20 weeks post #HipReplacement

Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Time to share again what I’ve learnt or experienced over this last week. Well I’ve learnt even with a walking stick I simply can’t stand, it hurts my back, my thigh, ankles and even the ball of my feet swelled up!!

So a day out is still equalling a few days rest, so not where I’d like to be in terms of daily living.

But I did manage to paint my toes for the first time since my op. And finally my big toe nails have grown back, for some reason I lose my big toe nails after surgery?

Ankles are often swollen now, especially after days out, so I need to see the GP again. As even my ball of my foot is swelling up. God knows why.

Scar is looking pretty decent, and I only remember it when it stings, aches after a long day. It’s still so numb around 3inches side to side all down the length of it. But it’s early days yet, it may come back.

In between days of doing things out and about, and rest days, I try to squeeze in at least 2 sessions of physio at home, using my step and ankle weights.

And in doing both legs in my physio, my left leg (non replaced hip) is painfree but so much weaker than the replaced hip. Hoping by regularly doing both legs now it will catch up at bit.

Finally getting answers?? 7 weeks til #TotalHipReplacement

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Well I’ve had the long awaited rheumatologist appointment, and it wasn’t at all as expected.

I wasn’t sure which would be a good result, if I’m being honest. As rheumatoid arthritis is no laughing matter, though thankfully there are certain medications to help with the inflammation.

However, I have certain distinctive wear and tear joint space narrowings of the joints, and none of the rheumatoid symptoms, so this meant it’s more likely my #EhlersDanlosSyndrome causing early Osteoarthritis, but the inflammatory kind. So still erosive and very painful, but less likely to be helped with medications that they use for rheumatoid arthritis sadly.

So it’s a limbo really, I can brace, splint and tape them up. Take ibuprofen, use hot water bottles and do physio and see if it helps. Though I am doing all these things already to be honest. So my future of a crafter (Jewellery and papercutting) is looking unlikely!!

I’m going to try and tinker more with food groups and try to find my triggers, if it is triggered by food that is.

So it seems my Zebra status is causing my early onset of Osteoarthritis which is notable in the hips, and now the hands. I haven’t dare touch upon the fact my ankles roll all the time, knees ache funny and elbows are odd. Because he signed me off straight away. So I think he just believes I need physio and perhaps go back to gps for help with better painkillers. (Do better painkillers even exist? Ones that don’t cause hair loss, sleeplessness, racing heartbeats, brain fog, nausea to name a few of the lovely side effects…)

I am allowed the kenalog injections in the hands, but is that in 1 joint, multiple joints? As sometimes it’s 1 thumb, 1 wrist, and 1 finger all at once! It’s unpredictable as to when and where it’s going to hurt, so taking painkillers seems weird. Ideally just reduce the inflammation would be a good start.

For now though I must just muddle through, manage the pain as best as I can, because it’s a mere 7 weeks now until my Hip Replacement Surgery. And I have so much to do to prepare for that. Any handy tips or hints? Let me know

I’m annoyed….

Archive, Health, Hips, Hypermobility

With myself. I was meant to see MiCats

Musculoskeletal Integrated Clinical Assessment and Treatment Service (MICATS)

on the 30th May to discuss my issues with my hand, and how I struggle at times to hold things, to pick up cups etc…

But I rescheduled for the Stafford County Show, knowing I had the GP the following day, and I could get the x-ray results.

Well…… That didn’t happen, somehow my appointment was 8.40am and I thought it was 1.40pm or 1.45pm so I rang to ask which one, and they dropped the info that I’d actually already missed it!! And the earliest I can get in, is 20th June!!

This is ridiculous, I feel like I’m never going to get my hand sorted out. Yes it’s totally my fault, so I’m annoyed with myself. Ggggrrrrr

33 weeks post #hiparthroscopy. Clun Greenman Festival

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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No physio this week, instead it’s been daily activities that normal people do. And I’m failing!! I just about manage an activity in a day, but it costs 2 days of complete reduction of any movement, or chores, or physio.

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Monday we visited Clun for the green man festival, glorious sunshine and pagan friends, bringing in the summer blessings for Beltaine, it was perfect. I bought a #Selenite wand and #Quartz point, while hubby bought a gorgeous green man plaque.

We watched the battle on the bridge between the ice Queen and green man, and with his victory sunshine, warmth and life spring forth. And judging by the weather and flowers I’d say he’d successively achieved it.

Following this one day out Monday, I could not move much Tuesday, and Wednesday. The hip was crunchy, and unstable once again. I took to my crutch for support. Used a lot of hot water bottles too, to control the pain.

What I did manage to do was ring for my x-ray results (for my hand, my walking stick hand)…. Which are?? Well I don’t know, it says I require to see the doctor to discuss results, but not urgent (is to me, my hand is all but useless at this point) so appointment for gp is 31st May!! Curiosity is killing me. Only bonus is my MiCats appointment to see about steroid injection in hand is 30th May. Though I fear they will just do a consultation first, so I’ll have even longer to wait to deal with my hand!!

Bear in mind this hand has ALL of my weight going through it, it’s important so I can walk correctly and not waddle. It’s crucial to get it fixed.

And of course while hip slipped with no exercise present, shows me it’s 100% unreliable, unpredictable and I’m scared to make plans too much, as it can go at any time! I seriously hate my hip.