Week 43 post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

Now time is slowing down, so is progress, the whole squelchy hip feeling has put me backwards in terms of progression and recovery.

I’ve been able to do most things I want to do, except the leaning forwards, and shave my leg (This is too hard at the moment)

So it’s been a resting week, as I felt the hip really needed it after the last 2 weekends were full and chaotic, not giving the hip chance to properly recover.

My left one is aching more, could be because I’m relying on it more, or the colder weather I’m not sure yet.

It was also my physio appointment this week too, so after discussing the whole squelchy feeling and what triggers it, it was time to get down to business and work this leg out.

Or not as the case turned out to be!!

After describing the whole issue I’d been having, and following the therapists full leg examination, where we position the leg in various ways, and on touching the IT band area, it was super super sore!! And extremely tight. We conclude it’s an IT Band injury.

ITB Anatomy

The iliotibial band is a thick band of fibrous tissue that starts at the hip, goes down the outer thigh, crosses the side of the knee joint and connects to the shinbone. The band stabilizes the hip and knee joint. High-impact activities, especially running, place stress on it. Patients commonly experience ITB tightness after a hip replacement, which restricts joint mobility.

So the plan is to do these 5 times a day, with a hold of 5 seconds.


This stretch helps release tension in the glutes, which can lead to IT band issues. On an exercise mat, lie face up with your knees bent and feet flat. Raise left foot to the ceiling and hold the grasp just below the knee to hold it up. Then, pull the foot toward your chest, turning the shin to the side so it’s almost perpendicular to your body. Hold the stretch, then repeat on opposite leg. For a deeper stretch, keep non-stretching leg extended on the floor as you stretch.

Back in a weeks time to assess the outcome of the stretches and see if there’s any improvement.

Dark Gathering 2019 Part 3

Archive, Challenges, Randoms, Miscellaneous, Family Adventures, Witch, Pagan, Druid, Faery, Spiritual

Sadly our time to leave has come, and believe me when I say, we ae heartbroken. This place, this time, this event really touched us. It was perfect.

To end the trip properly, we gathered ourselves ready to walk the Rocky Valley.

This is what the website says about it.

Take in majestic views of the bay near Bossiney

The stream starts life high up on Venn Down, 820ft (250m) above sea level. From there it meanders through fields before tumbling dramatically, first at the waterfalls at St Nectan’s Glen, then through rocky bluffs and deep clefts all the way to the open ocean in the bay near Bossiney. Grade of walk: Trainer (all rounder); type of walk: ‘Waterside Walks’, ‘Hidden Places’.

It was not EASY, and I struggled if I’m honest. But the sights were worth the pain, and stiffness.

We found the ancient labyrinth carvings, the old mill and raging waters.

Bridge wasn’t confidence inspiring! Least it warned us.

The walk itself isn’t long, but it is grand and energies felt around the water and stones, and earth. Brilliant place to end our spiritual journey on.

Week 41 +42 Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, Triple Pelvic Ost, Femoral Ost, PAO

This week has been full on, coming back from camping, and unpacking and washing everything.

Then re-packing again for a romantic getaway to Boscastle, it’s for the #DarkGathering which happens the Saturday before Samhain (Halloween) so a cottage is booked and I can’t wait.

But in my haste I’ve bent forwards again to pick a mirror off the floor, and the hip did/does a weird squelchy feeling, it is a fast reminder not to do it, it is the oddest feeling and I feel sick when it happens.

I’ve googled it and I can’t find anything about this sensation. I will keep an eye on it, rest while I can, and vow never to bend like that again!!

3 Weeks Post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

I’ve had a discussion with my MiCats Doctor, and we have to officially give the steroid at least 4 weeks to work, before I can say it hasn’t worked.

But in my mind I was already convinced, at 2 weeks it hadn’t worked, as I’d been using ibuprofen gel, and I was back on the splints too.

Now I’m at 3 Weeks the nagging pain seems to have settled. Though holding my walking stick, or picking up cups still ache the hand, but a least it’s not that fiery hot pain.

If it doesn’t work:

I have only one pain relieving option left open to me and that’s surgery. Though with a hip replacement looming, the Doctor feels that has to come first. So delaying as much as possible is my only option.

Also what if surgery makes me worse? I lose strength? It’s not like my hip surgeries have been immensely successful over the last decade. It’s only now I’m seeing some success, with more to come. So really it’s not a viable option.

But on the flip side it’s only going to get worse, harder to use, and lose strength anyway, and the need to wear splints. It’s a no win situation.

Family wise I don’t think they can cope with more surgery either, and is it really fair to put them through more, when I know the other hip replacement is around the corner anyway??

And you know what’s worse? I know I have to do the other hand, it’s already getting worse, since I got this hand done. Can I really face that awful pain, and almost passing out again? Not sure I can yet!

Week 2 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

It’s been two weeks, and after the vast improvement from the first 4 days, it’s now on an even keel. Though I’d say it’s only slightly better than before the injection.

I’ve been doing some hand exercises to help mobilise it, an I’ve been doing everyday chores too. Washing up is still a painful affair, and opening jars, holding cups are painful at times, but not all the time.

I definitely had hoped this would of been improved. But I can type with my thumb now, and hold my phone. So some plus points some negative points. I can even put my phone charger in the phone hole, this was immensely painful before, so I’m glad it is improved.

But it still cracks, grinds and it’s audible, ( ie others can hear it too)

Complete with dull aches and throbbing, so I’m not sure this has worked entirely. The grinding is what concerns me the most though.

Made an #ehlersdanlossyndrome bracelet though, and it felt good to do it, couldn’t make loads due to aching, but I’m glad I did a few.

Buy Here

Going out out #Suki10c

Archive, Arthritis, Family Adventures

It’s time to let loose and have some fun, and listen to good music once again at #ChapelOfChaos at Suki10c it’s taking us back to the 90s when nobody had any cares in the world.

Let’s hope the hip and hands can behave for one night!! Last time I came here I was day 100 post #hipreplacement this time it’s day 268!!

I adore this club, it’s accessible for wheelchairs and walking sticks, and best of all I love their recycling policy.Proving you can be wild and hedonistic while caring about the planet too.

It also has a vast amount of seating, which I need. As even when hips do behave, I still can’t stand for long.


Chapel Of Chaos goes back to the 90s for a retrospective night of hardcore, gabber & early rave classics 1993 to 1999. Join us as we go back to the days of Helter Skelter Technodrome, North, Steam, Club Kinetic, Hardcore Heaven, Vibealite, Rezerection, Dance Planet, Obsession and more with some exclusive sets from the DJs & producers responsible for shaping hardcore techno music in the 90s.

LEVIATHAN AKA TELLURIAN (CENOBITE / MOKUM LEGEND)
With a career spanning over 30 years with huge releases on the legendary labels Cenobite & Mokum amongst others, we are absolutely honoured to welcome a good friend of the Chapel, all round nice guy and pioneer of the hardcore scene Leviathan / Tellurian. Hailing from Amsterdam, this groundbreaking artist started with hip hop in 1985 before releasing his first rave record in 1992 and then becoming a regular on the Mokum label and starting his own label Cenobite in 1996..the rest is history! This guy helped shaped the sound we all love so we are proud to bring him over to England to rock the Chapel. Get ready for Leviathan vs Tellurian classics…we’ll tear your soul apart!

FERGUS (VIBEALITE / TOMORROW’S WORLD)
Vibealite, Tomorrow’s World, Helter Skelter, Hardcore Heaven, Uprising, Diz, North…what else needs to be said? The Vibealite legend doesn’t take many bookings so this will be a very special vinyl set just for the Chapel diehards. Your favourite DJs favourite DJ is making his debut at the Chapel with a hard trance into gabba set.

SCORPIO (DANCE PLANET 93/94 SET)
Well we couldn’t have a 90s night without Scorpio could we? For this special set we are going back to the south coast in 1993-1994 for the start of Scorpio’s journey into hardcore. Dance Planet, Obsession, Fusion and more were a huge part of this guy’s history and the young fresh faced lad interviewed by Carl Cox hoping to play at Dreamscape one day in 1993 is coming out to play for one night only with the records that shaped Simon Mitchell aka DJ Scorpio. Strictly 93/94 classics and forgotten gems from this hero.

MARC SMITH (REZERECTION SET)
Marc Smith has been a cornerstone of UK rave music for 30 years with releases on the Thunderdome CDs, Clubscene and his own long running label Notorious Vinyl alongside numerous album mixes, countless tapepacks and sets all over the world. With unmatched energy on the decks and an open minded approach to hardcore music, we are very proud to present the party animal Marc Smith playing a very special Rez set 94-96 style. Fasten your seatbelts!

DJ RIBBZ (CLASSIC ACID TECHNO)
He had such a good time at our old skool night in February, we just had to invite Ribbzy back and this time he’s bringing his 90s techno records! Known predominantly for his MC’ing, Ribbz is also a highly accomplished DJ with a DJ career spanning 25+ years at Helter Skelter, Hardcore Heaven and more. We could genuinely listen to this guy read the phone book so it gives us great pleasure to welcome DJ Ribbz to play some of his favourite acid techno records and warm up the Chapel properly.

ANDY FREESTYLE vs ANDY TECHNO
2 of the most skilled DJs in the UK (FACT!) go back to back for the first time with an exclusive bouncy techno / early gabber set on vinyl. This set will be fast, furious and bouncy as fuck!

THUMPA
(1997 – 1999 EARLY RAVE SET)
Slow and low set from Chapel boss Thumpa with lots of 97-99 classics and underplayed gems from the ‘new style’ era of hardcore. This set will be strikt voor de hardcore!

PSYVEX (TECHNODROME FORGOTTEN GEMS SET)
Friend of the Chapel, regular at our nights and top bloke Psyvex impressed us with some amazing sets on soundcloud so we thought it was only right to let him loose on the decks! Playing an hour of the underrated, under appreciated and often forgotten gems of the Technodrome days 97-99, we are excited to bring Liam over for his first Chapel set!
HOSTED ALL NIGHT BY MC RIBBZ, SQUIDGY B & FROSTIE

Week 38 Post #HipReplacement

Archive, Arthritis, Family Adventures, Health, Hips, Hypermobility, Hip replacement

So much has happened in the space of a week, my youngest has been at uni for a week (well more like 10days as this goes live) and let me tell you, that’s been an adjustment for sure, coupled with many tears. Happy ones as I’m proud, but I do so miss her, and worry too. Thank heavens for video calling on whatsapp.

My Left hand injection was over a week ago, still painful memories. Fun Fact: I can hear it grinding when I move it too Ouchie!!

And I’ve helped (bossed and kept company, so not really helping) my second eldest daughter move from Llandudno to Manchester.

All the while, we’ve had horrendous rain, which has hugely increased pains and aches all over. Most notably end of stem aches (mid thigh right leg) and groin right leg, left hand and left ankle. I kinda feel like emigrating to a warm country!! Less pain then. Is this all just Arthritis or Ehlers Danlos Syndrome, either way it’s pretty miserable body wise at times.

Even with the aches and pains, I’m LOVING my hip replacement!! It’s holding up so well, I’m so glad I did it. I struggle at times, but it’s the other hip failing me now.

Physio appointment day

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

Well this is going to be fun, not done any physio for weeks. And now my hand (left) is absolutely useless, as it’s so painful from the steroid injection.

Hoping I can nurse the hand while working out the hips. I will wear the splint to protect it as well.

Sidenote, tiny bat was in the corridor, he made my day.

Thankfully none of the exercises I did needed my hand.

Stationary bike level 2 x 5mins

Side Leg Raise (ankle weighted) x 15reps

Supine Hip Abduction (ankle weighted) x 15reps

Supine Hip Abduction (Resistance Band) x 15reps

Prone Knee Raise (ankle weighted) x 15reps

We tried 2 new exercises to me, to test out the hips (both sides)

Sumo squat, (pivot on foot, to face opposite way) x 8reps each side

Knees hurt doing that one.

Bosu Ball Side Lunges x 5reps each side

Had parallel bars to stabilise myself, right knee hated this exercise the most.

On Holiday with a #HipReplacement 36 weeks post op

Archive, Arthritis, Family Adventures, Health, Hips, Hypermobility, Hip replacement

It was lovely to get away on holiday finally and soak up some sunshine, and warmth into my bones. This is the first time aboard with my new implant.

And it was quite different to other holidays that have been marred completely with pain and immobility. But it also wasn’t the completely ‘normie’ holiday I was expecting either.

Rather it was something in between. A limbo of sorts. Pain in the hip has definitely decreased and that is wonderful, but the knees and back take the hips old role. So the walking stick still ever present to keep me stable. Thankfully I took this and my splint for me hand, both in constant use.

My hands pain did improve while away, though of course using the walking stick does hurt the hand greatly. Using the splint at night helped, as well as my ibuprofen gel. Well worth taking with me. It was even heavenly on my aching swollen feet and ankles.

As I said in a previous post, I had a slight accident on the flight over to Rhodes, where my leg was trapped from people rushing to get passed me, so the ‘good’ leg looked unsightly all week.

This is how it looked on the first morning on holiday.

But it got a lot worse over time. And the leg seemed to collect bruises all over it, I counted 20 at one point.

Last day the bruise finally looked like it was going. The knee gave me some issues especially day 5 onwards, super squeaky if pressed and sharp pains on heel strike while walking.

I’ve noticed I can barely swim now, the tiredness and ache the leg experiences is something I’ve not had before. I’m usually a very very strong swimmer, but now not at all. I will work on this though. Wonder if other hippies have experienced this?

Overall though what a brilliant time away, and the sunflower lanyard certainly worked and helped on the way home, twice I didn’t have to queue as long as everyone else, and honestly it was much needed and appreciated help!! Thank you airport staff. Pride had stopped me so many times, and even taking photos I would push the stick away. Hiding the real truth. But here it is and me, as it’s as part of me as anything else! Here’s to admitting you can’t do everything. And some help can really change your outlook on some experiences.

Week 35 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

A quick relaxing break away before it’s all change and our youngest daughter paves her own path in life, when she starts university once we are home. So this week away is our last family holiday. So clinging onto the last second while we can.

So first aboard holiday with my hip replacement, I can honestly say I had envisioned that I would be skipping off into the sunset. And reality is, I’m still taking my walking stick, taking tramadol and ibuprofen, my splints and compression gloves. So there’s no rest or break away from health issues sadly.

I am armed with my sunflower lanyard for hidden disabilities, my first time ever using one for the airport.

Though with a splint on my hand and walking stick, I’m not sure it’s hidden!!

It helped with the security queue, though not mentioned I was ushered into a faster line, very professional. Once there though I was put into the x-ray machine is it? Then patted down, then with the wand all over, yes hip did bleep. I wore leggings so it would be easier to see that it’s my hip. They removed my hand splint, and put that through the machine, as well as my walking stick. Extremely thorough!!

Flight went ok, nothing to report, except I knew it would ache and it did, so plenty of fluids to help combat that, and moving the leg to prevent stiffness.

I will say I’m extremely disappointed that so many people will push in, shove and rush past me to get ahead. I was squeezed into a chair arm rest and this was the result.

The rush to get a seat on the bus was hilarious, and so obviously I’m slower,so I had to stand, complete with full death grip on pole and walking stick!!

But finally we arrived, middle of the night so it was a quick brew and water to drink then bed. Shattered.

But I’m determined to enjoy myself and kickback and forget my worries, if only for a week.

Catch you laters my lovelies.