44 Weeks Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip Arthroscopy, Hip replacement, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

This week I hit a very important anniversary for the hips, it marks 10years, yep that’s right 10YEARS since my first big surgery on the hips. Note I say BIG surgery, as prior to this I had, had a bursa removal with IT Band lengthening.

I had a triple pelvic osteotomy (pelvis broken in 3 places and realigned) and femoral osteotomy (which lengthened my leg 2 inches) as you can see below I was Wonky!!

So much has happened since then, it makes me realise how far I’ve come, I’ve had 3 lots of metal work removed since, I’ve had a arthoscope on opposite hip since (where they shaved the femoral head, and removed the labrum) I’ve had 4 steroid injections and 2 manipulations under anaesthetic. Another triple pelvic osteotomy, and a femoral derotation (twist the femur to opposite direction of tib/fib bone) osteotomy!! Then this hip replacement, all done on the other hip!

I got a dvt, from ankle to thigh, nearly died. But I’ve come through it, and though it took 3years completely to recover. I’ve learnt to walk again countless times, I’ve used a walker, crutches and walking sticks for 10years, it’s art of my life now.

And the point of all this, to to acknowledge it was hard, can be still hard. But I’ve come a long way and I’ve come out the other side. I would do it all again to rid myself of that awful life consuming pain.

I’m not pain free or walking aid free, but I’m so much better than I ever was. I was housebound at one point with no hope of it changing. Until these surgeries and constant (Done for the last 10years) physio. Never underestimate how good physio can be for yourself.

Getting out and about is my greatest achievement since, it’s been a long journey. But walking is my simplest pleasure and I never take it for granted.

Still have a stick but I’m incredibly grateful to it now, instead of embarrassed by it.

7 Weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

For the last 2.5 weeks I finally have had some relief from that most painful steroid injection I had back on 7th October.

Think it was more painful this time as the space between the joint is so small now due to the arthritis.

Took a long long time to kick in, almost 4 weeks, and it’s either wearing off already, or the huge dip in weather temperature is to blame. As it’s nagging, not hugely, but I am aware of it most of the day.

I was hoping for the 9months relief I had gotten the first time. Alas not meant to be, though it’s nagging, at least it’s not that white HOT bone pain that I had previously.

The right thumb is flaring up, but I’m still too scared to go and get it done. Though I’m starting to get tempted. I’m trying to leave it as long as possible though.

Back to almost bathing in ibuprofen gel, and wearing splints. Curse you #Arthritis #EhlersDanlosSyndrome

Week 43 post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

Now time is slowing down, so is progress, the whole squelchy hip feeling has put me backwards in terms of progression and recovery.

I’ve been able to do most things I want to do, except the leaning forwards, and shave my leg (This is too hard at the moment)

So it’s been a resting week, as I felt the hip really needed it after the last 2 weekends were full and chaotic, not giving the hip chance to properly recover.

My left one is aching more, could be because I’m relying on it more, or the colder weather I’m not sure yet.

It was also my physio appointment this week too, so after discussing the whole squelchy feeling and what triggers it, it was time to get down to business and work this leg out.

Or not as the case turned out to be!!

After describing the whole issue I’d been having, and following the therapists full leg examination, where we position the leg in various ways, and on touching the IT band area, it was super super sore!! And extremely tight. We conclude it’s an IT Band injury.

ITB Anatomy

The iliotibial band is a thick band of fibrous tissue that starts at the hip, goes down the outer thigh, crosses the side of the knee joint and connects to the shinbone. The band stabilizes the hip and knee joint. High-impact activities, especially running, place stress on it. Patients commonly experience ITB tightness after a hip replacement, which restricts joint mobility.

So the plan is to do these 5 times a day, with a hold of 5 seconds.


This stretch helps release tension in the glutes, which can lead to IT band issues. On an exercise mat, lie face up with your knees bent and feet flat. Raise left foot to the ceiling and hold the grasp just below the knee to hold it up. Then, pull the foot toward your chest, turning the shin to the side so it’s almost perpendicular to your body. Hold the stretch, then repeat on opposite leg. For a deeper stretch, keep non-stretching leg extended on the floor as you stretch.

Back in a weeks time to assess the outcome of the stretches and see if there’s any improvement.

Week 41 +42 Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, Triple Pelvic Ost, Femoral Ost, PAO

This week has been full on, coming back from camping, and unpacking and washing everything.

Then re-packing again for a romantic getaway to Boscastle, it’s for the #DarkGathering which happens the Saturday before Samhain (Halloween) so a cottage is booked and I can’t wait.

But in my haste I’ve bent forwards again to pick a mirror off the floor, and the hip did/does a weird squelchy feeling, it is a fast reminder not to do it, it is the oddest feeling and I feel sick when it happens.

I’ve googled it and I can’t find anything about this sensation. I will keep an eye on it, rest while I can, and vow never to bend like that again!!

4 weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

After a weekend away camping, and using the hand as much as I possibly needed, dare I say it…. It’s actually feeling like it’s improving!!

Can’t quite believe I’m saying it after how awful and how painful it was, and has been in this lead up to 4 weeks. It’s ached, throbbed and been like lighting at times, but now it finally seems to of settled down.

The grinding noise is still loud and audible to others, so I have to be careful not to grind it.

Tested it over the weekend with a lot of walking stick holding, and using it a lot while camping. Even being in the cold weather doesn’t seem to of affected too much. Ached occasionally, but seemed to pass reasonably quickly and it wasn’t a harsh ache either.

Wow I’m almost thinking it was worth the agony!! Can I really be saying that? I do wonder how long will this last?

Now the other side is beginning to ache, and pinch like the other did before the injection. I know I have to get this one done next month or December latest.

It will be nice to have it feeling good by the time my Granddaughter is bon in December.

3 Weeks Post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

I’ve had a discussion with my MiCats Doctor, and we have to officially give the steroid at least 4 weeks to work, before I can say it hasn’t worked.

But in my mind I was already convinced, at 2 weeks it hadn’t worked, as I’d been using ibuprofen gel, and I was back on the splints too.

Now I’m at 3 Weeks the nagging pain seems to have settled. Though holding my walking stick, or picking up cups still ache the hand, but a least it’s not that fiery hot pain.

If it doesn’t work:

I have only one pain relieving option left open to me and that’s surgery. Though with a hip replacement looming, the Doctor feels that has to come first. So delaying as much as possible is my only option.

Also what if surgery makes me worse? I lose strength? It’s not like my hip surgeries have been immensely successful over the last decade. It’s only now I’m seeing some success, with more to come. So really it’s not a viable option.

But on the flip side it’s only going to get worse, harder to use, and lose strength anyway, and the need to wear splints. It’s a no win situation.

Family wise I don’t think they can cope with more surgery either, and is it really fair to put them through more, when I know the other hip replacement is around the corner anyway??

And you know what’s worse? I know I have to do the other hand, it’s already getting worse, since I got this hand done. Can I really face that awful pain, and almost passing out again? Not sure I can yet!

Week 2 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

It’s been two weeks, and after the vast improvement from the first 4 days, it’s now on an even keel. Though I’d say it’s only slightly better than before the injection.

I’ve been doing some hand exercises to help mobilise it, an I’ve been doing everyday chores too. Washing up is still a painful affair, and opening jars, holding cups are painful at times, but not all the time.

I definitely had hoped this would of been improved. But I can type with my thumb now, and hold my phone. So some plus points some negative points. I can even put my phone charger in the phone hole, this was immensely painful before, so I’m glad it is improved.

But it still cracks, grinds and it’s audible, ( ie others can hear it too)

Complete with dull aches and throbbing, so I’m not sure this has worked entirely. The grinding is what concerns me the most though.

Made an #ehlersdanlossyndrome bracelet though, and it felt good to do it, couldn’t make loads due to aching, but I’m glad I did a few.

Buy Here

Week 38 Post #HipReplacement

Archive, Arthritis, Family Adventures, Health, Hips, Hypermobility, Hip replacement

So much has happened in the space of a week, my youngest has been at uni for a week (well more like 10days as this goes live) and let me tell you, that’s been an adjustment for sure, coupled with many tears. Happy ones as I’m proud, but I do so miss her, and worry too. Thank heavens for video calling on whatsapp.

My Left hand injection was over a week ago, still painful memories. Fun Fact: I can hear it grinding when I move it too Ouchie!!

And I’ve helped (bossed and kept company, so not really helping) my second eldest daughter move from Llandudno to Manchester.

All the while, we’ve had horrendous rain, which has hugely increased pains and aches all over. Most notably end of stem aches (mid thigh right leg) and groin right leg, left hand and left ankle. I kinda feel like emigrating to a warm country!! Less pain then. Is this all just Arthritis or Ehlers Danlos Syndrome, either way it’s pretty miserable body wise at times.

Even with the aches and pains, I’m LOVING my hip replacement!! It’s holding up so well, I’m so glad I did it. I struggle at times, but it’s the other hip failing me now.

Week 1 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

Day 5

I did my first use of the walking stick and walk around some shops, but it didn’t last long as the hand ached, and I was extremely tired too. But I did manage to use a knife this time, so it’s improving, but feels like before I had the injection.

I think my tiredness is from the injection, as I do remember this from hip ones too. But I managed a day without crying at least!!

Day 6

I’m attempting to wash up, but it still gets that electric shock pain when you try and hold cups or plates to put them on the drainer. But pain has eased in resting phase so that is a bonus.

Woke up with a twitching eye though, done it for hours and hours. Side effect?

Managed to wash my hair, but the back of the hand was throbbing a lot with the movement.

Week One
It’s been a whole week, and although it’s obviously improved from the actual injection pain. It’s not improved from the burning bone on bone pain, so I’m wondering if it’s even worked?? I guess I can’t tell them until it’s been 6 weeks, as that is what they said.

The MCP joints of the first two fingers are still swelling and sore as well.

So I’m left to debating the future of what to do next.

I will keep making notes so I can at least tell them how I am feeling, and if any side effects?

At least I’ve managed to get out of the house twice since the injection, and I’ve used my walking stick reasonably ok, though splint very very much needed. And thank goodness for hot water bottles, and ibuprofen gel to also help get me through the week, with occasional Tramadol or Cocodamol when it’s been particularly bad.

37 weeks post #HipReplacement + Day 1- 5 of steroid injection

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement
Apologies it’s a large post

I’m 37 weeks post #hipreplacement and yes I still use my walking stick, though not while hand is heavily splinted and sore from injection. yes I’m still on painkillers, but not for this hip, it really is a lot better. An odd twinge here and there, and occasionally groin pain as discussed previously. But overall I’m really happy. Anyone else still get these twinges this far post op?

post credit

Left hip well that’s a whole other story lately, at times it feels unstable, and like it’s pushing out the front?? God knows why, this is meant to be my good hip!! That’s a depressing realisation. Hoping it’s from holiday and me wearing it out. It’s either a flexor issue or dreaded bursitis.

Knees should I mention them? They often feel twisted and want to give way. But it’s not a full year yet, so it could be residual from surgery, like previous times.

What I do need to do is get back into a physio routine, and work on my weight loss again. It’s been put by the sideline while family duties are more important.

Steroid injection in CMC joint.

See original post of the Day I had it done here

On the Day, Day One
On the day it was STIFF I couldn’t move it much at all, and it nagged a dull ache all day. Had to take ibuprofen and cocodamol tablets to help ease it. Could not function normally at all, husband had to do everything for me, even dress. It’s so sensitive and achy, I don’t remember it ever being this bad before.

Wearing my splint to help protect from use and from knocking it accidentally. It’s very very painful still.

And come the night time, I sobbed because I caught the thumb on my trousers!! What ridiculous pain, hope it settles down.

Day Two

Sleep was hard, fear of knocking it while I relaxed was very very real, and in the end I fashioned a way of having it away from me, but sleep quality wasn’t great. I was soon up with pain awakening me at 6am.

So I got up to remove splint to give it a rest, and put on ibuprofen gel, and take cocodamol. Slight movement in thumb, but still painful and extremely stiff. So another rest day for it.

Though physio is later on today, hoping to splint it and keep it out of the way as much as possible.

Survived the physio, but hand aching as I left (though I never used it)

Come tea time I started to get facial flushing on the one cheek. Expected this side effect as I’ve had it before.

Day Three

Starting to be able to move the thumb at long last. Don’t ever remember the other ones taking this long. It’s not full function, but any movement is better than none.

Can comfortably pinch movement to middle finger, I can do third finger but that makes it sore. So best not too push it too much. No strength in the pinch action though, so can’t pick things up, or do a tap etc. Now typically other thumb is painful from doing all the work of both hands.

Ended up crying once again, obviously overdid it in usage and paid the price. Also think the steroid makes me more emotional too? Sharp pains at the back of the hand. Will it settle down? I knew it would ache more, but this a very different experience to the 2 times before.

Day Four

I tried yesterday without a splint much, but it hurt more than I thought was worth it, so ended up splinting it again. Having to gel both thumbs now, as they are both stiff and painful, though now right thumb is that white hot pain from arthritis. And left is the stiffness pain from injection.

Let’s see if I can make it without crying? Why did I do this again? Oh yeah because it was so painful, so I swapped one pain for another? But I can finally reach the pinkie, stiff and sore but it reaches. Shoelaces are so hard to do still, but it’s improving.

Day Five

Feeling a lot more like myself, now I’m seeing a light on the horizon. Sleeping better, though still a little extra emotional.

Only taking ibuprofen tablets and gel now as well, so huge improvement on that. Using splint a bit less now so that’s good. Having a day out using my walking stick, so using the splint for that.