9 weeks #Etoricoxib #EhlersDanlosSyndrome #Arthritis

Archive, Arthritis, Health, Hips, Hypermobility

I’m confused as to whether this is working. In general it smarts at the end of the day, so gel and splints come out.

Overall it’s better than the ibuprofen 400mg x 3 per day. I really need to remember the 8x paracetamol though to really assess it. I’m a devil for remembering them for some reason.

This weekend I did do this to myself, I was a wearing my splint in the evening, I gently put my thumb and first finger together to do a pinching action. And OH MY GOD the pain!!!

Usually I sublux joints often the MCP one,with no pain really. This time I fully dislocated the CMC joint, and holey moley did I cry.

Resulted in my unable to use my hand all Friday night, and Saturday day time. When at tea time I heard and felt a pop! And suddenly the pain and pressure eased off. Thankfully.

As you can see it drastically changed from Friday night to Sunday morning. Now I just hope this isn’t going to be a frequent occurrence like other joints.

1yr Post #HipReplacement appointment

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Another milestone hit, it’s finally here my 1year Post Hip Replacement appointment. Although it’s technically 13months post op.

I went in fully prepared to say what I needed to say, I even wrote it down too, Nervous but intrigued. I dressed with no metal on my trousers so I would be as fast as lightening in the x-ray department. Which I scan safetly say with confidence I’m the fastest x-rayer!!

I requested my consultant, but alas it wasn’t meant to be, I ended with a Registrar instead.

This is last year’s x-ray. I can see a tiny spot now I’m home and studying x-ray on the bone.

Today’s (tuesday) xray and OMG it’s still there but moved.

No real explanation to why I still get groin pain, and stem pain. Except he reminded me it was never a normal hip replacement, it said it’s more like a revision one, because of the extensive work I’ve had done prior to this implant. So he said it would be 10 times longer to recover. So I’m prepared to work more and wait.

He watched me walk, we discussed quad weakness and my struggling to do stairs, the quads would explain that. And knee pain too. So more years until it evens itself out. He checked the ranges and was happy on the replaced hip, but noted the limitation on the left one.

We discussed that I have no pain in the left just very restrictive, so he suggests I leave the replacement in that side until I do have pain, so the success is greater. And it also gives this side more time to fix itself better too, without adding more stress and weight to it.

So although I was originally disappointed to hear the initial results of expected pain for a while yet, and using stick too (Will it ever go, will I ever ditch the limp), and not to replace hip for a long time yet, when I was totally expecting too in a year’s time. I feel slightly better about it now.

He asked if I was happy with the leg length, and I casually said yes. But now I’m home and freaking out, am I happy with the length? Is there a difference?

So I’m not back for a year, well sooner if need to be seen. But if not another year and we can discuss if progress has actually been made or not. And see how the left is holding up. Pleased I saw no damage to the stem or around the acetabular cup, as they were my greatest fears.

And with that I hobbled myself out, with the worse gait you’ve ever seen!! Damn it

* once home I noticed a white dot on the x-ray next to the hip replacement, so I looked at older x-ray and it was there too, but more on edge of the bone. So I think it’s a rogue staple left in!!*

56 Weeks Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

I am struggling, mainly with stiff lower back and deep groin pain. But I’m wondering if it’s simply arthritis elsewhere or the actual hip? And I have to remember how much better I am than before the surgery too.

The weather at this time of year is never nice, and the dampness soon makes me feel at least 80yrs old. I’ve started to use the ibuprofen gel on my back too now.

Thankfully I’ve got the hands under as much control as I can, never again will I forget the splints at night. That was a painful reminder.

So I’m thinking it’s time to try and get myself out for walks again, even though I feel rigid. And welcome these things back into my life too.

Aerobic step as steps/stairs are still my nemesis. Ankle weights to help build the glutes, and I’m never far from a green resistant band.

Roll on 3 weeks when I see the surgeon!! And better yet Lana Del Rey and Theo Paphitis. How’s that for excitement!!

6 weeks #Etoricoxib

Archive, Arthritis, Health, Hips, Hypermobility

Since starting the 90mg dose, the thumbs have started to settle down. And I’m not having heart palpitations anymore either.

I do sometimes need the ibuprofen during the day which is annoying. And I’m wearing splints most nights, but I’ve even found myself going to bed and forgetting them!! I never imagined that would happen.

I was getting confident so I went back to crafting, and I sold This one

And this one too,

found here

But low and behold, forgetting splints at night, and a couple of tablets. Followed by being carefree with crafting, I then had a HUGE FLARE with a few days last week where the cmc bone would not sit in place!! So back to meds, rest and icing and splints settled it down finally.

The weather has turned quite bitterly cold so I’m sure that isn’t helping either. So each day it’s wrapped up with hot water bottles and blankets. Rest rest rest is all I can do.

#Blogmas Steroid Day

Archive, Arthritis, Health, Hips, Hypermobility

Omg the day is today (16th December) it’s officially 12 weeks since my last steroid injection in the left hand. And today is the right hands turn.

And I’d be lying if I said I wasn’t a bag of nerves and dread. But needs must, especially as both are getting quite painful and nagging dull aches at night. Last time I had an injection it honestly felt like the thumb was going to explode. Thankfully it settled down, but it took 4 weeks too.

I don’t want to scare anyone though, as this wasn’t a normal reaction, as I have had 2 prior to that one.

I’ve been trying the 8 paracetamol and 3 ibuprofen, since seeing the GP. But I’ll be honest it’s not really helping. However the hips aren’t really behaving either, so could be a weather thing?? Hands are still swelling up in various places.

I really don’t like the injections through the thumb pad, it’s guided by an ultrasound though. Like this photo below.

I’ve had 3 injections through the thumb pad. Not sure what the difference is though, perhaps a better view of the joint.

This time it was so so much better, I saw on the ultrasound that the joint space was larger than the left hand though, so could that be why??

The other way I’ve had an injection is like this photo below.

Now I guess we wait and see if this helps, I’m hoping it doesn’t cause a flare up for 4 weeks like the previous one.

We talked about seeing a hand specialist as well, to map out my options for the future, as they don’t think my left is worth injecting again.

Now somehow I need to tackle putting up my tree, that’s already Very Very late at going up. Where has December gone???

7 Weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

For the last 2.5 weeks I finally have had some relief from that most painful steroid injection I had back on 7th October.

Think it was more painful this time as the space between the joint is so small now due to the arthritis.

Took a long long time to kick in, almost 4 weeks, and it’s either wearing off already, or the huge dip in weather temperature is to blame. As it’s nagging, not hugely, but I am aware of it most of the day.

I was hoping for the 9months relief I had gotten the first time. Alas not meant to be, though it’s nagging, at least it’s not that white HOT bone pain that I had previously.

The right thumb is flaring up, but I’m still too scared to go and get it done. Though I’m starting to get tempted. I’m trying to leave it as long as possible though.

Back to almost bathing in ibuprofen gel, and wearing splints. Curse you #Arthritis #EhlersDanlosSyndrome

Week 1 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

Day 5

I did my first use of the walking stick and walk around some shops, but it didn’t last long as the hand ached, and I was extremely tired too. But I did manage to use a knife this time, so it’s improving, but feels like before I had the injection.

I think my tiredness is from the injection, as I do remember this from hip ones too. But I managed a day without crying at least!!

Day 6

I’m attempting to wash up, but it still gets that electric shock pain when you try and hold cups or plates to put them on the drainer. But pain has eased in resting phase so that is a bonus.

Woke up with a twitching eye though, done it for hours and hours. Side effect?

Managed to wash my hair, but the back of the hand was throbbing a lot with the movement.

Week One
It’s been a whole week, and although it’s obviously improved from the actual injection pain. It’s not improved from the burning bone on bone pain, so I’m wondering if it’s even worked?? I guess I can’t tell them until it’s been 6 weeks, as that is what they said.

The MCP joints of the first two fingers are still swelling and sore as well.

So I’m left to debating the future of what to do next.

I will keep making notes so I can at least tell them how I am feeling, and if any side effects?

At least I’ve managed to get out of the house twice since the injection, and I’ve used my walking stick reasonably ok, though splint very very much needed. And thank goodness for hot water bottles, and ibuprofen gel to also help get me through the week, with occasional Tramadol or Cocodamol when it’s been particularly bad.

37 weeks post #HipReplacement + Day 1- 5 of steroid injection

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement
Apologies it’s a large post

I’m 37 weeks post #hipreplacement and yes I still use my walking stick, though not while hand is heavily splinted and sore from injection. yes I’m still on painkillers, but not for this hip, it really is a lot better. An odd twinge here and there, and occasionally groin pain as discussed previously. But overall I’m really happy. Anyone else still get these twinges this far post op?

post credit

Left hip well that’s a whole other story lately, at times it feels unstable, and like it’s pushing out the front?? God knows why, this is meant to be my good hip!! That’s a depressing realisation. Hoping it’s from holiday and me wearing it out. It’s either a flexor issue or dreaded bursitis.

Knees should I mention them? They often feel twisted and want to give way. But it’s not a full year yet, so it could be residual from surgery, like previous times.

What I do need to do is get back into a physio routine, and work on my weight loss again. It’s been put by the sideline while family duties are more important.

Steroid injection in CMC joint.

See original post of the Day I had it done here

On the Day, Day One
On the day it was STIFF I couldn’t move it much at all, and it nagged a dull ache all day. Had to take ibuprofen and cocodamol tablets to help ease it. Could not function normally at all, husband had to do everything for me, even dress. It’s so sensitive and achy, I don’t remember it ever being this bad before.

Wearing my splint to help protect from use and from knocking it accidentally. It’s very very painful still.

And come the night time, I sobbed because I caught the thumb on my trousers!! What ridiculous pain, hope it settles down.

Day Two

Sleep was hard, fear of knocking it while I relaxed was very very real, and in the end I fashioned a way of having it away from me, but sleep quality wasn’t great. I was soon up with pain awakening me at 6am.

So I got up to remove splint to give it a rest, and put on ibuprofen gel, and take cocodamol. Slight movement in thumb, but still painful and extremely stiff. So another rest day for it.

Though physio is later on today, hoping to splint it and keep it out of the way as much as possible.

Survived the physio, but hand aching as I left (though I never used it)

Come tea time I started to get facial flushing on the one cheek. Expected this side effect as I’ve had it before.

Day Three

Starting to be able to move the thumb at long last. Don’t ever remember the other ones taking this long. It’s not full function, but any movement is better than none.

Can comfortably pinch movement to middle finger, I can do third finger but that makes it sore. So best not too push it too much. No strength in the pinch action though, so can’t pick things up, or do a tap etc. Now typically other thumb is painful from doing all the work of both hands.

Ended up crying once again, obviously overdid it in usage and paid the price. Also think the steroid makes me more emotional too? Sharp pains at the back of the hand. Will it settle down? I knew it would ache more, but this a very different experience to the 2 times before.

Day Four

I tried yesterday without a splint much, but it hurt more than I thought was worth it, so ended up splinting it again. Having to gel both thumbs now, as they are both stiff and painful, though now right thumb is that white hot pain from arthritis. And left is the stiffness pain from injection.

Let’s see if I can make it without crying? Why did I do this again? Oh yeah because it was so painful, so I swapped one pain for another? But I can finally reach the pinkie, stiff and sore but it reaches. Shoelaces are so hard to do still, but it’s improving.

Day Five

Feeling a lot more like myself, now I’m seeing a light on the horizon. Sleeping better, though still a little extra emotional.

Only taking ibuprofen tablets and gel now as well, so huge improvement on that. Using splint a bit less now so that’s good. Having a day out using my walking stick, so using the splint for that.

Physio appointment on day 146 #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

So it’s physio time, and I’ve been looking forward to asking about the weakness I’m experiencing in the opposite hip. It’s something ive noticed ove the last few weeks. I do work both legs at home whereas at the official appointments we only do the operated leg.

Also I’m officially 21 weeks post op tomorrow. So it’s nice to show her how far I’ve come, as suddenly I feel like this leg has really turned a corner. Yes I’ve ached (well deserved aches, from pushing it hard) but rest, medication and time have stopped the aches, and I feel stronger than ever.

After a brief discussion of what I’ve been experiencing, such as weakness in the left hip, but with no pain. We decided it could simply be from muscle wastage and weakness, so the plan from now is to work on targeted areas (glutes and abductors) on both legs.

So we started with a Stationary bike for 5mins at resistance level 3

Then onto the leg press machine 25reps with 40lbs (I felt operated leg taking over though)

Onto a fave, duck walking with a green resistance band. Feet outwards, bend a bit, then walk sideways. 50 reps.

Onto other butt burners, walking lunges (so as deep) between parallel bars for stability. 30 reps.

Hip abduction with resistance band around knees 25 reps.

Onto hip bridges, where I know quads dominate. So adding a ball to squeeze between knee, engages the glutes. 25 reps.

Absolutely exhausted, but carrying on, we added an ankle weight and did a front leg raise, with foot out, toes pulled up. To engage abductors. 10 reps. (Left leg would NOT lift up)

Rolling into the front, prone lying Knee bent it was a knee raise with an ankle weight. 15 reps. (Left struggled)

Then to finish up we grabbed a kettle bell to hold. While sitting, going into a standing position, while pushing pelvis forward. 25 reps.

I can honestly say my butt was on FIRE after these. I surely waddled out as well. But I felt productive, and like we had done some good. So now it’s resting up, and nursing that burn.

20 weeks post #HipReplacement

Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Time to share again what I’ve learnt or experienced over this last week. Well I’ve learnt even with a walking stick I simply can’t stand, it hurts my back, my thigh, ankles and even the ball of my feet swelled up!!

So a day out is still equalling a few days rest, so not where I’d like to be in terms of daily living.

But I did manage to paint my toes for the first time since my op. And finally my big toe nails have grown back, for some reason I lose my big toe nails after surgery?

Ankles are often swollen now, especially after days out, so I need to see the GP again. As even my ball of my foot is swelling up. God knows why.

Scar is looking pretty decent, and I only remember it when it stings, aches after a long day. It’s still so numb around 3inches side to side all down the length of it. But it’s early days yet, it may come back.

In between days of doing things out and about, and rest days, I try to squeeze in at least 2 sessions of physio at home, using my step and ankle weights.

And in doing both legs in my physio, my left leg (non replaced hip) is painfree but so much weaker than the replaced hip. Hoping by regularly doing both legs now it will catch up at bit.