#Blogmas 10 Weeks Post #SteroidInjection

Archive, Arthritis, Blogmas 2019, Health, Hips, Hypermobility

It’s finally #Blogmas and yes I’m a day late, but Happy December, it’s such a busy month, but should be good.

This month I am attempting to take control of pain, as some days it’s consuming very thought I have, and it’s ruining my positive mentality slowly slowly.

December brings two birthdays, 1 for my husband, and 1 for my third daughter, and also a birth too!! Due in 18days.

These are the reasons for chasing the help I can, so I can be present and happy for these occasions.

Today is the day I see the GP for some guidance on reliving this ever present burning thumb and mcp pain in my index and middle fingers.

Not sure what I expect, but I’m feeling desperate at times, with lots of tears at night from pain.

Left hand which had the steroid injection 10 weeks ago.

See above the MCP joints are swelling up.

Right hand swells overall, not as localised over MCP and DIP joints.

It’s like lightening at times, dull aches other times, and it’s getting me down.

I’ve been wearing gloves, and splints religiously, and taking medication that I have too.

I bit the bullet and booked my right cmc steroid joint injection in for the 16th Dec. So that’s 2 weeks from today. I’m very very scared and nervous. Especially after last time. But I’m hoping I can hold my baby granddaughter due near Christmas, and have a pain ish free Christmas day.

But at the same time I know it needs doing, as holding a pen, or my cup is becoming an issue. And forget shoelaces, I can’t do it!!

And I need my hands to build the Christmas tree up!!

9 weeks post #steroidinjection

Archive, Arthritis, Health, Hips, Hypermobility

It’s been a journey for sure, not like the first injection I had at all. It took nearly a month to work and it’s only worked marginally as well. But here I am contemplating the one thumb, as it badly needs doing.

As I’m finding that yes the cmc joint of thumb is ok. But higher knuckle of thumb is agony. Along with mcp joints of first two fingers as well. These are swelling mainly at night. And when I use my walking stick, the hand hurts with me gripping on tight. Can’t not grip tightly once my hip gets tired, it’s a vicious cycle.

Seeking the GP advice next week (it takes roughly 2-3 weeks to get in to see them) see if there’s anything else besides the gloves, splints and Injections. Though I’m not hopeful.

Winter sucks!!

7 Weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

For the last 2.5 weeks I finally have had some relief from that most painful steroid injection I had back on 7th October.

Think it was more painful this time as the space between the joint is so small now due to the arthritis.

Took a long long time to kick in, almost 4 weeks, and it’s either wearing off already, or the huge dip in weather temperature is to blame. As it’s nagging, not hugely, but I am aware of it most of the day.

I was hoping for the 9months relief I had gotten the first time. Alas not meant to be, though it’s nagging, at least it’s not that white HOT bone pain that I had previously.

The right thumb is flaring up, but I’m still too scared to go and get it done. Though I’m starting to get tempted. I’m trying to leave it as long as possible though.

Back to almost bathing in ibuprofen gel, and wearing splints. Curse you #Arthritis #EhlersDanlosSyndrome

4 weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

After a weekend away camping, and using the hand as much as I possibly needed, dare I say it…. It’s actually feeling like it’s improving!!

Can’t quite believe I’m saying it after how awful and how painful it was, and has been in this lead up to 4 weeks. It’s ached, throbbed and been like lighting at times, but now it finally seems to of settled down.

The grinding noise is still loud and audible to others, so I have to be careful not to grind it.

Tested it over the weekend with a lot of walking stick holding, and using it a lot while camping. Even being in the cold weather doesn’t seem to of affected too much. Ached occasionally, but seemed to pass reasonably quickly and it wasn’t a harsh ache either.

Wow I’m almost thinking it was worth the agony!! Can I really be saying that? I do wonder how long will this last?

Now the other side is beginning to ache, and pinch like the other did before the injection. I know I have to get this one done next month or December latest.

It will be nice to have it feeling good by the time my Granddaughter is bon in December.

3 Weeks Post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

I’ve had a discussion with my MiCats Doctor, and we have to officially give the steroid at least 4 weeks to work, before I can say it hasn’t worked.

But in my mind I was already convinced, at 2 weeks it hadn’t worked, as I’d been using ibuprofen gel, and I was back on the splints too.

Now I’m at 3 Weeks the nagging pain seems to have settled. Though holding my walking stick, or picking up cups still ache the hand, but a least it’s not that fiery hot pain.

If it doesn’t work:

I have only one pain relieving option left open to me and that’s surgery. Though with a hip replacement looming, the Doctor feels that has to come first. So delaying as much as possible is my only option.

Also what if surgery makes me worse? I lose strength? It’s not like my hip surgeries have been immensely successful over the last decade. It’s only now I’m seeing some success, with more to come. So really it’s not a viable option.

But on the flip side it’s only going to get worse, harder to use, and lose strength anyway, and the need to wear splints. It’s a no win situation.

Family wise I don’t think they can cope with more surgery either, and is it really fair to put them through more, when I know the other hip replacement is around the corner anyway??

And you know what’s worse? I know I have to do the other hand, it’s already getting worse, since I got this hand done. Can I really face that awful pain, and almost passing out again? Not sure I can yet!

Week 2 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

It’s been two weeks, and after the vast improvement from the first 4 days, it’s now on an even keel. Though I’d say it’s only slightly better than before the injection.

I’ve been doing some hand exercises to help mobilise it, an I’ve been doing everyday chores too. Washing up is still a painful affair, and opening jars, holding cups are painful at times, but not all the time.

I definitely had hoped this would of been improved. But I can type with my thumb now, and hold my phone. So some plus points some negative points. I can even put my phone charger in the phone hole, this was immensely painful before, so I’m glad it is improved.

But it still cracks, grinds and it’s audible, ( ie others can hear it too)

Complete with dull aches and throbbing, so I’m not sure this has worked entirely. The grinding is what concerns me the most though.

Made an #ehlersdanlossyndrome bracelet though, and it felt good to do it, couldn’t make loads due to aching, but I’m glad I did a few.

Buy Here

Week 1 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

Day 5

I did my first use of the walking stick and walk around some shops, but it didn’t last long as the hand ached, and I was extremely tired too. But I did manage to use a knife this time, so it’s improving, but feels like before I had the injection.

I think my tiredness is from the injection, as I do remember this from hip ones too. But I managed a day without crying at least!!

Day 6

I’m attempting to wash up, but it still gets that electric shock pain when you try and hold cups or plates to put them on the drainer. But pain has eased in resting phase so that is a bonus.

Woke up with a twitching eye though, done it for hours and hours. Side effect?

Managed to wash my hair, but the back of the hand was throbbing a lot with the movement.

Week One
It’s been a whole week, and although it’s obviously improved from the actual injection pain. It’s not improved from the burning bone on bone pain, so I’m wondering if it’s even worked?? I guess I can’t tell them until it’s been 6 weeks, as that is what they said.

The MCP joints of the first two fingers are still swelling and sore as well.

So I’m left to debating the future of what to do next.

I will keep making notes so I can at least tell them how I am feeling, and if any side effects?

At least I’ve managed to get out of the house twice since the injection, and I’ve used my walking stick reasonably ok, though splint very very much needed. And thank goodness for hot water bottles, and ibuprofen gel to also help get me through the week, with occasional Tramadol or Cocodamol when it’s been particularly bad.

37 weeks post #HipReplacement + Day 1- 5 of steroid injection

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement
Apologies it’s a large post

I’m 37 weeks post #hipreplacement and yes I still use my walking stick, though not while hand is heavily splinted and sore from injection. yes I’m still on painkillers, but not for this hip, it really is a lot better. An odd twinge here and there, and occasionally groin pain as discussed previously. But overall I’m really happy. Anyone else still get these twinges this far post op?

post credit

Left hip well that’s a whole other story lately, at times it feels unstable, and like it’s pushing out the front?? God knows why, this is meant to be my good hip!! That’s a depressing realisation. Hoping it’s from holiday and me wearing it out. It’s either a flexor issue or dreaded bursitis.

Knees should I mention them? They often feel twisted and want to give way. But it’s not a full year yet, so it could be residual from surgery, like previous times.

What I do need to do is get back into a physio routine, and work on my weight loss again. It’s been put by the sideline while family duties are more important.

Steroid injection in CMC joint.

See original post of the Day I had it done here

On the Day, Day One
On the day it was STIFF I couldn’t move it much at all, and it nagged a dull ache all day. Had to take ibuprofen and cocodamol tablets to help ease it. Could not function normally at all, husband had to do everything for me, even dress. It’s so sensitive and achy, I don’t remember it ever being this bad before.

Wearing my splint to help protect from use and from knocking it accidentally. It’s very very painful still.

And come the night time, I sobbed because I caught the thumb on my trousers!! What ridiculous pain, hope it settles down.

Day Two

Sleep was hard, fear of knocking it while I relaxed was very very real, and in the end I fashioned a way of having it away from me, but sleep quality wasn’t great. I was soon up with pain awakening me at 6am.

So I got up to remove splint to give it a rest, and put on ibuprofen gel, and take cocodamol. Slight movement in thumb, but still painful and extremely stiff. So another rest day for it.

Though physio is later on today, hoping to splint it and keep it out of the way as much as possible.

Survived the physio, but hand aching as I left (though I never used it)

Come tea time I started to get facial flushing on the one cheek. Expected this side effect as I’ve had it before.

Day Three

Starting to be able to move the thumb at long last. Don’t ever remember the other ones taking this long. It’s not full function, but any movement is better than none.

Can comfortably pinch movement to middle finger, I can do third finger but that makes it sore. So best not too push it too much. No strength in the pinch action though, so can’t pick things up, or do a tap etc. Now typically other thumb is painful from doing all the work of both hands.

Ended up crying once again, obviously overdid it in usage and paid the price. Also think the steroid makes me more emotional too? Sharp pains at the back of the hand. Will it settle down? I knew it would ache more, but this a very different experience to the 2 times before.

Day Four

I tried yesterday without a splint much, but it hurt more than I thought was worth it, so ended up splinting it again. Having to gel both thumbs now, as they are both stiff and painful, though now right thumb is that white hot pain from arthritis. And left is the stiffness pain from injection.

Let’s see if I can make it without crying? Why did I do this again? Oh yeah because it was so painful, so I swapped one pain for another? But I can finally reach the pinkie, stiff and sore but it reaches. Shoelaces are so hard to do still, but it’s improving.

Day Five

Feeling a lot more like myself, now I’m seeing a light on the horizon. Sleeping better, though still a little extra emotional.

Only taking ibuprofen tablets and gel now as well, so huge improvement on that. Using splint a bit less now so that’s good. Having a day out using my walking stick, so using the splint for that.

CMC joint steroid injection

Archive, Arthritis

So today is the day, I get my steroid injection in my left (worse hand) with a view to getting the right hand done within 3 months. Opted for this instead of both together, as right hand is slightly better, so I’m waiting for it to get worse.

So what are steroid injections and where do you get them?

Steroid injections can be used to treat some problems in the arm and hand. These can include trigger fingers, tendonitis, carpal tunnel syndrome, arthritis, tennis elbow and rotator cuff tendonitis. These injections usually contain cortisone and a numbing medicine.

Mine is the CMC joint as seen below.

Cortisone is the steroid normally produced by your body, and it is a powerful anti-inflammatory. Corticosteroids tend to shrink, thin and slow things down. These steroids are different from anabolic steroids, which have been abused by athletes to build muscle and enhance performance.

I get mine in my CMC joint, which is the base of the thumb. And usually done under ultrasound for precision at MiCats. However some GP surgeries also carry them out without the ultrasound.

What happens afterwards?

The injection should take effect within a few days, and the benefits can last for many weeks or months; however, results are not the same for everyone or every problem. For some conditions, one injection solves the problem. For others, several injections may be required. There is no set rule as to how many injections a person can get. Your doctor might limit the number of injections because repeated cortisone can damage tendons and/or cartilage.

Side effects?

The most common side effect of steroid injections is known as a “flare.” This pain is felt for one or two days after the injection. It can be treated with ice and by resting the area injected.

Other side effects might include:

  • A rise in blood sugar level for diabetic patients for about five days
  • Thinning of the skin
  • “Lightening” of the skin at injection site (more common in patients with dark skin)
  • Weakening of tendons, making them more likely to rupture
  • Allergic reactions (rare)

One of the rare but more serious problems is an infection, especially if the injection was given into a joint. If you notice redness, extreme pain or heat at the injection site, or if you have a fever greater than 101° after an injection, you should call your doctor.

Hoping to get similar results as last year, I know it will increase pain for up to a week, so I’m well prepared. So fingers crossed it all goes well.

OMG that was actually horrendous, way way way more painful to previous ones, the sharpness of the needle I expected. But the joint space was really tight, and small. Having the steroid (kenalog) put in, I went hot, faint and sick all at once. I even nearly cried. So unlike me.

And the pressure was worse than just the crushing. It felt like it was going to explode!! Wow that was awful. I had to lie down for a minute or two. Thankfully it passes pretty quickly though.

Home resting with splint on, and little pillow to help rest it.

Day 71 Hydro and OT appointments

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Yesterday was Wednesday and I had my appointments for both OT (Occupational therapist) then closely followed by Hydrotherapy. It was brilliant to have on the same day, saves traveling and parking two separate days.

My first appointment was OT and I showed her my photo of my swollen knuckles, and explained the pain.

And she gave me some compression gloves to start wearing, whenever I feel like I need them. To gently compress and warm the hand joints.

Totally not attractive, I mean look at them!! But needs must. And I also need to make an appointment with the gp, to discuss steroids or effective pain relief.

So that was done, time for Hydro. And following the weeks walking adventures, I was already tired. But eager to workout as hard as I could too.

  • Walk up down pool forwards x 3
  • Walk up down pool sideways x 3
  • Walk up down pool backwards x 3
  • Hip flexion 20 reps x 2
  • Hip abduction 20 reps x 2
  • Hip extension 20 reps x 2
  • Step ups forward 20 reps x 2
  • Step up sideways 20 reps x 2
  • Push float down core exercise 20 reps x 2
  • Mini squats 20 reps x 2

That was honestly me done, I hobbled out exhausted but accomplished. Once home and dinner done, I promptly fell asleep again. It’s definitely wearing me out proper!!