7 Weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

For the last 2.5 weeks I finally have had some relief from that most painful steroid injection I had back on 7th October.

Think it was more painful this time as the space between the joint is so small now due to the arthritis.

Took a long long time to kick in, almost 4 weeks, and it’s either wearing off already, or the huge dip in weather temperature is to blame. As it’s nagging, not hugely, but I am aware of it most of the day.

I was hoping for the 9months relief I had gotten the first time. Alas not meant to be, though it’s nagging, at least it’s not that white HOT bone pain that I had previously.

The right thumb is flaring up, but I’m still too scared to go and get it done. Though I’m starting to get tempted. I’m trying to leave it as long as possible though.

Back to almost bathing in ibuprofen gel, and wearing splints. Curse you #Arthritis #EhlersDanlosSyndrome

4 weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

After a weekend away camping, and using the hand as much as I possibly needed, dare I say it…. It’s actually feeling like it’s improving!!

Can’t quite believe I’m saying it after how awful and how painful it was, and has been in this lead up to 4 weeks. It’s ached, throbbed and been like lighting at times, but now it finally seems to of settled down.

The grinding noise is still loud and audible to others, so I have to be careful not to grind it.

Tested it over the weekend with a lot of walking stick holding, and using it a lot while camping. Even being in the cold weather doesn’t seem to of affected too much. Ached occasionally, but seemed to pass reasonably quickly and it wasn’t a harsh ache either.

Wow I’m almost thinking it was worth the agony!! Can I really be saying that? I do wonder how long will this last?

Now the other side is beginning to ache, and pinch like the other did before the injection. I know I have to get this one done next month or December latest.

It will be nice to have it feeling good by the time my Granddaughter is bon in December.

3 Weeks Post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

I’ve had a discussion with my MiCats Doctor, and we have to officially give the steroid at least 4 weeks to work, before I can say it hasn’t worked.

But in my mind I was already convinced, at 2 weeks it hadn’t worked, as I’d been using ibuprofen gel, and I was back on the splints too.

Now I’m at 3 Weeks the nagging pain seems to have settled. Though holding my walking stick, or picking up cups still ache the hand, but a least it’s not that fiery hot pain.

If it doesn’t work:

I have only one pain relieving option left open to me and that’s surgery. Though with a hip replacement looming, the Doctor feels that has to come first. So delaying as much as possible is my only option.

Also what if surgery makes me worse? I lose strength? It’s not like my hip surgeries have been immensely successful over the last decade. It’s only now I’m seeing some success, with more to come. So really it’s not a viable option.

But on the flip side it’s only going to get worse, harder to use, and lose strength anyway, and the need to wear splints. It’s a no win situation.

Family wise I don’t think they can cope with more surgery either, and is it really fair to put them through more, when I know the other hip replacement is around the corner anyway??

And you know what’s worse? I know I have to do the other hand, it’s already getting worse, since I got this hand done. Can I really face that awful pain, and almost passing out again? Not sure I can yet!

Week 2 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

It’s been two weeks, and after the vast improvement from the first 4 days, it’s now on an even keel. Though I’d say it’s only slightly better than before the injection.

I’ve been doing some hand exercises to help mobilise it, an I’ve been doing everyday chores too. Washing up is still a painful affair, and opening jars, holding cups are painful at times, but not all the time.

I definitely had hoped this would of been improved. But I can type with my thumb now, and hold my phone. So some plus points some negative points. I can even put my phone charger in the phone hole, this was immensely painful before, so I’m glad it is improved.

But it still cracks, grinds and it’s audible, ( ie others can hear it too)

Complete with dull aches and throbbing, so I’m not sure this has worked entirely. The grinding is what concerns me the most though.

Made an #ehlersdanlossyndrome bracelet though, and it felt good to do it, couldn’t make loads due to aching, but I’m glad I did a few.

Buy Here

Week 1 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

Day 5

I did my first use of the walking stick and walk around some shops, but it didn’t last long as the hand ached, and I was extremely tired too. But I did manage to use a knife this time, so it’s improving, but feels like before I had the injection.

I think my tiredness is from the injection, as I do remember this from hip ones too. But I managed a day without crying at least!!

Day 6

I’m attempting to wash up, but it still gets that electric shock pain when you try and hold cups or plates to put them on the drainer. But pain has eased in resting phase so that is a bonus.

Woke up with a twitching eye though, done it for hours and hours. Side effect?

Managed to wash my hair, but the back of the hand was throbbing a lot with the movement.

Week One
It’s been a whole week, and although it’s obviously improved from the actual injection pain. It’s not improved from the burning bone on bone pain, so I’m wondering if it’s even worked?? I guess I can’t tell them until it’s been 6 weeks, as that is what they said.

The MCP joints of the first two fingers are still swelling and sore as well.

So I’m left to debating the future of what to do next.

I will keep making notes so I can at least tell them how I am feeling, and if any side effects?

At least I’ve managed to get out of the house twice since the injection, and I’ve used my walking stick reasonably ok, though splint very very much needed. And thank goodness for hot water bottles, and ibuprofen gel to also help get me through the week, with occasional Tramadol or Cocodamol when it’s been particularly bad.

37 weeks post #HipReplacement + Day 1- 5 of steroid injection

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement
Apologies it’s a large post

I’m 37 weeks post #hipreplacement and yes I still use my walking stick, though not while hand is heavily splinted and sore from injection. yes I’m still on painkillers, but not for this hip, it really is a lot better. An odd twinge here and there, and occasionally groin pain as discussed previously. But overall I’m really happy. Anyone else still get these twinges this far post op?

post credit

Left hip well that’s a whole other story lately, at times it feels unstable, and like it’s pushing out the front?? God knows why, this is meant to be my good hip!! That’s a depressing realisation. Hoping it’s from holiday and me wearing it out. It’s either a flexor issue or dreaded bursitis.

Knees should I mention them? They often feel twisted and want to give way. But it’s not a full year yet, so it could be residual from surgery, like previous times.

What I do need to do is get back into a physio routine, and work on my weight loss again. It’s been put by the sideline while family duties are more important.

Steroid injection in CMC joint.

See original post of the Day I had it done here

On the Day, Day One
On the day it was STIFF I couldn’t move it much at all, and it nagged a dull ache all day. Had to take ibuprofen and cocodamol tablets to help ease it. Could not function normally at all, husband had to do everything for me, even dress. It’s so sensitive and achy, I don’t remember it ever being this bad before.

Wearing my splint to help protect from use and from knocking it accidentally. It’s very very painful still.

And come the night time, I sobbed because I caught the thumb on my trousers!! What ridiculous pain, hope it settles down.

Day Two

Sleep was hard, fear of knocking it while I relaxed was very very real, and in the end I fashioned a way of having it away from me, but sleep quality wasn’t great. I was soon up with pain awakening me at 6am.

So I got up to remove splint to give it a rest, and put on ibuprofen gel, and take cocodamol. Slight movement in thumb, but still painful and extremely stiff. So another rest day for it.

Though physio is later on today, hoping to splint it and keep it out of the way as much as possible.

Survived the physio, but hand aching as I left (though I never used it)

Come tea time I started to get facial flushing on the one cheek. Expected this side effect as I’ve had it before.

Day Three

Starting to be able to move the thumb at long last. Don’t ever remember the other ones taking this long. It’s not full function, but any movement is better than none.

Can comfortably pinch movement to middle finger, I can do third finger but that makes it sore. So best not too push it too much. No strength in the pinch action though, so can’t pick things up, or do a tap etc. Now typically other thumb is painful from doing all the work of both hands.

Ended up crying once again, obviously overdid it in usage and paid the price. Also think the steroid makes me more emotional too? Sharp pains at the back of the hand. Will it settle down? I knew it would ache more, but this a very different experience to the 2 times before.

Day Four

I tried yesterday without a splint much, but it hurt more than I thought was worth it, so ended up splinting it again. Having to gel both thumbs now, as they are both stiff and painful, though now right thumb is that white hot pain from arthritis. And left is the stiffness pain from injection.

Let’s see if I can make it without crying? Why did I do this again? Oh yeah because it was so painful, so I swapped one pain for another? But I can finally reach the pinkie, stiff and sore but it reaches. Shoelaces are so hard to do still, but it’s improving.

Day Five

Feeling a lot more like myself, now I’m seeing a light on the horizon. Sleeping better, though still a little extra emotional.

Only taking ibuprofen tablets and gel now as well, so huge improvement on that. Using splint a bit less now so that’s good. Having a day out using my walking stick, so using the splint for that.

Physio appointment day

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

Well this is going to be fun, not done any physio for weeks. And now my hand (left) is absolutely useless, as it’s so painful from the steroid injection.

Hoping I can nurse the hand while working out the hips. I will wear the splint to protect it as well.

Sidenote, tiny bat was in the corridor, he made my day.

Thankfully none of the exercises I did needed my hand.

Stationary bike level 2 x 5mins

Side Leg Raise (ankle weighted) x 15reps

Supine Hip Abduction (ankle weighted) x 15reps

Supine Hip Abduction (Resistance Band) x 15reps

Prone Knee Raise (ankle weighted) x 15reps

We tried 2 new exercises to me, to test out the hips (both sides)

Sumo squat, (pivot on foot, to face opposite way) x 8reps each side

Knees hurt doing that one.

Bosu Ball Side Lunges x 5reps each side

Had parallel bars to stabilise myself, right knee hated this exercise the most.

Week 35 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

A quick relaxing break away before it’s all change and our youngest daughter paves her own path in life, when she starts university once we are home. So this week away is our last family holiday. So clinging onto the last second while we can.

So first aboard holiday with my hip replacement, I can honestly say I had envisioned that I would be skipping off into the sunset. And reality is, I’m still taking my walking stick, taking tramadol and ibuprofen, my splints and compression gloves. So there’s no rest or break away from health issues sadly.

I am armed with my sunflower lanyard for hidden disabilities, my first time ever using one for the airport.

Though with a splint on my hand and walking stick, I’m not sure it’s hidden!!

It helped with the security queue, though not mentioned I was ushered into a faster line, very professional. Once there though I was put into the x-ray machine is it? Then patted down, then with the wand all over, yes hip did bleep. I wore leggings so it would be easier to see that it’s my hip. They removed my hand splint, and put that through the machine, as well as my walking stick. Extremely thorough!!

Flight went ok, nothing to report, except I knew it would ache and it did, so plenty of fluids to help combat that, and moving the leg to prevent stiffness.

I will say I’m extremely disappointed that so many people will push in, shove and rush past me to get ahead. I was squeezed into a chair arm rest and this was the result.

The rush to get a seat on the bus was hilarious, and so obviously I’m slower,so I had to stand, complete with full death grip on pole and walking stick!!

But finally we arrived, middle of the night so it was a quick brew and water to drink then bed. Shattered.

But I’m determined to enjoy myself and kickback and forget my worries, if only for a week.

Catch you laters my lovelies.

Week 34 post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s been a weird old summer holidays, we’ve had a lot to do especially in the month of August. So fitness, physio has taken a back seat of late.

But Tuesday saw me heading off to physio at the hospital. Where after over two weeks from doing any physio at home, it was a killer workout.

We did the usual

  • Stationary bike level 2 x 5mins
  • Ball squeeze hip bridges x 20reps
  • Single leg hip bridges x 15reps
  • Single leg raise ankle weighted x 15reps
  • Prone knee raise ankle weighted x 15reps
  • Kettle bell squats x 15reps
  • Walking lunges with dumbbells x 20reps
  • Duck walking green banded x 20reps

Walked, well waddled out thinking OMG my groin is killing me, I do hope this pain settles down, it feels exactly like before surgery!! Physio thinks it may be osteophytes or loose bone spurs, so need to keep an eye on this pain, and see what activities cause it most.

photo credit

Then Wednesday I had to see the council about a blue badge, as I feel I benefit a lot from one, parking closer at times is a godsend. So armed with letters, splints, compression gloves and prescriptions (as they ask for them all) answering questions, and hoping for a good outcome. But it’s a 4 week wait to find out. I’d say fingers crossed but that’s not going to happen with my Hands!! Not feeling hopeful though.

photo credit

Thursday it’s MiCats for my hands, been waiting for this appointment since April. I’m hoping but also dreading it, as I’d like the steroid injections, but I know they hurt a lot too.

Gutted the ultrasound machine wasn’t available, so my earliest possible date for a steroid injection is 23rd September, I think I’m just doing the left hand first (walking stick hand) and have an open appointment for 3 months so I can return for the right hand.

Day 221 post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s been a horrid week, in physically, mentally and weather wise too.

I’ve wanted to give up at times, I’ve cried such self pitying tears too. And it’s got me nowhere. It’s been the hardest most testing weeks I’ve had, and really none of it is my hip! Well, that’s something I’ve not been able to say since 2005!!

So that’s my silver lining. After all week following Mondays too much physio injury. I’ve felt good hip wise, a bit too good at times so I was sorely tempted to do physio again. But I promised myself I wouldn’t until Tomorrow (following Monday).

When I had injured it, it felt like an intense thigh pain, while also feeling like I was sitting on a ball, when I sat down. I presume it’s muscle, and swelling. Once I rested it soon got better, especially when I added hot water bottles and ibuprofen 400mg X 3 a day.

It’s been all my hands all week, they have felt like lightening, throbbing an swollen and just absolutely agony. I have solidly worn the splints, the gloves and used as much gel as allowed, to get minimum relief. I can’t wait for steroid injections, let’s hope they will do them.

I’m even starting to debate the CMC joint surgery? Has anyone had it? Is this my life now, replacing all the joints and arthritis already at 43?? Will I be more bionic by 50?? At my wit’s end. I’m wondering if I’ll ever drive a car, or will I ever make jewellery again? Stupid joints I hate them.

The week has been difficult and mood so low, not sure if pain or the weather has caused them. But I do now realise I work better mentally with routine, so I’m happy to be getting back into a routine tomorrow, and start off gently again with post op exercises and only 1 set too.

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