Day 104 #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

As the week progresses, I need to start thinking of Saturday which is a party day for my Grandson, he will be 3 yrs old. So the weekend won’t be used for walking or physio.

So I need to get my physio in on these 4 days at least. Still having some thigh pain I’m reluctant to do much. And my elbow is still super sore and feeling odd from partially dislocating on Friday, so weights are definitely out for now.

I think I will do my hardest ones, but very low reps for now.

  • Mini squat 15 reps
  • Clam raise 15 reps (some improvement there)
  • Side leg raise 15 reps
  • Prone lying, bent knee raise 15 reps
  • Aerobic step lunge 15 reps (I don’t have a Bosu Ball)
  • Aerobic step overs 15 reps
  • Ankle weighted side steps 30 steps

I do NOT lunge as well as this, more like a lean forward with the weight solely on the operated leg. Then push back off that leg. Really hard, really difficult, and does twinge my knee at times. I need to speak to Physiotherapist to check it’s ok. I do less of lunge to protect the knee at the moment.

For the walk overs the step, I do exactly what it says, I use the operated leg on the step and step right over with the opposite leg, keeping the operated leg planted the whole time. Again difficult for me,but hoping it helps with strength.

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Day 103 Geocaching Fails

Archive, Arthritis, Family Adventures, Health, Hips, Hypermobility, Hip replacement, SURGERY

We decided to do some walking but on flat ground as the thigh has been aching since Friday night, but I couldn’t waste this glorious sunshine.

So off we trot to explore the marshes, funnily enough we’ve lived here for 14yrs and not once gone to explore them. So today’s the day!!

Planned to do a loop around the water and it’s all pretty much flat. I’d love to see otters, but it’s not the right time of day to see them. Squirrels and birds are all we will see today.

Had a few (4) caches planned to find, but we failed at ALL of them. We tried to find them, but they are certainly too well hidden. And too many nettles for me to stick my hand anywhere too.

In my head the marshes were just boggy grounds, but actually we saw lakes, rivers, and small boggy pools, each with a different selection of wildlife to be found there.

I could hear frogs but sadly didn’t see any.

Sat down a few times as I needed too. Sneaked inside hides to have a drink break, and to gaze at the birds.

One day I would like to cycle it, the path seems easy enough too. I just need to get over my fear of putting the leg down.

It was so peaceful and quiet even on blazing hot bank holiday, I’ll definitely be returning again, possibly with some binoculars too!! And definitely in the evening to catch the elusive otters.

Day 102 Easter Weekend

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Well this weekend has been eventful and hugely victorious in the recovery period of the hip replacement.

I’ve done things I’ve not done for a decade (walk down stairs normally) standing to put trousers on, and finally going out clubbing with NO groin pain!!

We’ve celebrated this glorious weather and the celebration of ‘normie’ me returning to myself with Gin in the park.

Walking around the Victorian Park and River.

Even eating ice creams, because why not.

Loving the new lease of life this hip has given me. Yes I have niggles, and twinges, but absolutely nothing like before. Hoping it just keeps improving, and that the other hip doesn’t fail me.

Warm weather has meant minimum pain and stiffness for my hands, so that’s been a bonus. Though I did partially dislocate my elbow going to the toilet. That wasn’t so pleasant.

Day 101 #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Well it’s the day the night before! I’m a little bit hanging as I was full of absinthe, prosecco and aperol, and Stella.

Club was ace! I felt steady on my hip all night so that was good, there was really good seating so that helped massively. I saw another walking stick there, and he had a light (like a bike light on) I think I need one!!

Small club, so not endless walking to places. It was the longest I’ve ever stood up for. I did use my walking stick most of the night. Hip held out well, just nagging thigh pain. In fact I was just tired more than anything.

So recovery mode on, out in the garden. Rest and recover time. I’m immensely stiff this morning.

Day 99 First Land Physio

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

The day is finally here, my first official land physio appointment. Thankfully I’ve retained my Physiotherapist that I’ve worked with for years, through various different surgeries. So it’s fair to say she knows me well and my abilities too.

So I loved it when straight away, she noticed that some of the waddle has gone. Yes it’s there when the leg is fatigued but no longer is it there 100% of the time.

First off it’s Stationary bike 5 mins

With the bike it was on level 3, so the first time in many years I’ve had a resistance on it.

Then Sit down/Stand ups 15 reps

Sat fully down, then got up again, without holding onto anything.

Dreaded Clam Raises 15 reps

I say raise but it’s not actually raising, but the muscle is tightening, so although I’m not successful yet, the muscle is still being worked.

Keeping bottom leg bent, into a Side Leg Raise 15 reps

Weirdly found these quite easy. Only doing the operated side at the moment at physio.

Into Prone Lying, Bent Knee Raise 15 reps

This feels a lot better than before, it used to want to fall outwards, so I’ve obviously gained some strength to hold it upwards and straight.

Next up is some Green Resistance Band exercises Hip Extension 15 reps

Hip Abduction 15 reps

Hip Flexion 15 reps

Found these not too bad as I’ve been practicing at home already.

Next up is my enemy!! Bosu Ball Lunge 15 reps

Single leg lunge into the unsteady unbalanced ball surface. My knee HATED it.

Staying with the Body Ball Walkover 15 reps

From the lunge then holding onto balance bars I had to walk over and return backwards. Emphasis on the single leg taking all the weight and balance. Thank goodness for the bars holding me up!!

Ended on one I’ve been doing at home, so felt a lot easier to me Side Steps Green Resistance Band 15 reps

I was absolutely shattered leg wise after this, walked out like Bambi, feeling muscles and aches I forgot existed. I’m glad I still have my walking stick, else I would not be walking out of there.

Knee very very sore, so home to a hot water bottle and lots of rest now.

Week 14 #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

A week of mini victories, first I had walked down the stairs once without holding on for dear life, and one step at a time.

Next I put on trousers standing up, wasn’t totally graceful but I did it!!

I’ve bought some skinny jeans for my out out evening Friday. Skinny style though not a skinny size (but that is something I am and I will work on) They both have a stretch in them so they aren’t too weird over the scar. As I still don’t like seams over scars.

Slowly slowly I’m regaining myself back which is wonderful news.

Then of course I’m going to a techno night out on Friday night, a night a friend runs in Birmingham. Chapel Of Chaos

So I can’t do too much physio this week, so I save my energies for this. We’d bought tickets for this before Christmas,and before my surgery dates changed too. Determined not to miss another one. Does anyone else rest a lot before a thing? I know I have too.

Heres week 14 scar, looking pretty deep still at the top, but almost disappeared at the bottom, looks as faded as the two scars that are either side of it. Should be fine wearing shorts if we get some sunshine this summer.

Day 96 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Last night I hit a victory!! On the last time I walked down the stairs, I walked like a ‘normie’ one foot one step at a time. Loving the new strength to do this. But keen not to tear it or set myself backwards.

So it’s Monday, and I’m feeling reasonable, a bit of mid thigh pain leads me to think of doing upper body exercises instead of lower body.

  • Shoulder Press 15 reps x 1
  • Bicep Curl 15 reps x 1
  • Later Raise 15 reps x 1
  • Bicep Row 15 reps x 1
  • Tricep Kickback 15 reps x 1
  • Goblet Squat 15 reps x 1 (knees weren’t happy, so not a squat persay)
  • Kettle bell Swing 15 reps x 1 (again knees not loving bending even a bit)
  • Chest Press 15 reps x 1
  • Butterfly Raise 15 reps x 1
  • Tricep Overhead 15 reps x 1

I feel like I could of done more, but today has been the first day my shoulders and hands haven’t hurt a lot, so I don’t want to change that.

Not sure why knees hurt, could be from doing the stairs yesterday. So again I’m not keen on doing too much to then make them an issue.

Day 94 Weekend vibes

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s a warm ish looking weekend, so it’s a nice day for my belated Mother’s Day meal with my eldest daughter.

Off to Aston Marina for an extra special treat. An afternoon tea.

So no physio exercises for me today, it’s full on family time this weekend, making all that work during the week worth it.

Though walking up this bridge felt like physio, I did it unaided (no walking stick) but boy oh boy that was HARD.

I love boats, there’s something relaxing about water and the boats there. The wildlife around them too. It’s a lifestyle I envy, but I’m realistic and don’t think my body could cope with boat life sadly.

The meal was Afternoon Tea, which I can confirm was absolutely delicious!! And extremely filling too.

Four types of sarnies, salmon, cream cheese and cucumber, cheese and tomato, ham and mustard. And a HUGE sausage roll slice.

Next was the scones with clotted cream (cream first for me) and strawberry jam. We had a plain and current scone.

Lastly it was the choice of the little cakes, a cherry bakewell, brownie, macaroon, and raspberry tart. With the cutest flowers on too.

We didn’t walk far but I was walking unaided around the marina, and it was good practice. Though totally exhausting.

Day 93 #hipreplacement #EhlersDanlosSyndrome

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

After receiving a comment from a fellow blogger (find them here) they suggested I should explain more about #EhlersDanlosSyndrome and honestly I should.

What is Eds?

So Ehlers-Danlos syndromes (EDS) is a group of 13 individual genetic conditions, all of which affect the body’s connective tissue.This Connective tissue lies between other tissues and organs like a glue, keeping these separate whilst connecting them, this glue is tasked with holding everything in place and providing support.

In EDS, there is a gene mutation (like an X Man, the nerd in me loves this!!) that causes a certain kind of connective tissue, what kind will depend on the type of EDS (which type out of 13) (Hypermobile Eds, Hypermobility spectrum disorders, Classical Eds, Vascular Eds. They all fit under these umbrella labels)

This gene mutation is usually a form of collagen, this causes it to be fragile and stretchy. This stretchiness can sometimes be seen in the skin of someone with EDS (NOT ME) My skin has never stretched like that, but I scar and bruise incredibly easy. Individuals with the condition may also be able to extend their joints further than is usual (This is ME) this is known as being hypermobile, bendy or double-jointed. As collagen is present throughout the body, Everyone’s bodies, people with EDS tend to experience a broad range of symptoms, most of them less visible than the skin and joint differences. These are complex syndromes affecting many systems of the body at once, this makes it hard to connect and diagnose, despite this EDS is often an invisible disability.

Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person, even in the same type of EDS and within the same family.

Now it’s important to remember my #EDS isn’t the same as another #EDS as we are all individuals, and with that said it’s also why it’s incredibly hard to diagnose. We have a collection of symptoms, that are easily explained away and not connected.

I mean who thinks, velvet soft skin is connected to a thundering heartbeat because you stood up? So they came up with a series of movements to test for it.

The old way to classify Ehlers Danlos Syndrome was to use the Beighton Scale. The Beighton score is a set of manoeuvres used to judge if there is evidence of joint hypermobility. There are 9 points, and a score of 4 or more is considered a sign of there likely being generalised joint hypermobility present.

Now at the time of diagnosis in my early 30s I scored 8 of 9. Now there’s a more comprehensive way of scoring, found here Now I’m older and a lot more stiffer, so flexible I am not anymore. Therefore I would fail this tests above, but that doesn’t mean I don’t have it.

But these new ways of scoring takes that into account. So if you could touch the floor with flat hands without bending legs, bit no longer can you still score a point.

This helps the reclassification of certain symptoms, so I was diagnosed with EDS type 3 which is the Hypermobility type. Now it’s known as hEds Hypermobility Ehlers Danlos.

How does it affect you?

How does it affect me? Good question that I’m not entirely sure of myself. I know I feel pain all the time, from holding my own skeleton together and in the correct position. It’s so easy for my shoulders and hands to go beyond their natural range. Now I personally find this extra lax during my menstrual cycle, it’s like every joint I have comes out of joint, super super easy. It’s due to hormones creating the environment for this to happen around the cycle.

But as I said earlier it affects how I heal, so bones take longer to knit together, but likewise I’ll produce more scar tissue inside healing sites. Scars are often keloid or stretched and wrinkly. I bruise from being barely touched at times.

My three biggest ways I’m personally affected is the early onset of Osteoarthritis, my hip was grade 4, my mobility is awful, but I use to do gymnastics and horse ride. Now I can barely walk unaided. My hands are stiff and painful as they too have Osteoarthritis too.

My teeth are weak and crumbling, and dental visits are scary. For many years I have cried and complained that the anaesthetic doesn’t work, but no one listened to me, and then a few years ago they found it was an EDS symptom!! I have dentist now that knows about this and adjusts accordingly.

Finally how does it affect me, in a major way it screws up painrelief, I’m in pain but the meds don’t work. So fentanyl strongest drug out there? Nah doesn’t work, worst way to find out was when I had my first big op, it was a triple pelvic osteotomies and valgus femur lengthening. I was given Epidural (this does NOT work either) and Fentanyl, worst week of my life. But some gps out there, think you are attention seeking or drug dependant. You need these meds to function, to complete normal daily living, not to get high!

Since my first surgery, we’ve adjusted it to spinal, and morphine pump that I control. Now surgeries haven’t been as bad since thankfully, as I’ve had another 9. I find natural morphine better for me than synthetic versions of it that don’t work.

Now I’ve prattled on long enough, I best let you go. Hopefully by now you’ve learnt a bit more about Ehlers Danlos Syndrome. I’m still learning myself.

13 weeks post #hipreplacement

Archive, Arthritis, Family Adventures, Health, Hips, Hypermobility, Hip replacement, SURGERY

Goals for this week is to keep up my red band resistance exercises, but maybe try and add some ankle weights in some exercises, such as step ups, hip abduction, extension and flexion. (as the band gets hard to use at times)

To roller my scar area, to try and awaken some nerves and break down scar tissue. The area is still NUMB as hell. I feel pressure if I press down, but the sensation of touch has gone altogether.

Had another #Geocaching adventure, I love this as it gives you a purpose to get outside and walk where you might not of thought to visit. It’s chilly, but wrapped up from the biting wind, we set off to find 1st of 3 caches, first one gives co-ordinates to the second and so on, so no treasure, just hunting the clues.

First cache above, have us numbers for the second cache below.

More numbers to add, to find the third

Oh no, cache 3 is missing (we have found it a few years ago) instead this tree had an egg in the trunk. So careful not to disturb, took photo to share with the cache owner.

Oh well had fun finding the clues, time to head back after walking in heather and weird spongey grass (adder fear was real at this point)

On the way back to the car, Mr Moon spotted on the GPS another cache close by, so we headed to this one, making it 4 in one day!!

Erm…. This wasn’t hidden, it seems someone forgot the memo. Not to worry logged we found it, and carefully hidden once again.

As much as I love all this walking, my hip still has its pain moments, and nags to go and rest. Walking is good for me, mentally especially. But physio works on the actual muscles I need waking up, so it can’t replace that for me.

I was pleased to get home and rest my aches with a hot water bottle, knee twinges and thigh pains are still real here. And I am still on a walking stick, just not strong enough to walk unaided outside.