symptom!! I have dentist now that knows about this and adjusts accordingly.

Finally how does it affect me, in a major way it screws up painrelief, I’m in pain but the meds don’t work. So fentanyl strongest drug out there? Nah doesn’t work, worst way to find out was when I had my first big op, it was a triple pelvic osteotomies and valgus femur lengthening. I was given Epidural (this does NOT work either) and Fentanyl, worst week of my life. But some gps out there, think you are attention seeking or drug dependant. You need these meds to function, to complete normal daily living, not to get high!

Since my first surgery, we’ve adjusted it to spinal, and morphine pump that I control. Now surgeries haven’t been as bad since thankfully, as I’ve had another 9. I find natural morphine better for me than synthetic versions of it that don’t work.

Now I’ve prattled on long enough, I best let you go. Hopefully by now you’ve learnt a bit more about Ehlers Danlos Syndrome. I’m still learning myself.

Day 92 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s been a week since I saw the GP about my hands, and I’ll be honest the increased ibuprofen and ibuprofen gel hasn’t really made that much of a difference painwise. But maybe a week is too early to tell? So I will give it longer.

Wearing the splints help get things done but are cumbersome and irritating. But wearing the gloves at night are good, so that’s a win!!

Splints with weights are Interesting let’s say that. It’s hard while my hands are like this to actually hold weights, so in place of weights sometimes I use resistance bands instead.

Its not the weight itself I find difficult, more the grasp, it could be a pen at times and I simply can’t hold it. Frustrating to say the least.

So working the hip it is today, give the hands and shoulders a break. Though I’ve decided I’m staying away from any exercises that mean I have to lie on my operated side. It’s too dreadful for words.

  • Hip Flexion ankle weight 15 reps x 2
  • Hip abduction ankle weight 15 reps x 2
  • Hip extension ankle weight 15 reps x 2
  • Calf raises ankle weight 15 reps x 2
  • Heel to butt ankle weight 15 reps x 2
  • Mini squat 15 reps x 2

Not too much today, as joints are extremely lax this week. It’s the old Ehlers Danlos coming out to party, and by party I mean utter misery ball of pain.

Day 90 #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s always up and down health wise, I guess it’s the #EhlersDanlosSyndrome not really helping. But I’m pleased to say it’s not actually my hip causing any grief at the moment.

And because it’s that time of the dreaded month, every joint comes out to play. Cleaning the cooker, my shoulder decides to pop out!!

So with this is mind, I’m thinking I need to keep on going with the occupational therapists shoulder stabilizer exercises.

  • Ball on wall circle left 20 reps x 3
  • Ball on wall circle right 20 reps x 3
  • Ball on wall up + down 20 reps x 3

  • Band shoulder abduction 10 reps x 3
  • Band shoulder internal rotation 10 reps x 3
  • Band shoulder external rotation 10 reps x 3
  • Band shoulder extension 10 reps x 3

All this exercise is always to help stabilise my joints, help my muscles and tendons do the work the joint should actually do.

Day 88 #hipreplacement Family Time

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s important to have some down time and not over train, ie do too much physio. As I have found this has helped me overall, to have rest days.

But as every parent knows rest days aren’t truly resting and not moving, it’s purely me not doing specific physio exercises.

Instead I did something a bit more exciting, I finally saw my grandson Leonardo, nearly 3yrs old he’s full of beans and hard to keep up with. I say finally as I’ve been poorly, then she was poorly too, then life gets in the way etc etc…

The trampoline was out for me obviously, but Nardo loves the trampoline and my youngest Daughter is doing Best Aunty and joining him, but I did lots of getting the ball, and picking up toys which soon had me tired out.

Just walking unaided up and down the garden was all the physio I needed. And he was perfectly behaved, but I was shattered!! Aching thigh and aching back, so once he evening came it was snacks (maltesers and crisps) and #Glass film

Day 87 #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

This weather is causing pain pain pain, and a healthy dose of stiffness and immobility with that.

So far this week to control the hand pains I’ve been taking 400mg ibuprofen x 2 but I’ll admit it’s not really helping, on top of that I’m using ibuprofen gel. At least I can splint them, and use gloves.

However the hip isn’t feeling any benefit from Ibuprofen, but it aches deep in the thigh crease where pelvis meets the thigh, Or bikini crease area I should say. With the increased rain, I’m noticing that the hip still feels seized up and stiff, exactly like it did with Arthritis?? So for this I’m adding Paracetamol. And see if that helps.

Today’s physio is focusing on lubricating joints to ease pains.

Shoulder exercises

  • Circle ball on wall left 10 reps x 3
  • Circle ball on wall right 10 reps x 3
  • Push ball on wall up and down 10 reps x 3

Then hand exercises

  • Make an O with each finger 10 reps x 3
  • Raise thumb 10 reps x 3
  • Thumb abduction 10 reps x 3
  • Thumb scoop and up 10 reps x 3
  • Wrist up and down 10 reps x 3
  • Make a fist and open 10 reps x 3

Hip exercises

  • Glute squeezes 10 reps x 3
  • Quad exercise 10 reps x 3
  • Short Arc quad 10 reps x 3
  • Ball between Ankles squeeze 10 reps x 3
  • Ball between knees squeeze 10 reps x 3
  • Hip abduction 10 reps x 3
  • Single leg raise 10 reps x 3

For these exercises I find I can do many while sitting down, watching the TV. And I break them down in 3 sets, so one set in the morning, then a set after dinner, then one more in the evening. So although it looks a lot to do, it’s easily slotted into my day.

Day 85 monster walks

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

I am loving the resistance band monster walking, I feel it really is targeting the weak muscles, and it tires them out pretty quickly.

So todays physio as knee isn’t too bad, is absolutely simplistic.

Monster walking (Red Band) 50 reps x

    2

    Step ups (No Band) but no stick 50 reps x 2

    So little done, but my god it hurt my back (probably piriformis area) and my thighs in a muscle type way.

    Caught up with the GP to discuss my hands and my inflammatory arthritis. And although it wasn’t what I wanted to hear (ie they can’t book in steroid injections) as the bone is destroyed over time, so it’s best to not get too many.

    Instead the plan is to wear the splints more, the gloves every night. And take my 400mg ibuprofen every day up to 4 times a day, ideally 3 times a day and map how it affects the pain and mobility. Also to use ibuprofen gel, and keep up the exercises too. If they all still don’t help, to then go back and speak again on options for pain reduction, and stiffness.

    Not what I thought would happen, but hell I will give anything a shot!! And obviously my trusty hot water bottle and wheat bags are always my trusty friends too.

    Day 83 #hipreplacement

    Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

    Following yesterday’s idiotic stumble out the door going to Hydrotherapy. I’ve had to keep my physio today very lowkey. My knee feels twisted and like a pulled muscle (but I can walk better now on it, than yesterday and it bends ok)

    I had wanted to do a gentle stroll in the woodlands ideally, but the heavens opened and I honestly didn’t fancy the mud, and being cold.

    Dumbbell Chair Squat 10 reps

    I actually had a chair and fully sat in it, using weights to make it harder.

    Mini lunge single dumbbell 10 reps (absolutely a killer, it’s more toe touch than lunge)

    I use a chair to steady one hand, one hand holding dumbbell. And I slight bend front leg and move to tap back leg behind.

    Side lunge on side at a time, holding dumbbells, or chair 10 reps

    Careful not to rotate leg out too much, just slight lean and bend the knee. (Bit tender following fall)

    4 point Bicep Row 10 reps

    4 point Fire Hydrant 10 reps

    I find this hard, as my back wants to tilt. So I barely moved leg outwards to make sure back was straight.

    4 point Glute raise 10 reps

    Again I find it tilts me as I’m so weak, so smaller lifts to ensure better posture.

    Doesn’t look a lot, and certainly didn’t take me long, but it did wear me out. Knee not too happy, but I expected that if I’m honest.