Physio over the phone

Arthritis, Covid- 19 Week Twelve, Covid-19 Lockdown, Health, Hips, Hypermobility, Hip replacement, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

After 14 weeks of zero physio in the hospital, while being assessed by my physiotherapist, I had an appointment over the phone.

We discussed how my lunge onto the bosu ball, or going to do steps, is making the hip feel like it’s popping out, she feels it’s a muscle issue, so to shorten the step, and dip shallower to build it up slower. And do little but often.

And to maybe try a kneeling lunge if knees allow it, to take some pressure off.

But as I do have sore knees, I may have to do these with a cushion under the knee first.

Or I was given the option to swap forward lunges for side lunges and see if they both cause same pains, or if this one doesn’t.

We touched upon the encroaching groin pain from the left, the limitations it’s presenting and we decided the ROH should be approached for an appointment for that hip.

But I’ll be honest I’m not hopeful, I have one set for Feb 2021 and I may wait until then anyways. As I know they have some serious backlogs as it is. And physio itself may not be face to face until October, I’m sure I won’t see a consultant before Feb 21 anyways.

* Finally started exercise besides walking at home again, need to help this dodgy left hip while I can. And lose some lockdown weight!! *

Finally some relief, #CmcJointArthritis

Archive, Arthritis, Covid -19 Week Eleven, Covid-19 Lockdown, Health, Hips, Hypermobility, Hip replacement

At long long last, after 7 weeks of #SimplyCBD and 23 weeks of #Etoricoxib I have some relief. Though I really need to add those #Paracetamol to achieve it.

Splints are needed still, and the gel, but I’m not having that absolute bone crushing pain, that makes me want to amputate the hands, so that’s a win.

I had to increase the drops of CBD oil from 1 drop x 3 a day to 2 drops x 3 a day, once I hit that amount, I noticed a change. Beforehand it definitely helped with anxiety around pain, and sleep too. But for pain it didn’t. So upping the dose slowly I gradually saw a difference, and I made sure I did it over a menstrual cycle too,which is when my body overall is more painful.

I would still prefer an steroid injection to really kick the inflammation down, and I wouldn’t need splints as much. But still not an option sadly. But maybe soon, now the lockdown is easing off in places.

A big break for 2 weeks in physio, and walking has helped with getting my shoulders and hip pain under control, which allowed me to really work on getting the thumbs also under control. I’m glad I took the pressure off myself, and gave things time to work as well.

Ehlers Danlos Syndrome Issues

Archive, Arthritis, Covid Week Eight, Covid-19 Lockdown, Health, Hips, Hypermobility

EDS Strike’s back!! This last couple of weeks have been honestly quite hellish. Pain is all consuming and it feels like there’s no end in sight.

This is a dark dark place to find yourself in, felt trapped and lonely and deeply depressed. It’s not often I’m this low, and I usually hide it away from others, except family as they physically see it.

But as it’s May it’s #EhlersDanlosAwareness month I thought I’d share my woes.

I have EDS Hypermobility type, formerly known as EDS type 3.

Hypermobile EDS

People with hEDS may have:

Currently, there are no tests to confirm whether someone has hEDS.

The diagnosis is made based on a person’s medical history and a physical examination.

On top of this I have MCAS too Last Cell Activation Syndrome,in which I can be allergic to the air, a scent, a food, a colouring at any time! Thankfully though mine seems to be more flushing and heating. So it’s manageable.

For my EDS my hips, ankles and shoulders are the most affected. And recently it’s been my shoulders, Ive wanted to amputate them so many times this month already.

To combat the pain and instability, as they are subluxing while dressing or brushing my hair, Ive been going back to basics, to pull the ligaments and tendons back into line to hopefully make the shoulder more stable.

Lying in bed with it just hanging down is literal heaven right now. The arms weight naturally pulls it right in the joint, so it sits comfortable.


With the ball I rotate it in circles going clockwise, then anti clockwise, and gently roll up and down. Though SMALL movements to ensure it stays in joint and not extending too much.

There are some amazing YouTube videos by #JeannieDiBon https://youtu.be/jQjKzp-QxWg

And you can find her on Twitter too, for a wealth of advice and guidance.

@jdibon Twitter.

68 Weeks Post #HipReplacement

Archive, Arthritis, Covid-19 Lockdown, Covid-19 Week Five, Health, Hips, Hypermobility, Hip replacement, SURGERY

I’m missing my physiotherapist for sure. But I decided to not let my physio routine slip. Though with my hands and hips I’ve had more flare ups since this all happened, wonder if connected with stress and anxiety??

Most days I’m doing static physio exercises, incorporating the Bosu ball as it’s amazing for balance and micromovements in the muscles. Feels like for less exercise I’m working the joints more.

While I feel improvement at home, I’m definitely NOT with walking, which is a huge disappointment if I’m honest. My hand is wrecked from my walking stick, it’s also dislocating/subluxing my shoulder too!!

So new goals I need to try and walk without it, but I’m still struggling distance with it. Catch 22. Though I have managed some walking without it (heavenly) while it lasted.

Walks are beautiful though and great for my mentality too. I’m just so so broken afterwards. Like 5 days totally off exercise and much movement after a walk. Anyone else? Leg swells up too.

The gradient is flat and not hilly really, even base too. So confused as too why it’s still causing so much groin pain.

At least it was a good opportunity to test the hip out, it’s just a shame I can’t ask for advice or see the therapist about it all.

How are you doing Second Week #SelfIsolation

Archive, Arthritis, Covid-19 Lockdown, Covid-19 Week Two, Health, Hips, Hypermobility, Hip replacement

As we start to form new realities and routines, how are you doing?

Are you being super productive, active and learning new skills? I’ve seen a new love of baking on Twitter and people taking up Joe Wicks exercising.

Whereas I also see lots feeling lost dazed and confused, and to be honest that’s been me a little bit. But I finally realised it was me watching the news religiously and absorbing as much information as possible, which now with hindsight was my worst decision. It started to feel all too oppressive and miserable. Like your taking on all the world’s negative energy.

So I’ve had to take a step back in time, back to 2009 when I had my Triple pelvic osteotomy and femoral osteotomy done. This rendered me completely housebound for a very very long time, and at no time was I miserable from it. So stepping away from Statistics that are hammered home to you each night, and turning off the news.

I realised I needed to get back into being me, and my usual routine, which is working out for physio, as my hip replacement recovery is still on going. And using down time to read, carry on learning my #Dutch and #Swedish and maybe when hands allow colour in too.

I use the #LosingWeightApp for Men. It’s great as you can customise it for no impact, and no jumping.

For example, here are the exercises, ranging from 12-14 exercises and 8-10mins of time.

For the languages I love Duolingo and it’s been a fun journey. I had already started way before all this happened in the world. As a fun way to occupy and work the brain for 10- 15 mins a day.

Easy to use and actually a great time filler, you can do as much or as little as you like, and whatever language you desire too.

So that’s week 2 we’ve all completed. Give yourself a minute to embrace that victory. X

Self Isolation

Archive, Arthritis, Covid-19 Lockdown, Covid-19 Week One, Family Adventures, Health, Hips, Hypermobility, Hip replacement

As a person that is usually stuck indoors, my only appointments are being at the hospital physio once a fortnight (I’ve cancelled for a month) or going out for a brisk walk. Me being trapped inside is nothing new to me.

First thing first, stay in a routine. It’s important to get up and dressed, especially as depression and apathy will take hold if you don’t. It’s better to structure your day, as you feel more productive.

So what can we do

DIY,Garden

If you are able bodied, then maybe is a this time to catch up on all the diy you’ve been meaning to do. I would love to do this, but it isn’t possible sadly. I can’t even garden, not that I have green fingers either though.

Exercise

I personally wear myself out with daily physio,so not only am I working the leg out and trying to ease arthritis symptoms, it occupies my mind too. I find it fills a lot of my day up, as I need a long time after to recover from it too. Great mood booster though.

Craft, Hobbies

I love crafts, I have made jewellery, papercutting and I love colouring in books too, they ease the mind and fill up good chunks of time. This for me is limited now due to my hand arthritis. But I love them when it’s possible.

Reading

Who doesn’t have a book list as long as their arm, but always feel like they have no time to read. Well now you do, it is one of the most peaceful times to snatch for yourself. I’m going to re-read the Ink Heart trilogy and Beautiful Creatures.

Prime,Now,Netflix

It is a good time to catch up on tv series, binge watch all that you have saved. I have a love of European Netflix shows,a good scandi noir helps me through the long days. The Flash, Altered Carbon, Elite, Stockholm Requiem.

Organise Wardrobes

I actually badly need to do this myself. I literally live in work out wear and pjs. But I have clothes for every occasion and am a hoarder too. So it’s time to decide what to charity or bin, or give to family. Lots of ideas on Pinterest and YouTube.

Stay safe guys xx

Valentine’s? Nah it’s Physio time!!

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

I don’t do Valentine’s I confess, as I am happily married and we show acts of love everyday, which doesn’t cost a thing.

And we often have date nights, special events and outings, that this really is another day to me. Though we are planning a nice bottle of wine and roast dinner.

Though I was spoilt this week with something I’ve wanted for a while. It’s a Bosu ball, so I can do the same physio at home as I do at the hospital.

It makes one legged lunges and step ups so much harder, so less reps but works the muscles so much more. Great for helping with balance too, when your foot isn’t level. It works all the micro muscles we don’t think about.

So it’s off to the hospital and get ready for a beasting physio session. The last one before I see the surgeon too.

  • Stationary bike level 2 x 4mins
  • Leg press 40kg x 20reps
  • Trampoline marching x 1min
  • Bosu ball side lunges x 16reps
  • Upside down Bosu ball x 10 reps
  • Bosu ball 1 legged squats x 10reps
  • Green resistant band Duck walking x 20reps

Thank goodness for parallel bars as these exercises would NOT be possible. And I’m glad I have nothing else to do afterwards, as she always makes me almost crawl out. Bambi legged.

Physio at hospital

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

Is still going strong, it’s every fortnight, so this is why and how I can do some at home too.

Told her the results of my hand specialist and we agreed that as I have had poor healing hip wise with ligaments and tendons, it’s probably wise to put off hands as long as we can.

  • Stationary bike level 2 x 5mins
  • Kettle bell glute squeeze x 15 reps
  • Leg press 40kg x 15reps
  • Bosu ball against bars, side lunges x 10reps
  • Upside down Bosu ball squats against bars x 10reps
  • Trampoline marching x 1min
  • Side steps on stairs x 15reps

Not as much as usual, as these were harder to do, and leg was quickly tired.

So now it’s time to quietly collapse on the sofa and not move for a few days.

Stupid rainy days,freezing cold days have made hips and hands considerably worse lately. Hoping this increased dosage helps, but it’s early days yet.

Tried to do a small walk a few days after physio, and I had ZERO motivation,High pain and I was limping immediately so more rest days needed I feel.

No weight loss so far, but I’m happy enough with being 5 min productive each day. So even on my high pain days, I’ve found a way to be productive yet protective too.

Physio Adventures

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

So far this year, I know it’s not far into the year, but I’ve been going steady with simple exercises done most days, with a few rest days and then walking outside too.

I’ve been using the Losing Weight App, found on the play store, and it’s free.

I know its says Man, but i am happy with it and I’m female. You can also adjust for any disabilities or hindrances you have. And they set up some structured exercises to do each day, they are merely 5mins long.

They include lunges, squats, crunches, cobra pose and planks. You can do as many or as little as you like. From this I’ve discovered I actually can’t lie down on my back and have my legs up at 90degrees, they are too heavy, too stiff. It’s not happening!!

It’s to kick start me back into a routine of doing some exercise every day, and get these hips strong.

Early days yet only just started, I’ve completed 5 days. But I’m hopeful

Have you embarked on any 2020 changes in your life? How is it going so far?

51 Weeks Post #HipReplacement #Blogmas

Archive, Arthritis, Blogmas 2019, Health, Hips, Hypermobility, Hip Arthroscopy, Hip replacement, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

As this year winds down, and my first year post op anniversary/birthday approaches, I am taking stock over what this year has entailed.

And my biggest thing is, I’ve smiled more this year than I have in 10years. I’ve had an incredible year, which I definitely put down to the successful hip replacement. And though me still needing a walking stick, meds and hot water bottles may not seem a success to you, for me it’s still a huge improvement.

Fitness is nowhere near where I want it to be, nor is my weight. But I’m finding that I care less and less recently, rather I’m enjoying life and all the new experiences this hip is allowing me. Ever mindful I have to fix other broken body parts, but I’m focusing on the victory!!

So no New Year New Me, or saying goodbye to the decade with scorn. My last decade I’ve learnt to re- walk 8 times, had 10 surgeries, used a walking frame, bath board, perch, walking sticks, and crutches for every year of the last decade. But each one of those brutal recoveries have got me here today. And for that I’m blessed.

I plan for so many more adventures and walking while other hip allows it.

I am lucky that stunning walks are so close go home, and that my partner loves walking too.

Paths not too uneven, so this helps the warm up and to keep a steady balance.

Hopefully I can do this more if my hip and hands allow. I’m still experimenting with #Etoricoxib tablets for Arthritis I’ve had a weeks worth so far. And while it’s not a 100 percent fix it’s certainly helping.

With that said I will bid you all a HAPPY NEW YEAR, and thank you for all the support of friendship you’ve given me, it means the world.