Day 221 post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s been a horrid week, in physically, mentally and weather wise too.

I’ve wanted to give up at times, I’ve cried such self pitying tears too. And it’s got me nowhere. It’s been the hardest most testing weeks I’ve had, and really none of it is my hip! Well, that’s something I’ve not been able to say since 2005!!

So that’s my silver lining. After all week following Mondays too much physio injury. I’ve felt good hip wise, a bit too good at times so I was sorely tempted to do physio again. But I promised myself I wouldn’t until Tomorrow (following Monday).

When I had injured it, it felt like an intense thigh pain, while also feeling like I was sitting on a ball, when I sat down. I presume it’s muscle, and swelling. Once I rested it soon got better, especially when I added hot water bottles and ibuprofen 400mg X 3 a day.

It’s been all my hands all week, they have felt like lightening, throbbing an swollen and just absolutely agony. I have solidly worn the splints, the gloves and used as much gel as allowed, to get minimum relief. I can’t wait for steroid injections, let’s hope they will do them.

I’m even starting to debate the CMC joint surgery? Has anyone had it? Is this my life now, replacing all the joints and arthritis already at 43?? Will I be more bionic by 50?? At my wit’s end. I’m wondering if I’ll ever drive a car, or will I ever make jewellery again? Stupid joints I hate them.

The week has been difficult and mood so low, not sure if pain or the weather has caused them. But I do now realise I work better mentally with routine, so I’m happy to be getting back into a routine tomorrow, and start off gently again with post op exercises and only 1 set too.

photo credit

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Week 31 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

What do they say? Don’t RUN before you can WALK. Yeah I should listen to that advice!!

After my set back last week, and boy was it a set back!! I’d really pulled my hip, and the thigh swelled up, and felt like a golf ball when I sat down again!! So eager to never cause that again. It’s all change for my physio.

I thought on Monday I would do well, simply doing week 2 version of exercise. (Not my best idea honestly)

  • Hip flexion ankle weights 20 reps
  • Hip abduction ankle weights 20 reps
  • Hip extension backwards ankle weights 20 reps
  • Hip extension forwards ankle weights 20 reps
  • Mini squats 20 reps
  • Ball squeeze between ankles 20 reps
  • Ball squeeze between knees 20 reps
  • Traditional clam raise green banded 20 reps
  • Hip thrusts green banded 20 reps

I added in some free weights for the upper body.

  • Bicep curl 20 reps
  • Shoulder press 20 reps
  • Bicep row 20 reps
  • Tricep kickback 20 reps
  • Chest press 20 reps
  • Tricep overhead 20 reps

These were admittedly too much. I had to wear my splints as well. Hindsight I would say I wasn’t ready Arthritis wise to do these. Broke them down into 2 x 10 reps. My hands have caused a few tears and sobbing events this weekend.

And all was ok, until I needed to go out. And the front of the hip around the hip flexor is now in pain!! An I’m experiencing pain in the right hand side of my stomach, quite low too. So maybe it’s hip related, ie scar tissue, or I’ve pulled something?! Maybe the psoas??

So obviously Tuesday I’ve had to rest so much more, really limiting myself to straining it any further.

So here we are and it’s Wednesday and officially 31 weeks, and I’m nursing sore hip and groin pain. Frustrating but shows how it’s 1 step forward and 2 or 3 steps backwards.

No weight loss this week, but I have gone down in measurements so that’s proper encouraging to me. I take my measurements once a month, as I know this process is super slow compared to able bodied folks.

Day 214 post #hipreplacement weekly roundup

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s already the weekend and what a week it’s been. It’s been hard I won’t lie, the physio is gruelling, and Wednesday was a much welcomed break from all exercise.

Wednesday saw us wave goodbye to the youngest daughter who was up Manchester for her early birthday celebrations!!

So there I was waving her off, knowing it’s practice for when she leaves for real next month! Eek, it’s coming round so fast it’s scary.

Me and hubby planning a fun filled few days, of eating out and lots of films too.

We ate at #egorestaurant with delicious hanging kebabs. On the Thursday.

Friday arrives and it’s official physiotherapy appointment, and I’m feeling a tad sore from the gruelling physio I’ve been doing at home. Pleased I’ve done Monday, Tuesday, and Thursday without too much fuss.

This appointment we did, not a lot as I’m still very sore, and after assessment, it’s decided that this week doing 2 sets, is clearly too much for me to do. So under advice I’m going back to 1 set only.

  • Stationary bike level 2 x 3mins
  • Ball squeeze hip bridges x 20reps
  • Single leg hip bridges x 10reps
  • Side leg raise (ankle weighted) x 10reps
  • Prone lying Knee raise (ankle weighted) x 10reps
  • Kettle bell squats x 15reps
  • Walking lunge with dumbbells x 15reps
  • Duck walking (green banded) x 15reps

So I’m a bit gutted that I’ve overdone it, but I can see that I have and that the old adage no pain no gain does NOT apply to us hippies. Super frustrating when you just want to be active and normal.

So this weekend is all about hot water bottle, ibuprofen gel, ibuprofen tablets and lots and lots of rest (if possible)

Day 207 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Round up of the last week, and I’ve managed to do my hardest physio routine Mon, Tues, Weds, I had a break Thursday and did Friday. See here for the routine. This completes 6 weeks of doing 3 different routines twice. It’s a way to kick-start new and healthy habits and routines.

Thursday I used to hoover the front room, but I’m still finding this hard to do. Maybe it’s how you plant your feet into the floor to push and stabilize yourself.

So come Friday I was honestly dreading doing the set. But I remembered someone on the boards telling me I’d inspired them to do it, so I was soon up and doing it. And I’m glad I did. Your comments mean the world to me!! Thank you.

So now this weekend, it’s all relax and let my muscles recover. Zero weight loss which is sad. But not my main focus, but the skincare routine is down to a tee. And I’m managing at least 3litres of water per day. So I’m happy with that.

So my skin is feeling so much better, and my insides feel less bloated. So it’s a win for me even though the weight isn’t coming off.

My ehlers danlos syndrome is playing havoc this weekend, because it’s THAT time. So ankles, hands, elbows and shoulders are super loose, painful and feeling extra awful. But with rest it should feel better. But I’m starting to hate rest days, my brain complains.

Week 29 Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

After gorging on birthday cheese… Yes I asked for cheese for my birthday, and boy it was goooood. And of course cake too. This week it’s time to embark on week 3 of my physio routine, it’s the hardest one out of the 3 weekly routines I have, but by far the most affective too.

I’m getting concerned about my left side, as I never ever feel the muscles pull, or tense or anything really. I’m keen to ask the surgeon in Jan 2020 to ask his opinion, that’s for sure. Whereas in the operated leg boy oh boy I feel those muscles after this workout, it’s a butt killer.

Gorgeous birthday flowers are giving me the sunshine feels, as it had to typically rain all weekend. So peeved.

Had a lovely rest off physio Friday Saturday and Sunday, as we used those days to visit all the family.

Logan and Leonardo are doing well, and it was lovely to get to visit them again.

So back to physio, this week it’s a killer!! But hopefully it’s all worth it.

  • Foot pointing outwards, leg raise (ankle weighted) 20reps each side
  • Side leg raise (ankle weighted) 20reps each side
  • Single leg hip bridges 10reps each side (my worst)
  • Hip thrusts (green banded) 20reps
  • Reverse lunges (ankle weighted) 10reps each side
  • Side lunges (ankle weighted) 10reps each side
  • Romanian deadlift 7kg weights 20reps
  • Supine marching (ankle weighted) 10reps each side
  • Dead bugs 10reps each side

Day 179 post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

As I relax today, first time since last Sunday, I think about my week round up after another full week of physio. And I’m honestly pooped, it’s wearing me out, but in a good way.

This time I had switched up some exercises up, to challenge the muscles, and gain stamina.

And I also did 2 days of double the amount. Which I admit killed me off at the time, but I do feel better for it. I can vastly see how incredible the right hip is, but left glute is all but dead, I’m struggling to activate it at all. So going to try single leg hip bridges both legs next week.

I’ve also been drinking at least 4 pints of water per day, watching my calorie intake more, doing food swaps, and a bit of intermittent fasting. And in 2 weeks I’ve lost 2.2lbs.

So it’s been successful, the beautiful weather has helped massively. Next week is rain due, so that will be a challenge for me, and more outings planned, ie hospital physio appointment, as well as family outing for birthdays.

Hands are a huge issue, but I’m going to attempt doing weights next week as well, for a more overall body workout. Even if it means wearing splints for support.

My back, is horrendous, knees too. I’m at a lost, as I have had my form checked for all exercises, and I’m not straining either, yet everyday I wake-up and I can’t move for a fair while, I’m so stiff and achy. Roll on sept when I can discuss this with MiCats.

It could be because I’m due on, as ankles have also been playing up, and cracking as I walk. Something to keep an eye on anyways.

19 weeks post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

The weeks are flying by, and with the warmer weather we as a family are getting busier, which is lovely. But boy oh boy I’m still paying a high price for any activities.

Which I wholeheartedly admit is gutting. I truly wanted, wished and hoped that by now this magic bullet surgery would be the answer and I’d be skipping into the sunset.

And while this surgery has been amazing, it’s clearly not the sole issue I thought it was. I’m struggling with my hands alot, but not just them though my ankles, knees and shoulders too and I feel cheated. All I’ve ever wanted is my life back, who I was at 32 and I’ve chased this dream headlong ever since.

I had no concept that I was literally fixing the hips to then swap the goal post and need intervention on other joints.

So I’m not going to compare to others healing times anymore, it is what it is. I’m not sure if it’s the Ehlers Danlos Syndrome, Hip Dysplasia or Arthritis that is ruling my life, but something is, more than I care to admit too.

It sucks that I have some issues, I have to remember not to focus on them, I need to remember the positive thoughts and drive my energies into them.

No physio appointment booked this week, so physio at home is foundation basics to keep movement going and no stress out other joints. Using ankle weights for resistance.

  • Hip abduction x 15 reps
  • Hip extension x 15 reps
  • Hip extension (backwards) x 15 reps
  • Hip flexion x 15 reps
  • Single leg lunge on areobic step x 15 reps
  • Monster walk x 30 steps

Going to work on these while I await the next physio appointment.

Found these exercises on Pinterest and I will try to add some of these are well, later on in the week.

Day 114 post #hipreplacement Bionic Camping.

Archive, Family Adventures, Hip replacement

Marking the day, as today is the day we are driving around 4hours to go to Cornwall to camp!!

Yay!! Happy days, excited to say the least. Keen to see how the hip behaves, and how I cope with the long long drive too. (I’m a passenger at least)

But I will be prepared with plenty of ibuprofen, the gel, and cushions, and probably a hot water bottle.

So the last few days have been mad dash packing, hunting things down, cursing and feeling overwhelmed. But it’s all worth it, in the end.

Heading to Tintagel for a special event, a Karen Kay Fairy Event

Tintagel Faery Ball & Fairy Fayre – Saturday 4th May 2019

Venue: King Arthurs Great Halls, Fore Street, Tintagel, Cornwall, PL34 ODA, UK

Featuring Special guest artist Jasmine Becket Griffith at the daytime Fair

Join the Tintagel Ball Facebook event page

Returning to Tintagel, Karen Kay’s Faery Events is to host an Arthurian themed evening Faery Ball at Beltane (Saturday 4th May 2019) at the King Arthur’s Great Halls in Tintagel, Cornwall.

With music from Cornwall’s 3 Daft Monkeys, plus duo, Katharine Blake and Charlie Cawood. Katharine Blake is the founder, musical director, composer and arranger of the unique and other-wordly classical chart topping choir Mediaeval Baebes. Formed in 1996, the group have toured internationally, released 8 studio albums, won an Ivor Novella award for their performance on the BBC s serialisation “The Virgin Queen”, and received two Emmy nominations as the featured artist on the theme tune for the hit TV show “Victoria.”

So phones off, social media break and family time here we come!! See you in a few days time xx

Day 93 #hipreplacement #EhlersDanlosSyndrome

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

After receiving a comment from a fellow blogger (find them here) they suggested I should explain more about #EhlersDanlosSyndrome and honestly I should.

What is Eds?

So Ehlers-Danlos syndromes (EDS) is a group of 13 individual genetic conditions, all of which affect the body’s connective tissue.This Connective tissue lies between other tissues and organs like a glue, keeping these separate whilst connecting them, this glue is tasked with holding everything in place and providing support.

In EDS, there is a gene mutation (like an X Man, the nerd in me loves this!!) that causes a certain kind of connective tissue, what kind will depend on the type of EDS (which type out of 13) (Hypermobile Eds, Hypermobility spectrum disorders, Classical Eds, Vascular Eds. They all fit under these umbrella labels)

This gene mutation is usually a form of collagen, this causes it to be fragile and stretchy. This stretchiness can sometimes be seen in the skin of someone with EDS (NOT ME) My skin has never stretched like that, but I scar and bruise incredibly easy. Individuals with the condition may also be able to extend their joints further than is usual (This is ME) this is known as being hypermobile, bendy or double-jointed. As collagen is present throughout the body, Everyone’s bodies, people with EDS tend to experience a broad range of symptoms, most of them less visible than the skin and joint differences. These are complex syndromes affecting many systems of the body at once, this makes it hard to connect and diagnose, despite this EDS is often an invisible disability.

Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person, even in the same type of EDS and within the same family.

Now it’s important to remember my #EDS isn’t the same as another #EDS as we are all individuals, and with that said it’s also why it’s incredibly hard to diagnose. We have a collection of symptoms, that are easily explained away and not connected.

I mean who thinks, velvet soft skin is connected to a thundering heartbeat because you stood up? So they came up with a series of movements to test for it.

The old way to classify Ehlers Danlos Syndrome was to use the Beighton Scale. The Beighton score is a set of manoeuvres used to judge if there is evidence of joint hypermobility. There are 9 points, and a score of 4 or more is considered a sign of there likely being generalised joint hypermobility present.

Now at the time of diagnosis in my early 30s I scored 8 of 9. Now there’s a more comprehensive way of scoring, found here Now I’m older and a lot more stiffer, so flexible I am not anymore. Therefore I would fail this tests above, but that doesn’t mean I don’t have it.

But these new ways of scoring takes that into account. So if you could touch the floor with flat hands without bending legs, bit no longer can you still score a point.

This helps the reclassification of certain symptoms, so I was diagnosed with EDS type 3 which is the Hypermobility type. Now it’s known as hEds Hypermobility Ehlers Danlos.

How does it affect you?

How does it affect me? Good question that I’m not entirely sure of myself. I know I feel pain all the time, from holding my own skeleton together and in the correct position. It’s so easy for my shoulders and hands to go beyond their natural range. Now I personally find this extra lax during my menstrual cycle, it’s like every joint I have comes out of joint, super super easy. It’s due to hormones creating the environment for this to happen around the cycle.

But as I said earlier it affects how I heal, so bones take longer to knit together, but likewise I’ll produce more scar tissue inside healing sites. Scars are often keloid or stretched and wrinkly. I bruise from being barely touched at times.

My three biggest ways I’m personally affected is the early onset of Osteoarthritis, my hip was grade 4, my mobility is awful, but I use to do gymnastics and horse ride. Now I can barely walk unaided. My hands are stiff and painful as they too have Osteoarthritis too.

My teeth are weak and crumbling, and dental visits are scary. For many years I have cried and complained that the anaesthetic doesn’t work, but no one listened to me, and then a few years ago they found it was an EDS symptom!! I have dentist now that knows about this and adjusts accordingly.

Finally how does it affect me, in a major way it screws up painrelief, I’m in pain but the meds don’t work. So fentanyl strongest drug out there? Nah doesn’t work, worst way to find out was when I had my first big op, it was a triple pelvic osteotomies and valgus femur lengthening. I was given Epidural (this does NOT work either) and Fentanyl, worst week of my life. But some gps out there, think you are attention seeking or drug dependant. You need these meds to function, to complete normal daily living, not to get high!

Since my first surgery, we’ve adjusted it to spinal, and morphine pump that I control. Now surgeries haven’t been as bad since thankfully, as I’ve had another 9. I find natural morphine better for me than synthetic versions of it that don’t work.

Now I’ve prattled on long enough, I best let you go. Hopefully by now you’ve learnt a bit more about Ehlers Danlos Syndrome. I’m still learning myself.

Day 87 #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

This weather is causing pain pain pain, and a healthy dose of stiffness and immobility with that.

So far this week to control the hand pains I’ve been taking 400mg ibuprofen x 2 but I’ll admit it’s not really helping, on top of that I’m using ibuprofen gel. At least I can splint them, and use gloves.

However the hip isn’t feeling any benefit from Ibuprofen, but it aches deep in the thigh crease where pelvis meets the thigh, Or bikini crease area I should say. With the increased rain, I’m noticing that the hip still feels seized up and stiff, exactly like it did with Arthritis?? So for this I’m adding Paracetamol. And see if that helps.

Today’s physio is focusing on lubricating joints to ease pains.

Shoulder exercises

  • Circle ball on wall left 10 reps x 3
  • Circle ball on wall right 10 reps x 3
  • Push ball on wall up and down 10 reps x 3

Then hand exercises

  • Make an O with each finger 10 reps x 3
  • Raise thumb 10 reps x 3
  • Thumb abduction 10 reps x 3
  • Thumb scoop and up 10 reps x 3
  • Wrist up and down 10 reps x 3
  • Make a fist and open 10 reps x 3

Hip exercises

  • Glute squeezes 10 reps x 3
  • Quad exercise 10 reps x 3
  • Short Arc quad 10 reps x 3
  • Ball between Ankles squeeze 10 reps x 3
  • Ball between knees squeeze 10 reps x 3
  • Hip abduction 10 reps x 3
  • Single leg raise 10 reps x 3

For these exercises I find I can do many while sitting down, watching the TV. And I break them down in 3 sets, so one set in the morning, then a set after dinner, then one more in the evening. So although it looks a lot to do, it’s easily slotted into my day.