Day 20 it’s OT day

Archive, Arthritis, Health, Hips, Hypermobility

In the last few weeks it’s all been hips and I’ve had to take a step back from my hands. Thankfully the recent weeks has been kind to me and they’ve swelled up minimally. But I’m kinda thinking that’s due to taking dihydrocodeine?!

My worse area was the CMC joint and where they put the cannula in. But now it’s all settled down and being reasonable.

After a week it was minimal

And now it’s completely cleared up.

So today is the day to show my lovely occupational therapist how I’ve done my exercises to build up the thumbs, and lengthen the finger ligaments. The physio I’ve done for them has helped, but so did the steroid injection.

Now medication is absolutely minimum, I’m feeling the familiar aches, pains and swellings. So I need advice on how to move forward.

Advice is to make the stretches harder using an elastic band or bobble, like what MiCats told me to do back in July. Now I have better strength and alignment, it should be easier to do.

Ive also got a new splint for my DIP joint of middle finger, as it’s extending all the time. I need to wear this when I’m doing things, like my thumb splints too (see above)

So hideous, but so needed as well. Back in 6 weeks time, to monitor how well they respond. But this is one thing that will get progressively worse over time, with little we can do about it to slow or control it.

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#Blogmas 2018 Post #SteroidInjection day 4,5,6

Archive, blogmas 2018, Health, Hips, Hypermobility

Not exactly a Christmas story blog post, but this blog chronicles my actual life, so it makes sense to me o include it.

Following on from 6 days ago, I received an intra articular steroid injection in the right hand, the CMC joint to be precise.

Each day I’ve seen and felt an improvement in the functionality and pain levels, and in swelling too.

Day 4

I’m still doing my daily exercises with the bobble as a resistance band. I’m also not protecting it from normal daily chores. It’s ok, it’s not entirely painfree. Started to notice the DIP joint is tender, and stings at times.

The DIP joint is the top knuckle of the thumb (or fingers) this is a new pain? Also I’ve felt ridiculously tearful, literally over nothing!! But I know it’s a side effect so I’m not reading anything into it.

Headaches are pretty frequent as well, but again I know they are a common side effect, so I have to just ride it for a while. And hope it settles down.

Day 5

I’m noticing it’s not as painfree as the other hand was immediately, so that’s a bit frustrating. But at least it’s after the days exercise and only aches at night time after a full day of use. Maybe it’s slower to heal as it’s my dominant hand.

Some evenings I’m putting the brace on, to support it and rest it when I know I’m physically resting more. It’s mainly to stop the joints from flexing too much.

Both hands went sore and swollen at the MCP joints and CMC joints because I went for a woodland walk, only outside for 1hr 30mins with plenty of stops and rest. Not sure why they flared up? Thankfully they went down after 30mins.

Day 6

Wow nearly a week has passed, and though it has niggles it’s 90% better than before the injection. So for that it’s totally worth the added pains, swellings and mood swings. I just pray it will last a while, as really all that’s left to manage it, is bone removal, joint replacement (I’m going to end up as mostly machine)

In this the trapezium bone is removed and the fingers ligament is used to fill the space instead.

Here we have surface replacement, bit like a total hip replacement, creates new smoother surfaces that don’t rub together, unlike bones.

Next week I see the OT and I’m keen to see what they say, I honestly can’t face more surgeries, but then this pain can be so disabling as well. Torn by decisions.

Steroid injection day

Archive, Arthritis, Health, Hips, Hypermobility

Well the day is finally here, after the disappointing Friday. Where I had an appointment but sadly no ultrasound machine to carry out the said procedure.

So, what am I having done, it’s an intra- articular injection which simply means injection directly into the inflamed joint.

The injection itself is usually quick and easy for them to perform, I say quick but to me it feels ages!! And when guided by an ultrasound machine, they can easily guide the needle directly to the inflamed area.

This time however I had the injection site through the thumb pad, not like the picture above, but like the photo below. Thicker tougher skin, I definitely felt it more this time, and the wiggling needle, seriously ouchie. And let’s not forget the joint feeling like it’s about to burst when the steroid kenalog is filling the joint space.

I came prepared with a mango coke, as last time I felt dizzy, sick and almost fainted. And this time was no different. Instantly sick feeling as needle comes out, woozy and dizzy, the sugary drink helped level me out. You have to sit around afterwards to ensure you don’t have an allergic reaction. But once my head cleared and I felt normal again, we left to go home and rest.

As you have a local anaesthetic as well the area is numbed a bit to help ease the pain of the steroid, but I will admit you still feel it a fair bit. And certainly after it wears off about an hour or two, the area will be achy and sore for a good 24-36 hours afterwards.

So no exercise or strenuous exercise on the joint while it’s sore and stiff. You may even need to brace it, juts to protect the area for a few days. Certainly what I did last time. As it’s my dominant hand, I feel it’s going to be harder to rest.

1yr #Hipaversary #hiparthroscopy

Archive, Challenges, Randoms, Miscellaneous, Family Adventures, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Travel

It’s finally been my 1year Anniversary since my last surgery, my Hip Arthroscopic surgery. And to celebrate it, we did it in style.

First off we visited #50cent for his 15th Anniversary Get Rich Or Die Trying Tour, this is immense, I loved every single second of it. We had Lethal Bizzle first up, then 50cent and GUnit. It was like the 00’s had come alive once again. And better yet, we knew once we got home and slept, we were off on Holiday!!

So off we flew the next day in the afternoon to #Rhodes hip obviously hates flying but I was well prepared for this.

To arrive here in the gorgeous sunshine, I knew it was the right decision to go.

This one wonderful week away, we visited as many sites as we could. Drove around the island and swam nearly everyday. I ate better here than I ever have done on a Spanish island (easier for veggie food too) the warmth honestly did my hip some good, as well as my hands. Though ankles continued to swell each day if we had been on our feet alot. But painwise the warm dry heat does absolute magic to them!! This is why pensioners move aboard.

We did a fair amount of steps, we had to stop every few so I could adjust hip, take stock and breathe into it. But boy oh boy was I rewarded. Going down was always my worse part, but I did it and so did my dodgy ole hip that’s going to be replaced. It’s like its final adventure with me. I get sad thinking that soon it won’t be with me, but I know it’s daft really. Anyone else feel a bit sad??

So I’ve made it to 1yr and it’s been a huge learning curve, my fitness has improved greatly, the muscles around the hip are stronger, I trust myself more which was a huge mental issue for many years. And all because I took physio seriously and did it religiously. I also stopped trying to race ahead and do more than my hip wanted to do, I kept to the basics and finally got results. Granted it never stopped my pain or limitations of the hip, but I’m sure that once it’s replaced, it will greatly improve my recovery period.

And better yet, I didn’t put on the usual 5lbs + that I usually do on holiday!! We ate more like at home, less carbs, more protein and salads and I came home 1lb heavier, which has already gone 3 days after getting home.

Obviously I got off the plane and I couldn’t speak, lost my voice. Maybe air con had something to do with it. The day after being home I had to see the doctor, as I felt super poorly. And it’s laryngitis so on antibiotics and feeling very sorry for myself right now. But what a week we had!!!!

Familiar aches are back… 50 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Charting my journey as its nearly a whole year since my Hip Arthroscopy Surgery, at the time I knew I was potentially only saving myself an extra year or so from Hip replacement. However it ended up a lot sooner than I imagined, meaning I sought a steroid injection to stabilise the joint back in June, and now already I’m in the process of being on the waiting list to replace it.

It’s been a good year however, I’ve improved all the muscles, and strength which was important to me, and I firmly believe it will give me a better foundation to build on, following the replacement.

It’s now 10 weeks since the Hip steroid and that pains been back a far while, and no surprise if I’m honest. It lasted at best 4 weeks. A bloody glorious 4 weeks too.

My CMC joint steroid was 9 weeks ago and it worked immediately, and completely too. And just today at 9 weeks, I’m starting to feel the bone crushing sensation on the joint. So hard to explain it really, just feels like a constant vice on the joint. Well that’s back, I’m thinking a turn in weather temperature brought that back into my life.

This poor hand never catches a break, as recently I fell over and created a TFCC tear in the same hand. So lots of bracing, ibuprofen and rest for now. Thankfully that pain which was intense, has subsided into an ache, and overall weakness.

I confess in the time since I’ve fell which was 2 weeks ago tomorrow, I haven’t done any #couch25k #couchto5k as I was too sore and swollen from falling. Then we did Blackpool a week later, and hip has been 💯 bitch since. So sharp, so stabby, even while sitting down, or lying down, that the thought of standing on it has not appealed in the slightest.

Next week it’s 3d CT Scan time, it feels like things are actually happening, and there’s an end to this pain….

Day 7 + 8 post #intra-articular #steroid injection in Hip.

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

It’s been a week, and Wow that time has flown by!!

Today it’s a MiCats appointment for my hand, and I honestly expected nothing, except maybe a referral to a rheumatologist. Which did happen, hopefully appointment in 6-9 weeks time, but also I was offered the #steroid injection into the CMC joint today. I said yes, though nervous. Nicer to get it out of the way.

The doctor was lovely, she confirmed again there is no Rheumatoid Factor but high levels of inflammation. And the DIP joints ( finger top knuckles) as well as basal thumb joint all show wear and tear indications it’s Arthritis, or my Ehlers Danlos Syndrome. Something is happening, so it’s a process of elimination now.

Injection did smart a bit, once again I had Marcaine, Lidocaine and Kenalog injection. I’m happy as so far it’s just been hair loss as a side effect.

This is in the evening, so looks ok. Super stiff and achy though. Hurts to use, so having 24hours off. Been instructed to brace it as well.

Hand swelled up too, so I’ve removed my rings just in case.

Hip wise I confess it’s been nagging, bit grumbly and not quite right. But it’s nearly that time of the month, which usually sends ALL my joints haywire and extra painful too. So it could be that. That groin pain has gone again though so that’s all good.

Day 8 it’s mad dash packing day, why do I leave it until the last minute?? Only popping to barmouth in a cottage with family, but should be a giggle. 2 nights 3 days away, hope this weather lasts!! Packing one handed is pretty difficult I might add.

Woke up with a super stiff right shoulder and neck, not entirely sure why though? Going to need hot water bottles and ibuprofen today. Hand feels pretty good, just braced to limit its range for now.

Hopefully all will be ace while we are away, and I will be pain free too. Have a lovely weekend my lovelies xx

I’m annoyed….

Archive, Health, Hips, Hypermobility

With myself. I was meant to see MiCats

Musculoskeletal Integrated Clinical Assessment and Treatment Service (MICATS)

on the 30th May to discuss my issues with my hand, and how I struggle at times to hold things, to pick up cups etc…

But I rescheduled for the Stafford County Show, knowing I had the GP the following day, and I could get the x-ray results.

Well…… That didn’t happen, somehow my appointment was 8.40am and I thought it was 1.40pm or 1.45pm so I rang to ask which one, and they dropped the info that I’d actually already missed it!! And the earliest I can get in, is 20th June!!

This is ridiculous, I feel like I’m never going to get my hand sorted out. Yes it’s totally my fault, so I’m annoyed with myself. Ggggrrrrr

Feeling Lost and Frustrated 34 weeks Hip Arthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

We’ve had some amazing days out, some glorious weather and family adventures, and I’m truly grateful. I really am.

But one thing always brings me down, and that is PAIN!! It’s limiting, it’s depressing, and it’s always always there!!

If it’s not my Hand it’s my Hip, or Lower back. The pain that blurs the edges of all the good that you do, the pain that awakens you from sleep, the pain you can’t escape. But what has kept me going is knowing that my steroid injection should be soon.

But I’ve learnt that although I was penciled in for end of May, it’s now looking more like mid to end of June. Which has admittedly took the wind out of my sails. I’m so frustrated by the waiting, and wondering, it’s agony.

It’s something I can’t change, and though I feel a little lost as to what to do. My husband is right I should just forget it, keep on, keep going, and don’t get stuck or hung up on this date. It will happen when it does.

So for now, it’s continue as often as I can with physio at home to help ease pains and stability, while understanding that I’m not a failure if there’s days I can’t do things (hardest thing to realise) rest days are important too.

29 weeks post op #hiparthroscopy physiotherapy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Weeks are flying by and though I’m stuck in a limbo situation via the hip being unstable and super painful. The decision to do the exercises set aside for post op hip replacement patients has been working.

As they are designed to strengthen everything around the new implant and not cause a dislocation. I’ve noticed a small increase in stamina and strength, so I’m going to continue, and the hip hasn’t been unstable this week at all. So that’s progress.

This following week I’m going to increase the reps from 10reps to 15reps and see how that goes. I do find I exercise, do physio one day, but I need at least one day to rest.

Scar update, you can barely see them. Obviously they pale in comparison to my 10inch ones, but just an update for those only having Arthroscopic scars.

Now I’m itching to get out more once weather improves and work on uneven footing and inclines, as hip doesn’t like those situations so much.

No news as yet for the steroid injection for basal thumb or hip, hoping to hear more in the next 2 weeks time. I’m getting pretty eager to have them, even though they scare the pants off me at the same time.

27 weeks post #hiparthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

Moving on from week to week and not much has happened this week, except I’m poorly again!! Just a chesty cough and woolly headedness, so I’ll live.

But I did visit the doctor over my hand, as it’s getting too hard to hold the simplest of things lately. The basal joint of the thumb feels like electric shocks, when I try to hold cups, plates or my phone. It’s been like it on and off for a year or so?? Wonder if Arthritis or just Ehlers Danlos Syndrome. Anyways had bloods taken to check, and I’m being referred to MiCats for physiotherapy and steroid injection for it. So that’s 2 steroids in 2 different joints this year!! I need this hand for my walking stick. For now I brace it on bad days, but when it settles I take it off, so it’s not solely dependant on it.

So for physio it’s been PANTS for a week, barely done any, as I’ve had family visits, doctor’s visits, then blood test visits, and honestly they’ve just took it out of me. Just being still hurts so I’ve had no desire to move the hip. Maybe it’s increased on pain because the weather is so damp? Or because it’s that time of cycle when it all flares up (when my whole body feels broken and shattered) or simply being ill makes me feel things more?

Just waiting on blood results next and of course appointments to come through from steroid in hip, physio for hand, and steroid for hand. Can’t wait to get them all done and dusted, though I’m scared!!