19 weeks post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

The weeks are flying by, and with the warmer weather we as a family are getting busier, which is lovely. But boy oh boy I’m still paying a high price for any activities.

Which I wholeheartedly admit is gutting. I truly wanted, wished and hoped that by now this magic bullet surgery would be the answer and I’d be skipping into the sunset.

And while this surgery has been amazing, it’s clearly not the sole issue I thought it was. I’m struggling with my hands alot, but not just them though my ankles, knees and shoulders too and I feel cheated. All I’ve ever wanted is my life back, who I was at 32 and I’ve chased this dream headlong ever since.

I had no concept that I was literally fixing the hips to then swap the goal post and need intervention on other joints.

So I’m not going to compare to others healing times anymore, it is what it is. I’m not sure if it’s the Ehlers Danlos Syndrome, Hip Dysplasia or Arthritis that is ruling my life, but something is, more than I care to admit too.

It sucks that I have some issues, I have to remember not to focus on them, I need to remember the positive thoughts and drive my energies into them.

No physio appointment booked this week, so physio at home is foundation basics to keep movement going and no stress out other joints. Using ankle weights for resistance.

  • Hip abduction x 15 reps
  • Hip extension x 15 reps
  • Hip extension (backwards) x 15 reps
  • Hip flexion x 15 reps
  • Single leg lunge on areobic step x 15 reps
  • Monster walk x 30 steps

Going to work on these while I await the next physio appointment.

Found these exercises on Pinterest and I will try to add some of these are well, later on in the week.

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Week 14 #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

A week of mini victories, first I had walked down the stairs once without holding on for dear life, and one step at a time.

Next I put on trousers standing up, wasn’t totally graceful but I did it!!

I’ve bought some skinny jeans for my out out evening Friday. Skinny style though not a skinny size (but that is something I am and I will work on) They both have a stretch in them so they aren’t too weird over the scar. As I still don’t like seams over scars.

Slowly slowly I’m regaining myself back which is wonderful news.

Then of course I’m going to a techno night out on Friday night, a night a friend runs in Birmingham. Chapel Of Chaos

So I can’t do too much physio this week, so I save my energies for this. We’d bought tickets for this before Christmas,and before my surgery dates changed too. Determined not to miss another one. Does anyone else rest a lot before a thing? I know I have too.

Heres week 14 scar, looking pretty deep still at the top, but almost disappeared at the bottom, looks as faded as the two scars that are either side of it. Should be fine wearing shorts if we get some sunshine this summer.

Day 72 #HipReplacement Red or Green Band?

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

The last few days I’ve not managed to get outside and walk, so it’s been hydro or physio at home.

I’m back on the red band as I can do the exercises with it, with reasonable ease. But I’m debating whether that’s good or not? Like is it wise to do more reps with low resistance, or low reps with high resistance? Definitely something to ask at hydro next week.

Back to

  • Glute exercise 20 reps x 2
  • Quad exercise 20 reps x 2
  • Heel Slide 20 reps x 2
  • Hip abduction 20 reps x 2
  • Single leg raise 20 reps x 2
  • Short Arc quad 20 reps x 2
  • Clam side drop 20 reps x 2
  • Ankle ball squeezes 20 reps x 2
  • Knee ball squeezes 20 reps x 2
  • Long arc quad 20 reps x 2

Used the RED band throughout, and 2 sets took 40 mins. I felt a few twinges around the groin, nothing to worry over but enough to need rest and hot water bottles.

Following rest and warming of the joints I carry in with these

  • Hip flexion 20 reps x 2
  • Hip abduction 20 reps x 2
  • Hip extension 20 reps x 2
  • Heel to butt 20 reps x 2
  • Mini squats 20 reps x 2
  • Step ups 20 reps x 2
  • Monster walk 20 reps x 2

Feel it in the butt when I do the mini squats, and admittedly the hip flexion isn’t my friend either. Pulls at the groin, and hip flexor. These 2 sets took 40 mins as well. Did both legs as well, so that’s only my second time of including the opposite hip on the standing exercises. Feels good but quite hard.

At least I don’t have to focus on my hands and their pain while doing these exercises.

Day 71 Hydro and OT appointments

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Yesterday was Wednesday and I had my appointments for both OT (Occupational therapist) then closely followed by Hydrotherapy. It was brilliant to have on the same day, saves traveling and parking two separate days.

My first appointment was OT and I showed her my photo of my swollen knuckles, and explained the pain.

And she gave me some compression gloves to start wearing, whenever I feel like I need them. To gently compress and warm the hand joints.

Totally not attractive, I mean look at them!! But needs must. And I also need to make an appointment with the gp, to discuss steroids or effective pain relief.

So that was done, time for Hydro. And following the weeks walking adventures, I was already tired. But eager to workout as hard as I could too.

  • Walk up down pool forwards x 3
  • Walk up down pool sideways x 3
  • Walk up down pool backwards x 3
  • Hip flexion 20 reps x 2
  • Hip abduction 20 reps x 2
  • Hip extension 20 reps x 2
  • Step ups forward 20 reps x 2
  • Step up sideways 20 reps x 2
  • Push float down core exercise 20 reps x 2
  • Mini squats 20 reps x 2

That was honestly me done, I hobbled out exhausted but accomplished. Once home and dinner done, I promptly fell asleep again. It’s definitely wearing me out proper!!

Day 45 swellings

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

The ever swelling thigh is annoying, but I’ve been using a walking stick since a week last Sunday all day every day, even outside.

And then with physio exercises as well. Using the stick to stabilise as I do mini squats, or hip flexion etc. So it’s not as supportive as a crutch, making the hips work harder.

With exercise and physio, and walking a lot more, it’s making the hip irritated, good for healing. But it gets sore and swells a lot.

But I’m proud to say every day this week I’ve done some physio in some form, but not pushed as hard as I could, as I’m hoping doing it less hard but everyday is better than going all in, but then crippled for a week.

I’m loving the no compression stockings, skin definitely needs more tlc to get it less dry. But hoping the sunshine of this week will help too.

Day 31 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

I have I think learnt my lesson from doing to much, and had enforced rest. I started to tentatively introduce some physio back into my routine.

I first started just focusing on my shoulders and hands, as they need doing as much as my hips do too.

So from this I had to get up and move around anyways, so I thought I’d introduced the glute squeezes, a few hip flexions, or while waiting for the kettle some mini squats.

If I did while doing other things, then I wouldn’t be encouraged to do too much, and only do as long as the original exercise was to take, is making a coffee, or glute squeezes while I stir the beans.

I’ve accomplished having a bath again, much easier this time, though I kept the door ajar and hubby within ear range, for peace of mind. I’ve noticed my seat bones are feeling sharp (odd as I have a chubby behind) I was hoping it would go on the right side, but alas no. It must be from when they realigned my pelvis to create the acetabulum (socket) so sitting still isn’t comfy, but I can lie down and enjoy the bubbly bath so that’s nice. And I also drum roll please….. Shaved my legs!! Difficult rating 9out of 10 but I just about managed it. Milestone hit.

#Blogmas 2018 Occupational therapy

Archive, blogmas 2018, Health, Hips, Hypermobility

The day is finally here, I’m not well enough to go, but I’m dragging myself there, as this is needed.

It all started as a disaster on my part, I thought the time was 9.30am but hubby informed me at 9.10am that it was in the calendar for 9.15am OH. MY. GOD. Mad panic ensued, and I had to ring them to tell them. Simple mistake, I desperately hoped they could still see me. Thankfully they were most accommodating.

Roll a pen between thumb and finger, with thumb doing all the work

Make an ‘O’ with hand, and then lift up first finger, feel ligaments stretch down finger and thumb.

Small movements, but I could really feel it. So I’m sure these are going to help a lot.

I’m so glad I went, it was so worth it. They listened, confirmed my hypermobility in each finger joint, showed me tools I can buy to help around the house. Gave me new exercises to try. And even made me some braces, that are bent to my shape, to help support thumbs.

I walked out of there feeling listened too, full of hope for the physio to work in mobility and pain levels. I am optimistic about the future, if I can do the hardwork.

So I’m back in six weeks time, and like any good Physiotherapist, she will be able to tell whether I’ve done them or not.

7 weeks until #hipreplacement

Archive, Health, Hips, Hypermobility, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Feels like I’m going back in time!! Well now I have more time to play with, maybe it’s time to sort these hands a bit more long term?

So with that in mind I went to see the GP. As I’m at my wit’s end with pain.

Some days they are like lightening and I struggle to even hold my phone and scroll. Other days it’s like there’s never been an issue.

I have not found a reason of the fluctuations in mobility and pain levels. I eat the same way every week (the success of our weight loss and maintaining weight) and I do the same level of physio exercises. So it can’t be any of those.

Really I’d love a magic wand to take the pain away, but that’s not possible. Though 5% ibuprofen gel takes some of it away, but I can only use it 4 times a day.

No real answers to it all, except I am trying to book in with MiCats for another steroid injection, which admittedly the last one was July and has worked very well. Also seeing OT (occupational therapy) on 5th Dec to see if there is anything they can do to help.

Thankfully I managed to snag a cancellation appointment for Friday 23rd Nov instead of waiting until 31st Dec. But the steroid injection couldn’t be done on the Friday due to no ultrasound machine, so back on Tuesday 27th for a CMC joint kenalog injection.

We had a long chat, she gave me exercises to try, I grossed her out with how much range my thumb has, clearly it’s not a normal range. But we touched on the fact she doesn’t see steroid injections long term. Something I know my hip consultant says too, however rheumatologist and gp say different.

Hip wise, I’m back to doing the post hip replacement exercises, and I’d actually forgotten how hardcore they are, still no improvement on standing freely on one leg, it’s not happening. Or extending leg outstretched forwards, the leg is too heavy and too resistant.

Still shocks me how hard these actually are too do.
I can only hope they aim to improve the tone and muscle and my stamina, all for better smoother healing afterwards. And at least they are keeping me busy in the meantime too. Instead of wallowing in self pity.

I’ve rung to confirm the new official surgery date, so as of today it’s officially 9th Jan 2019 as long as nothing else happens. No date for pre op as of yet though.

5 weeks to go….. #THR

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

This week I have been faithfully doing physio, and I’ve learnt a few things from it.

1, my left (to be replaced) leg hates Hip Extension forward. It feels immensely heavy to lift, not sure why?

2, I’m still struggling with Clam raises, or Hip openers. It aches my left side glute, again it feels extra tight and resistant.

3, even this Heel slide (the easiest exercise) I’m struggling with on the left side too. The leg feels so heavy in comparison and it takes all my efforts to get them completed.

So I’m at a loss on how to improve these beforehand, as I’ve been doing these consistently this whole year, with zero improvement. I’m hoping once replaced, the action will improve.

Sidenote: since the weather has turned cold, and damp. I’ve noticed that my back is stiffer, I feel like a plank of wood. No flexibility in this Ehlers Danlos girl, and pain has increased. Maybe this is why I feel physio has gotten worse?? Hot water bottle is back out full time, and ibuprofen gel.

These are still available, on batch 4 at the moment and will end 31st October, ship 11th November. buy here

Finally getting answers?? 7 weeks til #TotalHipReplacement

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Well I’ve had the long awaited rheumatologist appointment, and it wasn’t at all as expected.

I wasn’t sure which would be a good result, if I’m being honest. As rheumatoid arthritis is no laughing matter, though thankfully there are certain medications to help with the inflammation.

However, I have certain distinctive wear and tear joint space narrowings of the joints, and none of the rheumatoid symptoms, so this meant it’s more likely my #EhlersDanlosSyndrome causing early Osteoarthritis, but the inflammatory kind. So still erosive and very painful, but less likely to be helped with medications that they use for rheumatoid arthritis sadly.

So it’s a limbo really, I can brace, splint and tape them up. Take ibuprofen, use hot water bottles and do physio and see if it helps. Though I am doing all these things already to be honest. So my future of a crafter (Jewellery and papercutting) is looking unlikely!!

I’m going to try and tinker more with food groups and try to find my triggers, if it is triggered by food that is.

So it seems my Zebra status is causing my early onset of Osteoarthritis which is notable in the hips, and now the hands. I haven’t dare touch upon the fact my ankles roll all the time, knees ache funny and elbows are odd. Because he signed me off straight away. So I think he just believes I need physio and perhaps go back to gps for help with better painkillers. (Do better painkillers even exist? Ones that don’t cause hair loss, sleeplessness, racing heartbeats, brain fog, nausea to name a few of the lovely side effects…)

I am allowed the kenalog injections in the hands, but is that in 1 joint, multiple joints? As sometimes it’s 1 thumb, 1 wrist, and 1 finger all at once! It’s unpredictable as to when and where it’s going to hurt, so taking painkillers seems weird. Ideally just reduce the inflammation would be a good start.

For now though I must just muddle through, manage the pain as best as I can, because it’s a mere 7 weeks now until my Hip Replacement Surgery. And I have so much to do to prepare for that. Any handy tips or hints? Let me know