#Blogmas 2018 getting closer

Archive, blogmas 2018, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

So I’m all set and ready to go in 11 days. But I clearly need to return to better eating, and taking on more fluids too, to help with better healing post op.

I’ve hopefully avoided illness and sickness so fingers and toes crossed nothing stops it going ahead now.

I don’t mind admitting I’m terrified even though I’ve had many surgeries already. Mainly because once you remove bone, there’s no going back. But I’m a member of many groups and they often say it was the best decision they made.

But we all have that niggle that unrests our minds, and worries us with what ifs. I have also had these worries before the previous surgeries too, so knowing they were unfounded helps me a lot.

So today it’s been time to tidy the house, getting into a routine, putting things away (though not our tree or decorations yet) and having set meals again. I even did some physio on shoulders and hands too.

I need to find a decent packing list as well. Eek so much to do and fit in before the op!!

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#Blogmas 2018 3 weeks until #HipReplacement

Archive, blogmas 2018, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Omg I’m here again, now I just hope beyond all hopes it isn’t cancelled again!!

I’m sort of ready for Christmas, I’ve shopped as much as I can. And we’ve done 3 universities in 3 cities over 3 weeks. We’ve heard from 2 so far and both have offered a place. So hope we will hear off this third one soon too.

With doing these, I can not do physio as well, I’ve tried and it’s been poor form, and extra exhausting. So I’ve admitted defeat for now.

And I can honestly say, from trying to keep up with the tours, and walking, and sight seeing, I’m so glad the hip is going. It’s just a bain of my life. Sat at home I can also convince myself it’s fine, and I’m over reacting getting it replaced. (How many of us do that?)

Recently it’s been feeling more unstable, and achy under my butt scar. The recovery time from one day out, is multiple days of being in sheer agony. The more it slips and hurts, the more I pitch heavily into my walking stick, which is also causing issues in the hands. Vicious circle of pain.

But it’s Christmas, so I can’t be blue!! So less than a week to the big Christmas day, I’m planning on resting as much as I can, but let’s be honest, no one can actually rest this time of year!!

I hope to delegate some jobs to relieve some pains and aches. I’m not cooking this year, as we’ve planned around me already having the hip done. And I didn’t change plans, as it will be pure heaven not to cook and wash up this year.

So nearly time I can put my feet up, and start to enjoy the festive season. How about you??

#Blogmas 2018 4 weeks ish til #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Holey moley how fast is this time going? It’s whizzing by, and now we have university interviews all month, the time is flying by even quicker.

So far we have done one interview and she’s got a conditional offer from them already, but you have to wait to do the others before you accept. So still a few cities to do yet.

It’s also nearly 2 weeks since the steroid and I’m happy to update that the thumb now feels fabulous. It was so worth the discomfort and aches, and side effects to get to this point. I must remember this as now my right big toe is aching (literally I’m fixing/masking one problem area, and another pops up!!) It’s hurting to flex as you step, but hoping rest, ice and ibuprofen will help that.

I literally can’t have other issues, as I’m struggling to juggle on the ones I have. Curse of Arthritis and Ehlers Danlos Syndrome I guess.

As you can gather this week I’ve not done any hip physio, as I’ve not had the energy or time to do them. Each day it’s been a doing day or recovery day. Which is looking to stay like this all of December. Weather too is dreadful so extra pains, swellings, and aches, which isn’t helping at all.

But we did snatch a quick woodland walk in, which I thoroughly enjoyed. Some fresh air, some uneven ground, to help work muscles, so in that way the hip was worked out.

So although it wasn’t regular exercise, I still huffed and puffed, and sweated away. Knowing in a few short weeks I’d be longing for fresh air. Better to get it all in now. However hip was ANGRY as hell once home and rested, took 2 days of complete rest to sort out pain levels to reasonable again.

Roll on the next busy week, it’s Birmingham university next and occupational therapy too.

5 weeks to go….. #THR

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

This week I have been faithfully doing physio, and I’ve learnt a few things from it.

1, my left (to be replaced) leg hates Hip Extension forward. It feels immensely heavy to lift, not sure why?

2, I’m still struggling with Clam raises, or Hip openers. It aches my left side glute, again it feels extra tight and resistant.

3, even this Heel slide (the easiest exercise) I’m struggling with on the left side too. The leg feels so heavy in comparison and it takes all my efforts to get them completed.

So I’m at a loss on how to improve these beforehand, as I’ve been doing these consistently this whole year, with zero improvement. I’m hoping once replaced, the action will improve.

Sidenote: since the weather has turned cold, and damp. I’ve noticed that my back is stiffer, I feel like a plank of wood. No flexibility in this Ehlers Danlos girl, and pain has increased. Maybe this is why I feel physio has gotten worse?? Hot water bottle is back out full time, and ibuprofen gel.

These are still available, on batch 4 at the moment and will end 31st October, ship 11th November. buy here

Finally getting answers?? 7 weeks til #TotalHipReplacement

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Well I’ve had the long awaited rheumatologist appointment, and it wasn’t at all as expected.

I wasn’t sure which would be a good result, if I’m being honest. As rheumatoid arthritis is no laughing matter, though thankfully there are certain medications to help with the inflammation.

However, I have certain distinctive wear and tear joint space narrowings of the joints, and none of the rheumatoid symptoms, so this meant it’s more likely my #EhlersDanlosSyndrome causing early Osteoarthritis, but the inflammatory kind. So still erosive and very painful, but less likely to be helped with medications that they use for rheumatoid arthritis sadly.

So it’s a limbo really, I can brace, splint and tape them up. Take ibuprofen, use hot water bottles and do physio and see if it helps. Though I am doing all these things already to be honest. So my future of a crafter (Jewellery and papercutting) is looking unlikely!!

I’m going to try and tinker more with food groups and try to find my triggers, if it is triggered by food that is.

So it seems my Zebra status is causing my early onset of Osteoarthritis which is notable in the hips, and now the hands. I haven’t dare touch upon the fact my ankles roll all the time, knees ache funny and elbows are odd. Because he signed me off straight away. So I think he just believes I need physio and perhaps go back to gps for help with better painkillers. (Do better painkillers even exist? Ones that don’t cause hair loss, sleeplessness, racing heartbeats, brain fog, nausea to name a few of the lovely side effects…)

I am allowed the kenalog injections in the hands, but is that in 1 joint, multiple joints? As sometimes it’s 1 thumb, 1 wrist, and 1 finger all at once! It’s unpredictable as to when and where it’s going to hurt, so taking painkillers seems weird. Ideally just reduce the inflammation would be a good start.

For now though I must just muddle through, manage the pain as best as I can, because it’s a mere 7 weeks now until my Hip Replacement Surgery. And I have so much to do to prepare for that. Any handy tips or hints? Let me know

54 weeks post #HipArthroscopy and I have good news

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Since holiday I’ve done zip, zlich, nada for a few days, because I got super sick as soon as I was home in the UK. I caught laryngitis and needed antibiotics, and lots and lots of rest.

While in this state, I’ve done a lot of resting as well as getting back into a routine, physio is a no no so far. But now it’s easing off, I’m hoping to return to it.

Instead we did do a walk, and attempt at #couch25k though we repeated week 3 run 1 as realistically that’s our actual level. Ended up being really good mentally, but physically it’s killed the hip (predictable) and following a bath to ease pains, I tried to lift my leg up to get dressed, and the hip feels like it’s coming out of joint?? It’s awful, painful and I’m grateful for my bathroom perch!!

Weather has made my hands so sore again, it was nice to have the week relief.

But my main news is….. I HAVE A DATE!! And it’s so soon. It’s exactly 8 weeks today, 29th November so a new hip for Christmas.

Thank goodness I got poorly now, rather than later. Now to plan, prepare and organise my house. It’s all too real now, it’s actually happening!! Woohoo

1yr #Hipaversary #hiparthroscopy

Archive, Challenges, Randoms, Miscellaneous, Family Adventures, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Travel

It’s finally been my 1year Anniversary since my last surgery, my Hip Arthroscopic surgery. And to celebrate it, we did it in style.

First off we visited #50cent for his 15th Anniversary Get Rich Or Die Trying Tour, this is immense, I loved every single second of it. We had Lethal Bizzle first up, then 50cent and GUnit. It was like the 00’s had come alive once again. And better yet, we knew once we got home and slept, we were off on Holiday!!

So off we flew the next day in the afternoon to #Rhodes hip obviously hates flying but I was well prepared for this.

To arrive here in the gorgeous sunshine, I knew it was the right decision to go.

This one wonderful week away, we visited as many sites as we could. Drove around the island and swam nearly everyday. I ate better here than I ever have done on a Spanish island (easier for veggie food too) the warmth honestly did my hip some good, as well as my hands. Though ankles continued to swell each day if we had been on our feet alot. But painwise the warm dry heat does absolute magic to them!! This is why pensioners move aboard.

We did a fair amount of steps, we had to stop every few so I could adjust hip, take stock and breathe into it. But boy oh boy was I rewarded. Going down was always my worse part, but I did it and so did my dodgy ole hip that’s going to be replaced. It’s like its final adventure with me. I get sad thinking that soon it won’t be with me, but I know it’s daft really. Anyone else feel a bit sad??

So I’ve made it to 1yr and it’s been a huge learning curve, my fitness has improved greatly, the muscles around the hip are stronger, I trust myself more which was a huge mental issue for many years. And all because I took physio seriously and did it religiously. I also stopped trying to race ahead and do more than my hip wanted to do, I kept to the basics and finally got results. Granted it never stopped my pain or limitations of the hip, but I’m sure that once it’s replaced, it will greatly improve my recovery period.

And better yet, I didn’t put on the usual 5lbs + that I usually do on holiday!! We ate more like at home, less carbs, more protein and salads and I came home 1lb heavier, which has already gone 3 days after getting home.

Obviously I got off the plane and I couldn’t speak, lost my voice. Maybe air con had something to do with it. The day after being home I had to see the doctor, as I felt super poorly. And it’s laryngitis so on antibiotics and feeling very sorry for myself right now. But what a week we had!!!!

51 weeks Post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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Nearly one year since my Arthroscopy, and so much has happened. It’s slipped and crunched it’s way through this year.

I’ve simultaneously felt stronger fitter and healthier, while feeling more vulnerable, more disabled at times, and more anxious that I can’t trust the joint.

So you could say it’s been a huge roller coaster, all the more frustrating as the times it’s at the highest peak it’s been amazing, I can almost taste a normal life. Only to come crashing down, and feel lost and depressed.

Not to worry though, it’s all go for the upcoming surgery. So now I feel positive and Energized for the future, and what it could bring us too.

Bloods taken this week to test for ESR and CRP levels once again. Apparently I should of had them done in May, but no one told me!! See what they say and I see the rheumatologist in one month’s time too.

First step…

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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Here is the day, bit faster than I thought if I’m completely honest, but it’s due to a cancellation. I rang up ROH just enquiring about the possible dates of the 3d CT scan, and she offered to book there and then. So exactly 20days after my consultant appointment, I’m back here to have the CT scan.

Bundle of nerves, not for the scan as that’s fine, but the knowing I’m firmly on this replacement train. Even though I’m 100% sure about doing it, I’m still nervous, and anxious over it all.

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The traditional CT scan compared to the 3d version. It’s all very clever and well above my comprehension.

Of course I had to rep my tee, while I was there. It usually breaks the ice and gets people talking, so that’s a bonus. You can buy yours Here

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*I get a small comission from each sold*

CT scan lasted all of a few mins, nice and easy really, apart from me personally keeping my toes together. I struggle to internally rotate the left leg, so holding it for a few mins feels like a lifetime.

Exciting times ahead. But for now it’s relax back at home and eat my most delicious dinner made by hubby. Half an muffin toasted with bacon and scrambled egg.

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Familiar aches are back… 50 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Charting my journey as its nearly a whole year since my Hip Arthroscopy Surgery, at the time I knew I was potentially only saving myself an extra year or so from Hip replacement. However it ended up a lot sooner than I imagined, meaning I sought a steroid injection to stabilise the joint back in June, and now already I’m in the process of being on the waiting list to replace it.

It’s been a good year however, I’ve improved all the muscles, and strength which was important to me, and I firmly believe it will give me a better foundation to build on, following the replacement.

It’s now 10 weeks since the Hip steroid and that pains been back a far while, and no surprise if I’m honest. It lasted at best 4 weeks. A bloody glorious 4 weeks too.

My CMC joint steroid was 9 weeks ago and it worked immediately, and completely too. And just today at 9 weeks, I’m starting to feel the bone crushing sensation on the joint. So hard to explain it really, just feels like a constant vice on the joint. Well that’s back, I’m thinking a turn in weather temperature brought that back into my life.

This poor hand never catches a break, as recently I fell over and created a TFCC tear in the same hand. So lots of bracing, ibuprofen and rest for now. Thankfully that pain which was intense, has subsided into an ache, and overall weakness.

I confess in the time since I’ve fell which was 2 weeks ago tomorrow, I haven’t done any #couch25k #couchto5k as I was too sore and swollen from falling. Then we did Blackpool a week later, and hip has been 💯 bitch since. So sharp, so stabby, even while sitting down, or lying down, that the thought of standing on it has not appealed in the slightest.

Next week it’s 3d CT Scan time, it feels like things are actually happening, and there’s an end to this pain….