Ninth Week #SelfIsolation

Archive, Arthritis, Covid Week Nine, Covid-19 Lockdown

Lockdown has been adjusted slightly, though none of it relates really to myself. Though we eagerly await being allowed to empty campus rooms.

Now the exercise can be more than once a day, and for as long as you like,and even drive to it, in my wildest dreams I can’t personally walk more than once a day, but it does help fitter and healthier people.

Driving to exercise definitely helps me, means I can walk more local remote areas, without being done in hipwise before I’ve left the street.

Mentally I feel a weight has been lifted, anxiety has dampened down, now it’s just the sadness of missing my daughter’s birthdays, wedding anniversaries, grandchildren’s birthdays and it looks like father’s day is off the cards like mother’s day was too.

Being able to walk the waterways has given us some great opportunities to watch the sun go down, and reconnect with energies that help us feel grounded.

Easing off finally pain wise from that dreadful flare up, still taking my CBD oil on top of Paracetamol and Etoricoxib. And it’s going well, I’ve resisted to taking tramadol which I’m pleased about. The CBD oil I would say eased anxious thoughts, helped me relax around my pain, which in turn eases the flare. But I’m unsure if time itself would of also done this. So I’m continuing, and seeing of the cycle of huge flare around menstruation time pops up again and if it helps.

I’ve taking a backseat with my fitness programme as I had too, now it’s more walking based and some joint stability exercises. Rather than exercise to lose weight (Though I know I’ve gained weight sadly) I’m also still learning my languages, as I was before the lockdown. I do these for my own sanity and not from enforced lock down.

Ehlers Danlos Syndrome Issues

Archive, Arthritis, Covid Week Eight, Covid-19 Lockdown, Health, Hips, Hypermobility

EDS Strike’s back!! This last couple of weeks have been honestly quite hellish. Pain is all consuming and it feels like there’s no end in sight.

This is a dark dark place to find yourself in, felt trapped and lonely and deeply depressed. It’s not often I’m this low, and I usually hide it away from others, except family as they physically see it.

But as it’s May it’s #EhlersDanlosAwareness month I thought I’d share my woes.

I have EDS Hypermobility type, formerly known as EDS type 3.

Hypermobile EDS

People with hEDS may have:

Currently, there are no tests to confirm whether someone has hEDS.

The diagnosis is made based on a person’s medical history and a physical examination.

On top of this I have MCAS too Last Cell Activation Syndrome,in which I can be allergic to the air, a scent, a food, a colouring at any time! Thankfully though mine seems to be more flushing and heating. So it’s manageable.

For my EDS my hips, ankles and shoulders are the most affected. And recently it’s been my shoulders, Ive wanted to amputate them so many times this month already.

To combat the pain and instability, as they are subluxing while dressing or brushing my hair, Ive been going back to basics, to pull the ligaments and tendons back into line to hopefully make the shoulder more stable.

Lying in bed with it just hanging down is literal heaven right now. The arms weight naturally pulls it right in the joint, so it sits comfortable.


With the ball I rotate it in circles going clockwise, then anti clockwise, and gently roll up and down. Though SMALL movements to ensure it stays in joint and not extending too much.

There are some amazing YouTube videos by #JeannieDiBon https://youtu.be/jQjKzp-QxWg

And you can find her on Twitter too, for a wealth of advice and guidance.

@jdibon Twitter.

19 Weeks #Etoricoxib

Archive, Arthritis, Blogger Reviews, Events, Covid 19 Week Seven, Covid-19 Lockdown, Health, Hips, Hypermobility

I’ve had to finally ring the GPs as I’ve been struggling a lot pain wise, out of sheer desperation I rang before putting in my repeat. I can honestly say I’m having the biggest flare I’ve personally ever had. Wonder if it’s lockdown related?

After a lengthy intro on covid and how to ring 111, I finally got to a human to book a telephone appointment, and it was literally in 5 mins, so that was fast.

We talked through the pros and cons on all other meds I’ve tried in the past, like pregablin (made me slur and fall over, not good when you already have mobility issues) amitriptyline (groggy forgetful and felt like death) naproxen (heart racing and no sleep for days)

We’ve sadly concluded that while steroid injections are NOT allowed here, I have to go and use the pain killer ladder,which is my splints gel paracetamol, etoricoxib and tramadol (reluctant to use as I hate the side effects) I had no choice but to agree.

They sent me a new gel to try, Ive only had over the counter ibuprofen gel before. Now I have this

Still testing my #SimplyCBD and it’s been just over 2 weeks, I will say no change yet in pain levels, but as ever some things take time. Perhaps while in a huge flare it’s unfair to judge, so I’m going to continue and try and get on top of this flare up, and see how it all goes. I’d rather this work than me taking tramadol again!! It took a lot of pain sweat and tears to come off that.

Walking Unaided Week 69 Post #HipReplacement

Archive, Arthritis, Covid-19 Lockdown, Covid-19 Week Six, Health, Hips, Hypermobility, Hip replacement

I’m FINALLY doing it, not always especially well. And often with a bigger pay back than I’d like. But it’s a foundation to work upon.

My desire to ease the pain and disfigurement to my walking stick hand has drove me to walk unaided, regardless of trendelenburg gait. I’m experiencing the biggest arthritis flare I’ve ever had, could this be lockdown related?

The walks are usually pretty flat and even ground, as I’m not looking to run before I can master a real walk.

Sadly the walks we’ve had have featured some nasty fires lately, probably due to the lovely weather we’ve had, making everything so dry.

Air was heavy with the scent of smoke and burnt trees. Sad to see it damaged. But from this we’ve seen new life sprout up already in a week.

My biggest issue with walking unaided is obviously the fatigue afterwards,it’s all too consuming. And secondly is the pain which spikes up. Then thirdly is the swelling the leg always has afterwards. Measuring on average 2 inches fatter than opposite hip.

For now I’m enjoying the accomplishment of walking unaided, even if it does cost me a few days to recover from.

17 Weeks #Etoricoxib

Archive, Arthritis, Covid-19 Lockdown, Covid-19 Week Five, Health, Hips, Hypermobility

Its been a struggle, the last few weeks my hands have FLARED up so so bad. Each night it’s at its worst, feeling like they are being crushed in a vice, but they are simply resting.

My worst hand is this left one, the one I daren’t ever have injections I again after that disaster last time. Random swellings and crushing sensations in this one every day and night.

Right one better but not 100 percent. Has now weirdly developed a dip or dent where the joint is. It’s new to me, though I know others have it. Not sure why it’s appeared at all.

Feel like I need to discuss medication with the GP but also terrified to go. Not even sure there is anything they can do, I know I need surgery, but until I walk unaided it’s not even an option 😭😭😭 Has anyone else had an increase in pain?

Decided to source the 8 paracetamol a day, and take my etoricoxib as planned too, with an additional cbd oil. Could be pure placebo,or snake oil. But I’m willing to give it a chance, anything to settle these hands down. Started on Friday, so let’s see how this works out.

14 weeks #Etoricoxib

Archive, Covid 19 Week Three, Covid-19 Lockdown

Onto starting my third month of these, my second month at 90mg dose. And I am seeing and feeling an overall better relief. I have 8 left but ordered more, and I’m hoping they stay available.

It’s not a total relief, but better. Although this last week, I’ve found my #Arthritis as a whole has massively flared up, probably triggered from poorer sleeping, the time of the month!! As this makes all my joints super loose, thanks to #EhlersDanlosSyndrome

Joint slipped out again recently, so I spent the night wide awake, feeling like the thumb was being crushed! Only ice and freeze gel got me through the night, with lots of tears too.

I would take the 8 paracetamol I’m meant too, but the world went mad, and there’s never any available. So I’m rationing the ones I have.

And like others, I have no chance of any treatments either, as all OT, Physio and Micats are cancelled.

61 Weeks Post #HipReplacement Physio outside

Archive, Family Adventures, Health, Hips, Hypermobility, Hip replacement

Racing into the weeks now, it feels after Christmas the months have absolutely flown!! I can’t quite believe it’s middle of March and nearly time for Easter Holidays.

As the horrendous storms and water have reduced, it’s been good to get outside and do some nature countryside walks. They actually seem to wear me out more than a gym controlled session.

Trying to walk straight, small steps and very very controlled so the limp isn’t there. It’s only a small amount of steps I can do like this, before waddle comes back. But I’m trying to build upon it.

It’s cold for sure, but wrapped up it’s ok, and you get to feel alive for a bit. Blow the depressive thoughts away and reset your mind.

I am very lucky to live in such a pretty place. The mud makes each step a little off camber, giving the ankles more work to hold you upright and steady, so it’s working the micro muscles we don’t usually think about. But it does fatigue me very quickly.

6 weeks #Etoricoxib

Archive, Arthritis, Health, Hips, Hypermobility

Since starting the 90mg dose, the thumbs have started to settle down. And I’m not having heart palpitations anymore either.

I do sometimes need the ibuprofen during the day which is annoying. And I’m wearing splints most nights, but I’ve even found myself going to bed and forgetting them!! I never imagined that would happen.

I was getting confident so I went back to crafting, and I sold This one

And this one too,

found here

But low and behold, forgetting splints at night, and a couple of tablets. Followed by being carefree with crafting, I then had a HUGE FLARE with a few days last week where the cmc bone would not sit in place!! So back to meds, rest and icing and splints settled it down finally.

The weather has turned quite bitterly cold so I’m sure that isn’t helping either. So each day it’s wrapped up with hot water bottles and blankets. Rest rest rest is all I can do.

55 Weeks Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

Flying by these weeks and in general I’m feeling pretty good. So it’s easy to forget yourself and act normally.

In my case I spent the longest time without my stick, only to be harshly reminded it’s not at it’s best yet!! And I’m not ready to say goodbye to it either, mores the pity.

I’ve been so focused on my hands recently, That I’d overlooked my hips entirely!! Which has caused a huge kick in the ass. I’ve got that familiar sitting on a golf ball feeling back,though I have been perhaps overdoing it lately.

With that in mind, I’ve had a whole week of resting the hip, but now it’s physio time. I hope it doesn’t kill me off again.

  • Stationary bike level 2 x 5mins
  • Leg press 40kg x 20reps
  • Kettle bell glute squeeze x 20reps
  • Upside down Bosu ball squats x 20reps
  • Flat Bosu ball side lunges x 20reps
  • Standing on 1leg on Flat Bosu ball x 1min
  • Trampoline marching x 1min
  • Side steps up stairs x 20reps

I did more than I’ve ever done, hard sweaty but I survived. Now back to that resting!!

51 Weeks Post #HipReplacement #Blogmas

Archive, Arthritis, Blogmas 2019, Health, Hips, Hypermobility, Hip Arthroscopy, Hip replacement, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

As this year winds down, and my first year post op anniversary/birthday approaches, I am taking stock over what this year has entailed.

And my biggest thing is, I’ve smiled more this year than I have in 10years. I’ve had an incredible year, which I definitely put down to the successful hip replacement. And though me still needing a walking stick, meds and hot water bottles may not seem a success to you, for me it’s still a huge improvement.

Fitness is nowhere near where I want it to be, nor is my weight. But I’m finding that I care less and less recently, rather I’m enjoying life and all the new experiences this hip is allowing me. Ever mindful I have to fix other broken body parts, but I’m focusing on the victory!!

So no New Year New Me, or saying goodbye to the decade with scorn. My last decade I’ve learnt to re- walk 8 times, had 10 surgeries, used a walking frame, bath board, perch, walking sticks, and crutches for every year of the last decade. But each one of those brutal recoveries have got me here today. And for that I’m blessed.

I plan for so many more adventures and walking while other hip allows it.

I am lucky that stunning walks are so close go home, and that my partner loves walking too.

Paths not too uneven, so this helps the warm up and to keep a steady balance.

Hopefully I can do this more if my hip and hands allow. I’m still experimenting with #Etoricoxib tablets for Arthritis I’ve had a weeks worth so far. And while it’s not a 100 percent fix it’s certainly helping.

With that said I will bid you all a HAPPY NEW YEAR, and thank you for all the support of friendship you’ve given me, it means the world.