How are you doing Second Week #SelfIsolation

Archive, Arthritis, Covid-19 Lockdown, Covid-19 Week Two, Health, Hips, Hypermobility, Hip replacement

As we start to form new realities and routines, how are you doing?

Are you being super productive, active and learning new skills? I’ve seen a new love of baking on Twitter and people taking up Joe Wicks exercising.

Whereas I also see lots feeling lost dazed and confused, and to be honest that’s been me a little bit. But I finally realised it was me watching the news religiously and absorbing as much information as possible, which now with hindsight was my worst decision. It started to feel all too oppressive and miserable. Like your taking on all the world’s negative energy.

So I’ve had to take a step back in time, back to 2009 when I had my Triple pelvic osteotomy and femoral osteotomy done. This rendered me completely housebound for a very very long time, and at no time was I miserable from it. So stepping away from Statistics that are hammered home to you each night, and turning off the news.

I realised I needed to get back into being me, and my usual routine, which is working out for physio, as my hip replacement recovery is still on going. And using down time to read, carry on learning my #Dutch and #Swedish and maybe when hands allow colour in too.

I use the #LosingWeightApp for Men. It’s great as you can customise it for no impact, and no jumping.

For example, here are the exercises, ranging from 12-14 exercises and 8-10mins of time.

For the languages I love Duolingo and it’s been a fun journey. I had already started way before all this happened in the world. As a fun way to occupy and work the brain for 10- 15 mins a day.

Easy to use and actually a great time filler, you can do as much or as little as you like, and whatever language you desire too.

So that’s week 2 we’ve all completed. Give yourself a minute to embrace that victory. X

What a week of change!! First Week #SelfIsolation

Archive, Arthritis, Covid-19 Lockdown, Covid-19 Week One, Family Adventures, Health, Hips, Hypermobility, Hip replacement

Last week I was discussing self isolation and how as a disabled person it wouldn’t be any different from my main life.

How wrong was I? It is different, we can no longer see family members, in fear we catch something, or worse pass it on to loved ones. The threat and fear of medication storages are luming in the back of my mind.

And the staggering dismissal of the deaths as they have pre existing conditions have floored me. Do they not realise, it’s not just end of life people, but people that could live another 50+ years in normal circumstances.

But here we are it’s anything but Normal is it? Schools shut indefinitely, so we collected our youngest daughter on Thursday 19th March so she wouldn’t be stuck up there alone. Though I worry equally about my other three daughters and their families.

The world is different and how different it stays remain to be seen. I’m not ashamed to say I could cry, scream, feel helpless and almost driven mad with what ifs. But I know it won’t help.

All I can do, is reduce the amount I eat and treat it with mindfulness so I can go without more, which in turn means less trips out to supermarkets.

Try to occupy my mind (As that’s my worse enemy) and perhaps step away from social media as much as possible. Everything feels so trivial in comparison to this.

So far we can still walk in the countryside, so I’m doing this for pure mental health, and vitamin D. I can handle the pubs, restaurants and cases, and retail shops shut. But it’s the but wrenching feeling, that you may never hold loved ones again, parents, grandchildren, children. It’s totally Heart breaking.

We celebrated Ostara in the woods, it felt good to have brisk winds whip around our faces, it feels good to be alive. The blue skies and birdsong lifts the spirits, and it was good to snatch that freedom of outside. I have no problems of avoiding shops, pubs but being outdoors is what feeds my soul.

Self Isolation

Archive, Arthritis, Covid-19 Lockdown, Covid-19 Week One, Family Adventures, Health, Hips, Hypermobility, Hip replacement

As a person that is usually stuck indoors, my only appointments are being at the hospital physio once a fortnight (I’ve cancelled for a month) or going out for a brisk walk. Me being trapped inside is nothing new to me.

First thing first, stay in a routine. It’s important to get up and dressed, especially as depression and apathy will take hold if you don’t. It’s better to structure your day, as you feel more productive.

So what can we do

DIY,Garden

If you are able bodied, then maybe is a this time to catch up on all the diy you’ve been meaning to do. I would love to do this, but it isn’t possible sadly. I can’t even garden, not that I have green fingers either though.

Exercise

I personally wear myself out with daily physio,so not only am I working the leg out and trying to ease arthritis symptoms, it occupies my mind too. I find it fills a lot of my day up, as I need a long time after to recover from it too. Great mood booster though.

Craft, Hobbies

I love crafts, I have made jewellery, papercutting and I love colouring in books too, they ease the mind and fill up good chunks of time. This for me is limited now due to my hand arthritis. But I love them when it’s possible.

Reading

Who doesn’t have a book list as long as their arm, but always feel like they have no time to read. Well now you do, it is one of the most peaceful times to snatch for yourself. I’m going to re-read the Ink Heart trilogy and Beautiful Creatures.

Prime,Now,Netflix

It is a good time to catch up on tv series, binge watch all that you have saved. I have a love of European Netflix shows,a good scandi noir helps me through the long days. The Flash, Altered Carbon, Elite, Stockholm Requiem.

Organise Wardrobes

I actually badly need to do this myself. I literally live in work out wear and pjs. But I have clothes for every occasion and am a hoarder too. So it’s time to decide what to charity or bin, or give to family. Lots of ideas on Pinterest and YouTube.

Stay safe guys xx

61 Weeks Post #HipReplacement Physio outside

Archive, Family Adventures, Health, Hips, Hypermobility, Hip replacement

Racing into the weeks now, it feels after Christmas the months have absolutely flown!! I can’t quite believe it’s middle of March and nearly time for Easter Holidays.

As the horrendous storms and water have reduced, it’s been good to get outside and do some nature countryside walks. They actually seem to wear me out more than a gym controlled session.

Trying to walk straight, small steps and very very controlled so the limp isn’t there. It’s only a small amount of steps I can do like this, before waddle comes back. But I’m trying to build upon it.

It’s cold for sure, but wrapped up it’s ok, and you get to feel alive for a bit. Blow the depressive thoughts away and reset your mind.

I am very lucky to live in such a pretty place. The mud makes each step a little off camber, giving the ankles more work to hold you upright and steady, so it’s working the micro muscles we don’t usually think about. But it does fatigue me very quickly.

9 weeks #Etoricoxib #EhlersDanlosSyndrome #Arthritis

Archive, Arthritis, Health, Hips, Hypermobility

I’m confused as to whether this is working. In general it smarts at the end of the day, so gel and splints come out.

Overall it’s better than the ibuprofen 400mg x 3 per day. I really need to remember the 8x paracetamol though to really assess it. I’m a devil for remembering them for some reason.

This weekend I did do this to myself, I was a wearing my splint in the evening, I gently put my thumb and first finger together to do a pinching action. And OH MY GOD the pain!!!

Usually I sublux joints often the MCP one,with no pain really. This time I fully dislocated the CMC joint, and holey moley did I cry.

Resulted in my unable to use my hand all Friday night, and Saturday day time. When at tea time I heard and felt a pop! And suddenly the pain and pressure eased off. Thankfully.

As you can see it drastically changed from Friday night to Sunday morning. Now I just hope this isn’t going to be a frequent occurrence like other joints.

1yr Post #HipReplacement appointment

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Another milestone hit, it’s finally here my 1year Post Hip Replacement appointment. Although it’s technically 13months post op.

I went in fully prepared to say what I needed to say, I even wrote it down too, Nervous but intrigued. I dressed with no metal on my trousers so I would be as fast as lightening in the x-ray department. Which I scan safetly say with confidence I’m the fastest x-rayer!!

I requested my consultant, but alas it wasn’t meant to be, I ended with a Registrar instead.

This is last year’s x-ray. I can see a tiny spot now I’m home and studying x-ray on the bone.

Today’s (tuesday) xray and OMG it’s still there but moved.

No real explanation to why I still get groin pain, and stem pain. Except he reminded me it was never a normal hip replacement, it said it’s more like a revision one, because of the extensive work I’ve had done prior to this implant. So he said it would be 10 times longer to recover. So I’m prepared to work more and wait.

He watched me walk, we discussed quad weakness and my struggling to do stairs, the quads would explain that. And knee pain too. So more years until it evens itself out. He checked the ranges and was happy on the replaced hip, but noted the limitation on the left one.

We discussed that I have no pain in the left just very restrictive, so he suggests I leave the replacement in that side until I do have pain, so the success is greater. And it also gives this side more time to fix itself better too, without adding more stress and weight to it.

So although I was originally disappointed to hear the initial results of expected pain for a while yet, and using stick too (Will it ever go, will I ever ditch the limp), and not to replace hip for a long time yet, when I was totally expecting too in a year’s time. I feel slightly better about it now.

He asked if I was happy with the leg length, and I casually said yes. But now I’m home and freaking out, am I happy with the length? Is there a difference?

So I’m not back for a year, well sooner if need to be seen. But if not another year and we can discuss if progress has actually been made or not. And see how the left is holding up. Pleased I saw no damage to the stem or around the acetabular cup, as they were my greatest fears.

And with that I hobbled myself out, with the worse gait you’ve ever seen!! Damn it

* once home I noticed a white dot on the x-ray next to the hip replacement, so I looked at older x-ray and it was there too, but more on edge of the bone. So I think it’s a rogue staple left in!!*

58 Weeks Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

I’m now a mere few days away from seeing the surgeon. And my mind is making me an emotional mess.

I struggle to articulate what I want to say, I’m terrified of what things may mean when I voice the issues, what will an x-ray show? So it’s been a roller coaster of tears, and anxiety.

I’m over a year post hip replacement and I honestly wasn’t really expecting

  • Still using a walking stick
  • Stairs to be such a struggle
  • Deep groin pain
  • Thigh pain above the knee
  • Fatigue in simple tasks
  • Swelling from walking
  • Golf ball sensation

That’s the post hip replacement leg, the other leg is

  • Fatigue quickly
  • Stairs still
  • Stamina of physio exercises
  • Range of movement

Maybe it’s a simple case of needing more time, and more physio. And that maybe fixing the other side will help too.

Decisions decisions and more decisions

New dose? new plans? Or stay the same #Etoricoxib

Archive, Arthritis, Health, Hips, Hypermobility

It’s been 7 weeks on etoricoxib and although I feel it’s going well. I’m in pain most days, especially if I’m doing eggs. Like this below.

It is making me squeal, and it’s swelling up too. Mainly the left thumb, but my right isn’t feeling too clever at times either.

Each night I’m bathing in ibuprofen gel, and wearing at least my left splint all night. And though it’s better, its not a total relief. I’m wincing just typing this out.

So while I had a weeks worth of 90mg etoricoxib left I rang the doctors, to ask what the plan forward was, different meds, additional meds or higher dose. Or stay the same at this manageable level.

And unfortunately it wasn’t good news, they can’t increase the dose, all I can do for now is add 8 paracetamol per day for the rest of my life, or while I’m pre surgery. And wear splints day and night.

They give a look of pity, which is a hard pill to swallow, when you realise there isn’t anything they can do for you.

Maybe it’s just a bad flare, one that could settle down, so I’m taking their advice and see if that realistically helps me. Next maybe it us time to tackle diet too?? For now I just need to process the news and try and move forward.

Least I have one nice funky cast cover to help with the ugly beige splint. I bought one as one hand is mainly worse.

You can find them here

And lastly I did these on a site, I have a #Hip one so I needed an #Arthritis one too

find it here

Valentine’s? Nah it’s Physio time!!

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

I don’t do Valentine’s I confess, as I am happily married and we show acts of love everyday, which doesn’t cost a thing.

And we often have date nights, special events and outings, that this really is another day to me. Though we are planning a nice bottle of wine and roast dinner.

Though I was spoilt this week with something I’ve wanted for a while. It’s a Bosu ball, so I can do the same physio at home as I do at the hospital.

It makes one legged lunges and step ups so much harder, so less reps but works the muscles so much more. Great for helping with balance too, when your foot isn’t level. It works all the micro muscles we don’t think about.

So it’s off to the hospital and get ready for a beasting physio session. The last one before I see the surgeon too.

  • Stationary bike level 2 x 4mins
  • Leg press 40kg x 20reps
  • Trampoline marching x 1min
  • Bosu ball side lunges x 16reps
  • Upside down Bosu ball x 10 reps
  • Bosu ball 1 legged squats x 10reps
  • Green resistant band Duck walking x 20reps

Thank goodness for parallel bars as these exercises would NOT be possible. And I’m glad I have nothing else to do afterwards, as she always makes me almost crawl out. Bambi legged.

Weekends Adventures

Archive, Arthritis, Family Adventures, Health, Hips, Hypermobility

This weekend was just about staying in, and visiting family too. and of course relaxing, as my body feels like it’s been steamrolled over!!

I can’t seem to rid myself of the constant nagging back ache. And since attempting to do more steps at home on the Aerobic step, just above my knee (about 2 inches above) has also been nagging too. Really need to question surgeon about this.

Which I will admit I’m finding boring, so how can I entertain myself yet relax too?!

First up is I’m going to binge watch #LockeAndKey on Netflix


Three siblings who move into their ancestral estate after their father’s murder discover their new home’s magical keys, which must be used in their stand against an evil creature who wants the keys and their powers. I’ve just started it, and it’s looking promising. I love the visuals too, it’s superbly filmed. I hope there is many many more series to come.

#Ragnarok also on Netflix I’ve totally enjoyed all of this. Again I’m hoping for so many more series to come.


A small Norwegian town experiencing warm winters and violent downpours seems to be headed for another Ragnarok — unless somebody intervenes in time. I was absolutely HOOKED on this one.

That was the Saturday, the Sunday was all about visiting Family and good food at their houses too.

Can’t beat a Sunday dinner made for you. It was hella tasty too!!

Thankfully the storm didn’t do too much damage around our area. But it was wild out there!!