#Blogmas 10 Weeks Post #SteroidInjection

Archive, Arthritis, Blogmas 2019, Health, Hips, Hypermobility

It’s finally #Blogmas and yes I’m a day late, but Happy December, it’s such a busy month, but should be good.

This month I am attempting to take control of pain, as some days it’s consuming very thought I have, and it’s ruining my positive mentality slowly slowly.

December brings two birthdays, 1 for my husband, and 1 for my third daughter, and also a birth too!! Due in 18days.

These are the reasons for chasing the help I can, so I can be present and happy for these occasions.

Today is the day I see the GP for some guidance on reliving this ever present burning thumb and mcp pain in my index and middle fingers.

Not sure what I expect, but I’m feeling desperate at times, with lots of tears at night from pain.

Left hand which had the steroid injection 10 weeks ago.

See above the MCP joints are swelling up.

Right hand swells overall, not as localised over MCP and DIP joints.

It’s like lightening at times, dull aches other times, and it’s getting me down.

I’ve been wearing gloves, and splints religiously, and taking medication that I have too.

I bit the bullet and booked my right cmc steroid joint injection in for the 16th Dec. So that’s 2 weeks from today. I’m very very scared and nervous. Especially after last time. But I’m hoping I can hold my baby granddaughter due near Christmas, and have a pain ish free Christmas day.

But at the same time I know it needs doing, as holding a pen, or my cup is becoming an issue. And forget shoelaces, I can’t do it!!

And I need my hands to build the Christmas tree up!!

46 Weeks Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement

Today should of been my 1year post, had the 29th Nov 2018 surgery not been cancelled.

However it was and I ended up having it after Christmas instead. Which honestly was a blessing in disguise, as I ended up enjoying December more. I’d bought all presents so I had zero stress over this time. And honestly the time flew by too.

So this last week, what happened?? Well it was hellish recovering from that physio session, featured in last weeks post. A lot of rest was needed. 4 days of complete rest in fact. Actual NOT moving recovery it was that painful.

But once I had recovered, I managed a small country walk better than I had before, though on the left I’m convinced the glute is NOT activating at all. Still quad dominant over that side.

Slopes are still affecting the knees, both going up and down. I’m still stopping at least 4 to 5 times to readjust hips and knees. Stronger on the right side though, keeps showing up the left now.

But the fresh air is doing my mind good, not being stuck indoors and constantly focusing on negativity.

Really pleased with my walking boots, light weight but so supportive on my ankles. Ehlers Danlos Syndrome makes my ankles prone to rolling over, even walking on flat normal surfaces. As well as super grippy. I hate slippy leaves at this time of year.


Well it’s time for another physio session, I wonder what she will do with me this week, hoping she will be kind. Will post it soon…

9 weeks post #steroidinjection

Archive, Arthritis, Health, Hips, Hypermobility

It’s been a journey for sure, not like the first injection I had at all. It took nearly a month to work and it’s only worked marginally as well. But here I am contemplating the one thumb, as it badly needs doing.

As I’m finding that yes the cmc joint of thumb is ok. But higher knuckle of thumb is agony. Along with mcp joints of first two fingers as well. These are swelling mainly at night. And when I use my walking stick, the hand hurts with me gripping on tight. Can’t not grip tightly once my hip gets tired, it’s a vicious cycle.

Seeking the GP advice next week (it takes roughly 2-3 weeks to get in to see them) see if there’s anything else besides the gloves, splints and Injections. Though I’m not hopeful.

Winter sucks!!

44 Weeks Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip Arthroscopy, Hip replacement, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

This week I hit a very important anniversary for the hips, it marks 10years, yep that’s right 10YEARS since my first big surgery on the hips. Note I say BIG surgery, as prior to this I had, had a bursa removal with IT Band lengthening.

I had a triple pelvic osteotomy (pelvis broken in 3 places and realigned) and femoral osteotomy (which lengthened my leg 2 inches) as you can see below I was Wonky!!

So much has happened since then, it makes me realise how far I’ve come, I’ve had 3 lots of metal work removed since, I’ve had a arthoscope on opposite hip since (where they shaved the femoral head, and removed the labrum) I’ve had 4 steroid injections and 2 manipulations under anaesthetic. Another triple pelvic osteotomy, and a femoral derotation (twist the femur to opposite direction of tib/fib bone) osteotomy!! Then this hip replacement, all done on the other hip!

I got a dvt, from ankle to thigh, nearly died. But I’ve come through it, and though it took 3years completely to recover. I’ve learnt to walk again countless times, I’ve used a walker, crutches and walking sticks for 10years, it’s art of my life now.

And the point of all this, to to acknowledge it was hard, can be still hard. But I’ve come a long way and I’ve come out the other side. I would do it all again to rid myself of that awful life consuming pain.

I’m not pain free or walking aid free, but I’m so much better than I ever was. I was housebound at one point with no hope of it changing. Until these surgeries and constant (Done for the last 10years) physio. Never underestimate how good physio can be for yourself.

Getting out and about is my greatest achievement since, it’s been a long journey. But walking is my simplest pleasure and I never take it for granted.

Still have a stick but I’m incredibly grateful to it now, instead of embarrassed by it.

7 Weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

For the last 2.5 weeks I finally have had some relief from that most painful steroid injection I had back on 7th October.

Think it was more painful this time as the space between the joint is so small now due to the arthritis.

Took a long long time to kick in, almost 4 weeks, and it’s either wearing off already, or the huge dip in weather temperature is to blame. As it’s nagging, not hugely, but I am aware of it most of the day.

I was hoping for the 9months relief I had gotten the first time. Alas not meant to be, though it’s nagging, at least it’s not that white HOT bone pain that I had previously.

The right thumb is flaring up, but I’m still too scared to go and get it done. Though I’m starting to get tempted. I’m trying to leave it as long as possible though.

Back to almost bathing in ibuprofen gel, and wearing splints. Curse you #Arthritis #EhlersDanlosSyndrome

Week 41 +42 Post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, Triple Pelvic Ost, Femoral Ost, PAO

This week has been full on, coming back from camping, and unpacking and washing everything.

Then re-packing again for a romantic getaway to Boscastle, it’s for the #DarkGathering which happens the Saturday before Samhain (Halloween) so a cottage is booked and I can’t wait.

But in my haste I’ve bent forwards again to pick a mirror off the floor, and the hip did/does a weird squelchy feeling, it is a fast reminder not to do it, it is the oddest feeling and I feel sick when it happens.

I’ve googled it and I can’t find anything about this sensation. I will keep an eye on it, rest while I can, and vow never to bend like that again!!

4 weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

After a weekend away camping, and using the hand as much as I possibly needed, dare I say it…. It’s actually feeling like it’s improving!!

Can’t quite believe I’m saying it after how awful and how painful it was, and has been in this lead up to 4 weeks. It’s ached, throbbed and been like lighting at times, but now it finally seems to of settled down.

The grinding noise is still loud and audible to others, so I have to be careful not to grind it.

Tested it over the weekend with a lot of walking stick holding, and using it a lot while camping. Even being in the cold weather doesn’t seem to of affected too much. Ached occasionally, but seemed to pass reasonably quickly and it wasn’t a harsh ache either.

Wow I’m almost thinking it was worth the agony!! Can I really be saying that? I do wonder how long will this last?

Now the other side is beginning to ache, and pinch like the other did before the injection. I know I have to get this one done next month or December latest.

It will be nice to have it feeling good by the time my Granddaughter is bon in December.

3 Weeks Post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

I’ve had a discussion with my MiCats Doctor, and we have to officially give the steroid at least 4 weeks to work, before I can say it hasn’t worked.

But in my mind I was already convinced, at 2 weeks it hadn’t worked, as I’d been using ibuprofen gel, and I was back on the splints too.

Now I’m at 3 Weeks the nagging pain seems to have settled. Though holding my walking stick, or picking up cups still ache the hand, but a least it’s not that fiery hot pain.

If it doesn’t work:

I have only one pain relieving option left open to me and that’s surgery. Though with a hip replacement looming, the Doctor feels that has to come first. So delaying as much as possible is my only option.

Also what if surgery makes me worse? I lose strength? It’s not like my hip surgeries have been immensely successful over the last decade. It’s only now I’m seeing some success, with more to come. So really it’s not a viable option.

But on the flip side it’s only going to get worse, harder to use, and lose strength anyway, and the need to wear splints. It’s a no win situation.

Family wise I don’t think they can cope with more surgery either, and is it really fair to put them through more, when I know the other hip replacement is around the corner anyway??

And you know what’s worse? I know I have to do the other hand, it’s already getting worse, since I got this hand done. Can I really face that awful pain, and almost passing out again? Not sure I can yet!

Week 2 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

It’s been two weeks, and after the vast improvement from the first 4 days, it’s now on an even keel. Though I’d say it’s only slightly better than before the injection.

I’ve been doing some hand exercises to help mobilise it, an I’ve been doing everyday chores too. Washing up is still a painful affair, and opening jars, holding cups are painful at times, but not all the time.

I definitely had hoped this would of been improved. But I can type with my thumb now, and hold my phone. So some plus points some negative points. I can even put my phone charger in the phone hole, this was immensely painful before, so I’m glad it is improved.

But it still cracks, grinds and it’s audible, ( ie others can hear it too)

Complete with dull aches and throbbing, so I’m not sure this has worked entirely. The grinding is what concerns me the most though.

Made an #ehlersdanlossyndrome bracelet though, and it felt good to do it, couldn’t make loads due to aching, but I’m glad I did a few.

Buy Here

Week 38 Post #HipReplacement

Archive, Arthritis, Family Adventures, Health, Hips, Hypermobility, Hip replacement

So much has happened in the space of a week, my youngest has been at uni for a week (well more like 10days as this goes live) and let me tell you, that’s been an adjustment for sure, coupled with many tears. Happy ones as I’m proud, but I do so miss her, and worry too. Thank heavens for video calling on whatsapp.

My Left hand injection was over a week ago, still painful memories. Fun Fact: I can hear it grinding when I move it too Ouchie!!

And I’ve helped (bossed and kept company, so not really helping) my second eldest daughter move from Llandudno to Manchester.

All the while, we’ve had horrendous rain, which has hugely increased pains and aches all over. Most notably end of stem aches (mid thigh right leg) and groin right leg, left hand and left ankle. I kinda feel like emigrating to a warm country!! Less pain then. Is this all just Arthritis or Ehlers Danlos Syndrome, either way it’s pretty miserable body wise at times.

Even with the aches and pains, I’m LOVING my hip replacement!! It’s holding up so well, I’m so glad I did it. I struggle at times, but it’s the other hip failing me now.