44 Weeks Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip Arthroscopy, Hip replacement, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

This week I hit a very important anniversary for the hips, it marks 10years, yep that’s right 10YEARS since my first big surgery on the hips. Note I say BIG surgery, as prior to this I had, had a bursa removal with IT Band lengthening.

I had a triple pelvic osteotomy (pelvis broken in 3 places and realigned) and femoral osteotomy (which lengthened my leg 2 inches) as you can see below I was Wonky!!

So much has happened since then, it makes me realise how far I’ve come, I’ve had 3 lots of metal work removed since, I’ve had a arthoscope on opposite hip since (where they shaved the femoral head, and removed the labrum) I’ve had 4 steroid injections and 2 manipulations under anaesthetic. Another triple pelvic osteotomy, and a femoral derotation (twist the femur to opposite direction of tib/fib bone) osteotomy!! Then this hip replacement, all done on the other hip!

I got a dvt, from ankle to thigh, nearly died. But I’ve come through it, and though it took 3years completely to recover. I’ve learnt to walk again countless times, I’ve used a walker, crutches and walking sticks for 10years, it’s art of my life now.

And the point of all this, to to acknowledge it was hard, can be still hard. But I’ve come a long way and I’ve come out the other side. I would do it all again to rid myself of that awful life consuming pain.

I’m not pain free or walking aid free, but I’m so much better than I ever was. I was housebound at one point with no hope of it changing. Until these surgeries and constant (Done for the last 10years) physio. Never underestimate how good physio can be for yourself.

Getting out and about is my greatest achievement since, it’s been a long journey. But walking is my simplest pleasure and I never take it for granted.

Still have a stick but I’m incredibly grateful to it now, instead of embarrassed by it.

Week 41 +42 Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, Triple Pelvic Ost, Femoral Ost, PAO

This week has been full on, coming back from camping, and unpacking and washing everything.

Then re-packing again for a romantic getaway to Boscastle, it’s for the #DarkGathering which happens the Saturday before Samhain (Halloween) so a cottage is booked and I can’t wait.

But in my haste I’ve bent forwards again to pick a mirror off the floor, and the hip did/does a weird squelchy feeling, it is a fast reminder not to do it, it is the oddest feeling and I feel sick when it happens.

I’ve googled it and I can’t find anything about this sensation. I will keep an eye on it, rest while I can, and vow never to bend like that again!!

#Blogmas 2018 getting closer

Archive, blogmas 2018, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

So I’m all set and ready to go in 11 days. But I clearly need to return to better eating, and taking on more fluids too, to help with better healing post op.

I’ve hopefully avoided illness and sickness so fingers and toes crossed nothing stops it going ahead now.

I don’t mind admitting I’m terrified even though I’ve had many surgeries already. Mainly because once you remove bone, there’s no going back. But I’m a member of many groups and they often say it was the best decision they made.

But we all have that niggle that unrests our minds, and worries us with what ifs. I have also had these worries before the previous surgeries too, so knowing they were unfounded helps me a lot.

So today it’s been time to tidy the house, getting into a routine, putting things away (though not our tree or decorations yet) and having set meals again. I even did some physio on shoulders and hands too.

I need to find a decent packing list as well. Eek so much to do and fit in before the op!!

#Blogmas 2018 3 weeks until #HipReplacement

Archive, blogmas 2018, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Omg I’m here again, now I just hope beyond all hopes it isn’t cancelled again!!

I’m sort of ready for Christmas, I’ve shopped as much as I can. And we’ve done 3 universities in 3 cities over 3 weeks. We’ve heard from 2 so far and both have offered a place. So hope we will hear off this third one soon too.

With doing these, I can not do physio as well, I’ve tried and it’s been poor form, and extra exhausting. So I’ve admitted defeat for now.

And I can honestly say, from trying to keep up with the tours, and walking, and sight seeing, I’m so glad the hip is going. It’s just a bain of my life. Sat at home I can also convince myself it’s fine, and I’m over reacting getting it replaced. (How many of us do that?)

Recently it’s been feeling more unstable, and achy under my butt scar. The recovery time from one day out, is multiple days of being in sheer agony. The more it slips and hurts, the more I pitch heavily into my walking stick, which is also causing issues in the hands. Vicious circle of pain.

But it’s Christmas, so I can’t be blue!! So less than a week to the big Christmas day, I’m planning on resting as much as I can, but let’s be honest, no one can actually rest this time of year!!

I hope to delegate some jobs to relieve some pains and aches. I’m not cooking this year, as we’ve planned around me already having the hip done. And I didn’t change plans, as it will be pure heaven not to cook and wash up this year.

So nearly time I can put my feet up, and start to enjoy the festive season. How about you??

#Blogmas 2018 4 weeks ish til #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Holey moley how fast is this time going? It’s whizzing by, and now we have university interviews all month, the time is flying by even quicker.

So far we have done one interview and she’s got a conditional offer from them already, but you have to wait to do the others before you accept. So still a few cities to do yet.

It’s also nearly 2 weeks since the steroid and I’m happy to update that the thumb now feels fabulous. It was so worth the discomfort and aches, and side effects to get to this point. I must remember this as now my right big toe is aching (literally I’m fixing/masking one problem area, and another pops up!!) It’s hurting to flex as you step, but hoping rest, ice and ibuprofen will help that.

I literally can’t have other issues, as I’m struggling to juggle on the ones I have. Curse of Arthritis and Ehlers Danlos Syndrome I guess.

As you can gather this week I’ve not done any hip physio, as I’ve not had the energy or time to do them. Each day it’s been a doing day or recovery day. Which is looking to stay like this all of December. Weather too is dreadful so extra pains, swellings, and aches, which isn’t helping at all.

But we did snatch a quick woodland walk in, which I thoroughly enjoyed. Some fresh air, some uneven ground, to help work muscles, so in that way the hip was worked out.

So although it wasn’t regular exercise, I still huffed and puffed, and sweated away. Knowing in a few short weeks I’d be longing for fresh air. Better to get it all in now. However hip was ANGRY as hell once home and rested, took 2 days of complete rest to sort out pain levels to reasonable again.

Roll on the next busy week, it’s Birmingham university next and occupational therapy too.

7 weeks until #hipreplacement

Archive, Health, Hips, Hypermobility, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Feels like I’m going back in time!! Well now I have more time to play with, maybe it’s time to sort these hands a bit more long term?

So with that in mind I went to see the GP. As I’m at my wit’s end with pain.

Some days they are like lightening and I struggle to even hold my phone and scroll. Other days it’s like there’s never been an issue.

I have not found a reason of the fluctuations in mobility and pain levels. I eat the same way every week (the success of our weight loss and maintaining weight) and I do the same level of physio exercises. So it can’t be any of those.

Really I’d love a magic wand to take the pain away, but that’s not possible. Though 5% ibuprofen gel takes some of it away, but I can only use it 4 times a day.

No real answers to it all, except I am trying to book in with MiCats for another steroid injection, which admittedly the last one was July and has worked very well. Also seeing OT (occupational therapy) on 5th Dec to see if there is anything they can do to help.

Thankfully I managed to snag a cancellation appointment for Friday 23rd Nov instead of waiting until 31st Dec. But the steroid injection couldn’t be done on the Friday due to no ultrasound machine, so back on Tuesday 27th for a CMC joint kenalog injection.

We had a long chat, she gave me exercises to try, I grossed her out with how much range my thumb has, clearly it’s not a normal range. But we touched on the fact she doesn’t see steroid injections long term. Something I know my hip consultant says too, however rheumatologist and gp say different.

Hip wise, I’m back to doing the post hip replacement exercises, and I’d actually forgotten how hardcore they are, still no improvement on standing freely on one leg, it’s not happening. Or extending leg outstretched forwards, the leg is too heavy and too resistant.

Still shocks me how hard these actually are too do.
I can only hope they aim to improve the tone and muscle and my stamina, all for better smoother healing afterwards. And at least they are keeping me busy in the meantime too. Instead of wallowing in self pity.

I’ve rung to confirm the new official surgery date, so as of today it’s officially 9th Jan 2019 as long as nothing else happens. No date for pre op as of yet though.

Pre op day. 2 weeks until total hip replacement #THR well it was…..

Archive, Health, Hips, Hypermobility, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

This week it’s been full on Christmas preparation for me, as I am attempting to get it all bought for before December even starts.

Why? You ask, well firstly I can’t and don’t get out much, so traffic, crowds, and stress aren’t my thing. And after end of November I could well be on a walker, or crutches so the idea of crowds and slippy floors doesn’t excite me.

So that’s been my Monday, Tuesday and Wednesday, along with doing the shoulder exercises each day. Along with core strengthening exercises. I do a simple selection, adapted to my abilities.

  • Goblet squat
  • Single arm bicep row
  • Single weight reverse lunge
  • Single arm chest press
  • Supine marching
  • Single arm tricep overhead

Then comes Wednesday afternoon and I get a call, from McBryde secretary and it’s about my Stem not being correct, and needs re making. So my surgery is cancelled 😥😥😥😥 it’s now 9th Jan 2019!! Gutted.

Now I have to cancel my pre op and hip workshop which are both scheduled for today. What a palaver. Oh well silver lining and all that, least I won’t be on crutches on Christmas day.

My family are all cheering me on, convincing me it’s a good thing, as now I won’t be recovering over my husband’s birthday, and on Christmas day I won’t be stressing over heights of chairs either. So they are correct, and though I was genuinely gutted at first I do see their point.

So countdown is now on again, it’s 7 weeks and 6 days and counting….

3 week countdown to #THR it’s official

Archive, Health, Hips, Hypermobility, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Since week 4 some things have happened, none bad. Not really.

My appointment for the #TotalHipReplacement is officially through, it’s still 29th November and it’s at 10.30am so no mad dash at 6am, phew that’s better for me. I’ve had to ring to accept the date, so it’s set stone now and I can plan around it. Yay happy days. I must start measuring my furniture now.

And I’ve seen a Physiotherapist about my hands or so I thought!! But alas they don’t do hands which is a shame as they have been awful this week. The right hand thumb has flared up, hurts to lift the kettle, hold pens, it’s swelled up too. Hard to see on photos, but it’s super painful. No rhyme or reason but each day they are flaring up, and feel like lightening at times. But I’ve also rung MiCats as I’m desperate to find a solution for the pain and flares. But i find out they have signed me off, so back to GP for another referral, I see them 16th November.

Instead they were treating my hypermobility, with appropriate exercise to stabilize the joints. My shoulders being the worst that is what we are focusing on. I’ve been referred to OTs for hand assistance, possible mobility aids to have around the house. And to join a hypermobility group at physio for more assistance after my a hip replacement.

My usual shoulder stability exercises are above, but as I have certain times of the month when joints are rattling in and out of joint. She recommended these smaller exercises, to do daily to build up stability and strength.

So using a ball, press firmly, making small circles 10 reps clockwise, 10 reps anticlockwise, and then 10 reps up and down. Small actions, but I felt it immediately. So targeted. This should help for when I’m put back onto crutches after #HipReplacement I’ve been doing them 3 x a day and wow, what a exercise. Super effective and I’m keen to see how this will improve my future health.

Weather has really kicked the hip pain up a few notches, and I’m just so glad I don’t have long to wait now. The groin is like a white hot poker of pain just sitting, let alone attempting to walk or do physio.

Took all my body measurements so I can compare after surgery, it’s something I have always done. It’s a better gage than the scale for me. So I know what I’m working back to following rehabilitation. I’m feeling much more ready to get it all done.

4 weeks to go #TotalHipReplacement #THR

Archive, Health, Hips, Hypermobility, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

What a week, it’s flown by. It’s a week since #WGW #WhitbyGothWeekend and it took a few days to recover, and catch up on sleep. So my week didn’t really start until Monday back into a routine.

But I will admit I’ve done no physio this week at all. From feeling the strain of the weekend, to then visiting my mother in law Wednesday, and seeing a friend Thursday, and suddenly feeling very poorly (yet again) I have had no time or energy to do it.

So there’s nothing else for it, except to show you some hip replacement related gift ideas lol *NONE OF THESE ARE AFFILIATED* I just love daft hip related gifts

buy here

buy here

buy here

Of course these are daft and are to cheer you up, but I did come across some useful items, that I think most patients would love to receive.

Hot or Cold hip wraps, probably safer than my hot water bottle, and you can strap on, so its portable too.

buy here

Pillows are our friends, but instead of standard ones between the knee that flatten. Perhaps this is sturdier.

buy here

So while I’m coughing and being sick, I’m trawling Amazon for preparation, I’m trying to organise some box sets to watch on Netflix too. I’ve already started my Christmas shopping as it’s too hard to do afterwards. So I’m attempting to be organised.

Shirt nightie bought from Primark, for hospital. I can easily get this on with drains and tube coming out everywhere, and it’s soft touch, so comforting on the skin.

Just had too, from Boohoo Halloween section, it’s a t-shirt dress, nightie. And I loved it. So it’s my back up nightie for hospital.

It’s starting to feel very real now, and besides being poorly I’m ready for it. Just really hope these bugs, viruses can just leave me alone near the time. I can’t bare it being cancelled.

Did any of you increase your protein intake? I’m considering it, for bone healing. Shall I use food or protein shakes? Decisions decisions decisions

5 weeks to go….. #THR

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

This week I have been faithfully doing physio, and I’ve learnt a few things from it.

1, my left (to be replaced) leg hates Hip Extension forward. It feels immensely heavy to lift, not sure why?

2, I’m still struggling with Clam raises, or Hip openers. It aches my left side glute, again it feels extra tight and resistant.

3, even this Heel slide (the easiest exercise) I’m struggling with on the left side too. The leg feels so heavy in comparison and it takes all my efforts to get them completed.

So I’m at a loss on how to improve these beforehand, as I’ve been doing these consistently this whole year, with zero improvement. I’m hoping once replaced, the action will improve.

Sidenote: since the weather has turned cold, and damp. I’ve noticed that my back is stiffer, I feel like a plank of wood. No flexibility in this Ehlers Danlos girl, and pain has increased. Maybe this is why I feel physio has gotten worse?? Hot water bottle is back out full time, and ibuprofen gel.

These are still available, on batch 4 at the moment and will end 31st October, ship 11th November. buy here