Physio over the phone

Arthritis, Covid- 19 Week Twelve, Covid-19 Lockdown, Health, Hips, Hypermobility, Hip replacement, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

After 14 weeks of zero physio in the hospital, while being assessed by my physiotherapist, I had an appointment over the phone.

We discussed how my lunge onto the bosu ball, or going to do steps, is making the hip feel like it’s popping out, she feels it’s a muscle issue, so to shorten the step, and dip shallower to build it up slower. And do little but often.

And to maybe try a kneeling lunge if knees allow it, to take some pressure off.

But as I do have sore knees, I may have to do these with a cushion under the knee first.

Or I was given the option to swap forward lunges for side lunges and see if they both cause same pains, or if this one doesn’t.

We touched upon the encroaching groin pain from the left, the limitations it’s presenting and we decided the ROH should be approached for an appointment for that hip.

But I’ll be honest I’m not hopeful, I have one set for Feb 2021 and I may wait until then anyways. As I know they have some serious backlogs as it is. And physio itself may not be face to face until October, I’m sure I won’t see a consultant before Feb 21 anyways.

* Finally started exercise besides walking at home again, need to help this dodgy left hip while I can. And lose some lockdown weight!! *

74 Weeks Post #HipReplacement

Archive, Arthritis, Covid- 19 Week Twelve, Covid-19 Lockdown, Health, Hips, Hypermobility, Hip Arthroscopy, Hip replacement, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

17 Months boy oh boy that’s flown. And for the last 3 months I’ve had next to no physio or much walking due to a HUGE arthritis flare.

As it’s finally dampening down and I’ve managed to get out, and travel a bit further than 5 mins from the house.

Each time I walk, I’m noticing niggles in the left hip, not a classic pain, more of a gnawing toothache kind of pain. Whereas the right replacement hip, is more acute and with rest, quickly recovers.

Lunging forward, with right leg forward and push back to standing, I often feel like the implant wants to come out of the side, so I need to discuss this with my physiotherapist on the 16th June. When I finally have a telephone physio appointment.

After this walk, and how the left hip stuck and impinged, I know now it needs replacing for sure. But it’s a case of when now, the nhs has a huge backlog. So for now it’s practice walking and get muscles as strong as possible.

51 Weeks Post #HipReplacement #Blogmas

Archive, Arthritis, Blogmas 2019, Health, Hips, Hypermobility, Hip Arthroscopy, Hip replacement, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

As this year winds down, and my first year post op anniversary/birthday approaches, I am taking stock over what this year has entailed.

And my biggest thing is, I’ve smiled more this year than I have in 10years. I’ve had an incredible year, which I definitely put down to the successful hip replacement. And though me still needing a walking stick, meds and hot water bottles may not seem a success to you, for me it’s still a huge improvement.

Fitness is nowhere near where I want it to be, nor is my weight. But I’m finding that I care less and less recently, rather I’m enjoying life and all the new experiences this hip is allowing me. Ever mindful I have to fix other broken body parts, but I’m focusing on the victory!!

So no New Year New Me, or saying goodbye to the decade with scorn. My last decade I’ve learnt to re- walk 8 times, had 10 surgeries, used a walking frame, bath board, perch, walking sticks, and crutches for every year of the last decade. But each one of those brutal recoveries have got me here today. And for that I’m blessed.

I plan for so many more adventures and walking while other hip allows it.

I am lucky that stunning walks are so close go home, and that my partner loves walking too.

Paths not too uneven, so this helps the warm up and to keep a steady balance.

Hopefully I can do this more if my hip and hands allow. I’m still experimenting with #Etoricoxib tablets for Arthritis I’ve had a weeks worth so far. And while it’s not a 100 percent fix it’s certainly helping.

With that said I will bid you all a HAPPY NEW YEAR, and thank you for all the support of friendship you’ve given me, it means the world.

#Blogmas 48 Weeks Post #HipReplacement

Archive, Blogmas 2019, Health, Hips, Hypermobility, Hip replacement, Triple Pelvic Ost, Femoral Ost, PAO

I confess I cancelled my physio session due for yesterday, I just don’t have it in me to do it, as I have two days afterwards that would require energies.

We are driving up to Chester today to collect our daughter from uni, but we’ve planned a walk around the Christmas markets and packing up half of her room. I’m going to struggle with that alone, so physio was not happening. Pain is on the increase, but I’m unsure of why.

However that doesn’t mean I’ve been taking it easy in the meantime. We’ve expanded on walks, each time I lift the walking stick and walk as far as I can without it, before the waddle returns. Once it does return I go back to the stick.

I’ve stopped leaning so heavy on it, as a measure to help my hand that suffers so bad from arthritis. So the distance isn’t far. But I think it’s helping.

Walking along canals it’s an easy path, even and less arduous to try lifting the stick.

The mud is a bit of a wild card, I’ve slipped a few times, thankfully caught myself before hitting the deck. But when I slip it’s jarred the hip a few times, causing pain.

The pain I’ve had lately is in the illiac crest. A dull nagging ache, that I’m nursing with a hot water bottle. I’m taking 8 paracetamol and 3 400mg ibuprofen a day in a bid to control my hands flare ups. Weirdly though this isn’t helping the illiac pain.

Let’s hope it settles down and isn’t a frequent occurrence.

44 Weeks Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip Arthroscopy, Hip replacement, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

This week I hit a very important anniversary for the hips, it marks 10years, yep that’s right 10YEARS since my first big surgery on the hips. Note I say BIG surgery, as prior to this I had, had a bursa removal with IT Band lengthening.

I had a triple pelvic osteotomy (pelvis broken in 3 places and realigned) and femoral osteotomy (which lengthened my leg 2 inches) as you can see below I was Wonky!!

So much has happened since then, it makes me realise how far I’ve come, I’ve had 3 lots of metal work removed since, I’ve had a arthoscope on opposite hip since (where they shaved the femoral head, and removed the labrum) I’ve had 4 steroid injections and 2 manipulations under anaesthetic. Another triple pelvic osteotomy, and a femoral derotation (twist the femur to opposite direction of tib/fib bone) osteotomy!! Then this hip replacement, all done on the other hip!

I got a dvt, from ankle to thigh, nearly died. But I’ve come through it, and though it took 3years completely to recover. I’ve learnt to walk again countless times, I’ve used a walker, crutches and walking sticks for 10years, it’s art of my life now.

And the point of all this, to to acknowledge it was hard, can be still hard. But I’ve come a long way and I’ve come out the other side. I would do it all again to rid myself of that awful life consuming pain.

I’m not pain free or walking aid free, but I’m so much better than I ever was. I was housebound at one point with no hope of it changing. Until these surgeries and constant (Done for the last 10years) physio. Never underestimate how good physio can be for yourself.

Getting out and about is my greatest achievement since, it’s been a long journey. But walking is my simplest pleasure and I never take it for granted.

Still have a stick but I’m incredibly grateful to it now, instead of embarrassed by it.

Week 41 +42 Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, Triple Pelvic Ost, Femoral Ost, PAO

This week has been full on, coming back from camping, and unpacking and washing everything.

Then re-packing again for a romantic getaway to Boscastle, it’s for the #DarkGathering which happens the Saturday before Samhain (Halloween) so a cottage is booked and I can’t wait.

But in my haste I’ve bent forwards again to pick a mirror off the floor, and the hip did/does a weird squelchy feeling, it is a fast reminder not to do it, it is the oddest feeling and I feel sick when it happens.

I’ve googled it and I can’t find anything about this sensation. I will keep an eye on it, rest while I can, and vow never to bend like that again!!

#Blogmas 2018 getting closer

Archive, blogmas 2018, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

So I’m all set and ready to go in 11 days. But I clearly need to return to better eating, and taking on more fluids too, to help with better healing post op.

I’ve hopefully avoided illness and sickness so fingers and toes crossed nothing stops it going ahead now.

I don’t mind admitting I’m terrified even though I’ve had many surgeries already. Mainly because once you remove bone, there’s no going back. But I’m a member of many groups and they often say it was the best decision they made.

But we all have that niggle that unrests our minds, and worries us with what ifs. I have also had these worries before the previous surgeries too, so knowing they were unfounded helps me a lot.

So today it’s been time to tidy the house, getting into a routine, putting things away (though not our tree or decorations yet) and having set meals again. I even did some physio on shoulders and hands too.

I need to find a decent packing list as well. Eek so much to do and fit in before the op!!

#Blogmas 2018 3 weeks until #HipReplacement

Archive, blogmas 2018, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Omg I’m here again, now I just hope beyond all hopes it isn’t cancelled again!!

I’m sort of ready for Christmas, I’ve shopped as much as I can. And we’ve done 3 universities in 3 cities over 3 weeks. We’ve heard from 2 so far and both have offered a place. So hope we will hear off this third one soon too.

With doing these, I can not do physio as well, I’ve tried and it’s been poor form, and extra exhausting. So I’ve admitted defeat for now.

And I can honestly say, from trying to keep up with the tours, and walking, and sight seeing, I’m so glad the hip is going. It’s just a bain of my life. Sat at home I can also convince myself it’s fine, and I’m over reacting getting it replaced. (How many of us do that?)

Recently it’s been feeling more unstable, and achy under my butt scar. The recovery time from one day out, is multiple days of being in sheer agony. The more it slips and hurts, the more I pitch heavily into my walking stick, which is also causing issues in the hands. Vicious circle of pain.

But it’s Christmas, so I can’t be blue!! So less than a week to the big Christmas day, I’m planning on resting as much as I can, but let’s be honest, no one can actually rest this time of year!!

I hope to delegate some jobs to relieve some pains and aches. I’m not cooking this year, as we’ve planned around me already having the hip done. And I didn’t change plans, as it will be pure heaven not to cook and wash up this year.

So nearly time I can put my feet up, and start to enjoy the festive season. How about you??

#Blogmas 2018 4 weeks ish til #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Holey moley how fast is this time going? It’s whizzing by, and now we have university interviews all month, the time is flying by even quicker.

So far we have done one interview and she’s got a conditional offer from them already, but you have to wait to do the others before you accept. So still a few cities to do yet.

It’s also nearly 2 weeks since the steroid and I’m happy to update that the thumb now feels fabulous. It was so worth the discomfort and aches, and side effects to get to this point. I must remember this as now my right big toe is aching (literally I’m fixing/masking one problem area, and another pops up!!) It’s hurting to flex as you step, but hoping rest, ice and ibuprofen will help that.

I literally can’t have other issues, as I’m struggling to juggle on the ones I have. Curse of Arthritis and Ehlers Danlos Syndrome I guess.

As you can gather this week I’ve not done any hip physio, as I’ve not had the energy or time to do them. Each day it’s been a doing day or recovery day. Which is looking to stay like this all of December. Weather too is dreadful so extra pains, swellings, and aches, which isn’t helping at all.

But we did snatch a quick woodland walk in, which I thoroughly enjoyed. Some fresh air, some uneven ground, to help work muscles, so in that way the hip was worked out.

So although it wasn’t regular exercise, I still huffed and puffed, and sweated away. Knowing in a few short weeks I’d be longing for fresh air. Better to get it all in now. However hip was ANGRY as hell once home and rested, took 2 days of complete rest to sort out pain levels to reasonable again.

Roll on the next busy week, it’s Birmingham university next and occupational therapy too.

7 weeks until #hipreplacement

Archive, Health, Hips, Hypermobility, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Feels like I’m going back in time!! Well now I have more time to play with, maybe it’s time to sort these hands a bit more long term?

So with that in mind I went to see the GP. As I’m at my wit’s end with pain.

Some days they are like lightening and I struggle to even hold my phone and scroll. Other days it’s like there’s never been an issue.

I have not found a reason of the fluctuations in mobility and pain levels. I eat the same way every week (the success of our weight loss and maintaining weight) and I do the same level of physio exercises. So it can’t be any of those.

Really I’d love a magic wand to take the pain away, but that’s not possible. Though 5% ibuprofen gel takes some of it away, but I can only use it 4 times a day.

No real answers to it all, except I am trying to book in with MiCats for another steroid injection, which admittedly the last one was July and has worked very well. Also seeing OT (occupational therapy) on 5th Dec to see if there is anything they can do to help.

Thankfully I managed to snag a cancellation appointment for Friday 23rd Nov instead of waiting until 31st Dec. But the steroid injection couldn’t be done on the Friday due to no ultrasound machine, so back on Tuesday 27th for a CMC joint kenalog injection.

We had a long chat, she gave me exercises to try, I grossed her out with how much range my thumb has, clearly it’s not a normal range. But we touched on the fact she doesn’t see steroid injections long term. Something I know my hip consultant says too, however rheumatologist and gp say different.

Hip wise, I’m back to doing the post hip replacement exercises, and I’d actually forgotten how hardcore they are, still no improvement on standing freely on one leg, it’s not happening. Or extending leg outstretched forwards, the leg is too heavy and too resistant.

Still shocks me how hard these actually are too do.
I can only hope they aim to improve the tone and muscle and my stamina, all for better smoother healing afterwards. And at least they are keeping me busy in the meantime too. Instead of wallowing in self pity.

I’ve rung to confirm the new official surgery date, so as of today it’s officially 9th Jan 2019 as long as nothing else happens. No date for pre op as of yet though.