#Blogmas 10 Weeks Post #SteroidInjection

Archive, Arthritis, Blogmas 2019, Health, Hips, Hypermobility

It’s finally #Blogmas and yes I’m a day late, but Happy December, it’s such a busy month, but should be good.

This month I am attempting to take control of pain, as some days it’s consuming very thought I have, and it’s ruining my positive mentality slowly slowly.

December brings two birthdays, 1 for my husband, and 1 for my third daughter, and also a birth too!! Due in 18days.

These are the reasons for chasing the help I can, so I can be present and happy for these occasions.

Today is the day I see the GP for some guidance on reliving this ever present burning thumb and mcp pain in my index and middle fingers.

Not sure what I expect, but I’m feeling desperate at times, with lots of tears at night from pain.

Left hand which had the steroid injection 10 weeks ago.

See above the MCP joints are swelling up.

Right hand swells overall, not as localised over MCP and DIP joints.

It’s like lightening at times, dull aches other times, and it’s getting me down.

I’ve been wearing gloves, and splints religiously, and taking medication that I have too.

I bit the bullet and booked my right cmc steroid joint injection in for the 16th Dec. So that’s 2 weeks from today. I’m very very scared and nervous. Especially after last time. But I’m hoping I can hold my baby granddaughter due near Christmas, and have a pain ish free Christmas day.

But at the same time I know it needs doing, as holding a pen, or my cup is becoming an issue. And forget shoelaces, I can’t do it!!

And I need my hands to build the Christmas tree up!!

9 weeks post #steroidinjection

Archive, Arthritis, Health, Hips, Hypermobility

It’s been a journey for sure, not like the first injection I had at all. It took nearly a month to work and it’s only worked marginally as well. But here I am contemplating the one thumb, as it badly needs doing.

As I’m finding that yes the cmc joint of thumb is ok. But higher knuckle of thumb is agony. Along with mcp joints of first two fingers as well. These are swelling mainly at night. And when I use my walking stick, the hand hurts with me gripping on tight. Can’t not grip tightly once my hip gets tired, it’s a vicious cycle.

Seeking the GP advice next week (it takes roughly 2-3 weeks to get in to see them) see if there’s anything else besides the gloves, splints and Injections. Though I’m not hopeful.

Winter sucks!!

7 Weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

For the last 2.5 weeks I finally have had some relief from that most painful steroid injection I had back on 7th October.

Think it was more painful this time as the space between the joint is so small now due to the arthritis.

Took a long long time to kick in, almost 4 weeks, and it’s either wearing off already, or the huge dip in weather temperature is to blame. As it’s nagging, not hugely, but I am aware of it most of the day.

I was hoping for the 9months relief I had gotten the first time. Alas not meant to be, though it’s nagging, at least it’s not that white HOT bone pain that I had previously.

The right thumb is flaring up, but I’m still too scared to go and get it done. Though I’m starting to get tempted. I’m trying to leave it as long as possible though.

Back to almost bathing in ibuprofen gel, and wearing splints. Curse you #Arthritis #EhlersDanlosSyndrome

4 weeks post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

After a weekend away camping, and using the hand as much as I possibly needed, dare I say it…. It’s actually feeling like it’s improving!!

Can’t quite believe I’m saying it after how awful and how painful it was, and has been in this lead up to 4 weeks. It’s ached, throbbed and been like lighting at times, but now it finally seems to of settled down.

The grinding noise is still loud and audible to others, so I have to be careful not to grind it.

Tested it over the weekend with a lot of walking stick holding, and using it a lot while camping. Even being in the cold weather doesn’t seem to of affected too much. Ached occasionally, but seemed to pass reasonably quickly and it wasn’t a harsh ache either.

Wow I’m almost thinking it was worth the agony!! Can I really be saying that? I do wonder how long will this last?

Now the other side is beginning to ache, and pinch like the other did before the injection. I know I have to get this one done next month or December latest.

It will be nice to have it feeling good by the time my Granddaughter is bon in December.

3 Weeks Post #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

I’ve had a discussion with my MiCats Doctor, and we have to officially give the steroid at least 4 weeks to work, before I can say it hasn’t worked.

But in my mind I was already convinced, at 2 weeks it hadn’t worked, as I’d been using ibuprofen gel, and I was back on the splints too.

Now I’m at 3 Weeks the nagging pain seems to have settled. Though holding my walking stick, or picking up cups still ache the hand, but a least it’s not that fiery hot pain.

If it doesn’t work:

I have only one pain relieving option left open to me and that’s surgery. Though with a hip replacement looming, the Doctor feels that has to come first. So delaying as much as possible is my only option.

Also what if surgery makes me worse? I lose strength? It’s not like my hip surgeries have been immensely successful over the last decade. It’s only now I’m seeing some success, with more to come. So really it’s not a viable option.

But on the flip side it’s only going to get worse, harder to use, and lose strength anyway, and the need to wear splints. It’s a no win situation.

Family wise I don’t think they can cope with more surgery either, and is it really fair to put them through more, when I know the other hip replacement is around the corner anyway??

And you know what’s worse? I know I have to do the other hand, it’s already getting worse, since I got this hand done. Can I really face that awful pain, and almost passing out again? Not sure I can yet!

Week 2 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

It’s been two weeks, and after the vast improvement from the first 4 days, it’s now on an even keel. Though I’d say it’s only slightly better than before the injection.

I’ve been doing some hand exercises to help mobilise it, an I’ve been doing everyday chores too. Washing up is still a painful affair, and opening jars, holding cups are painful at times, but not all the time.

I definitely had hoped this would of been improved. But I can type with my thumb now, and hold my phone. So some plus points some negative points. I can even put my phone charger in the phone hole, this was immensely painful before, so I’m glad it is improved.

But it still cracks, grinds and it’s audible, ( ie others can hear it too)

Complete with dull aches and throbbing, so I’m not sure this has worked entirely. The grinding is what concerns me the most though.

Made an #ehlersdanlossyndrome bracelet though, and it felt good to do it, couldn’t make loads due to aching, but I’m glad I did a few.

Buy Here

Week 1 #SteroidInjection

Archive, Arthritis, Health, Hips, Hypermobility

Day 5

I did my first use of the walking stick and walk around some shops, but it didn’t last long as the hand ached, and I was extremely tired too. But I did manage to use a knife this time, so it’s improving, but feels like before I had the injection.

I think my tiredness is from the injection, as I do remember this from hip ones too. But I managed a day without crying at least!!

Day 6

I’m attempting to wash up, but it still gets that electric shock pain when you try and hold cups or plates to put them on the drainer. But pain has eased in resting phase so that is a bonus.

Woke up with a twitching eye though, done it for hours and hours. Side effect?

Managed to wash my hair, but the back of the hand was throbbing a lot with the movement.

Week One
It’s been a whole week, and although it’s obviously improved from the actual injection pain. It’s not improved from the burning bone on bone pain, so I’m wondering if it’s even worked?? I guess I can’t tell them until it’s been 6 weeks, as that is what they said.

The MCP joints of the first two fingers are still swelling and sore as well.

So I’m left to debating the future of what to do next.

I will keep making notes so I can at least tell them how I am feeling, and if any side effects?

At least I’ve managed to get out of the house twice since the injection, and I’ve used my walking stick reasonably ok, though splint very very much needed. And thank goodness for hot water bottles, and ibuprofen gel to also help get me through the week, with occasional Tramadol or Cocodamol when it’s been particularly bad.

CMC joint steroid injection

Archive, Arthritis

So today is the day, I get my steroid injection in my left (worse hand) with a view to getting the right hand done within 3 months. Opted for this instead of both together, as right hand is slightly better, so I’m waiting for it to get worse.

So what are steroid injections and where do you get them?

Steroid injections can be used to treat some problems in the arm and hand. These can include trigger fingers, tendonitis, carpal tunnel syndrome, arthritis, tennis elbow and rotator cuff tendonitis. These injections usually contain cortisone and a numbing medicine.

Mine is the CMC joint as seen below.

Cortisone is the steroid normally produced by your body, and it is a powerful anti-inflammatory. Corticosteroids tend to shrink, thin and slow things down. These steroids are different from anabolic steroids, which have been abused by athletes to build muscle and enhance performance.

I get mine in my CMC joint, which is the base of the thumb. And usually done under ultrasound for precision at MiCats. However some GP surgeries also carry them out without the ultrasound.

What happens afterwards?

The injection should take effect within a few days, and the benefits can last for many weeks or months; however, results are not the same for everyone or every problem. For some conditions, one injection solves the problem. For others, several injections may be required. There is no set rule as to how many injections a person can get. Your doctor might limit the number of injections because repeated cortisone can damage tendons and/or cartilage.

Side effects?

The most common side effect of steroid injections is known as a “flare.” This pain is felt for one or two days after the injection. It can be treated with ice and by resting the area injected.

Other side effects might include:

  • A rise in blood sugar level for diabetic patients for about five days
  • Thinning of the skin
  • “Lightening” of the skin at injection site (more common in patients with dark skin)
  • Weakening of tendons, making them more likely to rupture
  • Allergic reactions (rare)

One of the rare but more serious problems is an infection, especially if the injection was given into a joint. If you notice redness, extreme pain or heat at the injection site, or if you have a fever greater than 101° after an injection, you should call your doctor.

Hoping to get similar results as last year, I know it will increase pain for up to a week, so I’m well prepared. So fingers crossed it all goes well.

OMG that was actually horrendous, way way way more painful to previous ones, the sharpness of the needle I expected. But the joint space was really tight, and small. Having the steroid (kenalog) put in, I went hot, faint and sick all at once. I even nearly cried. So unlike me.

And the pressure was worse than just the crushing. It felt like it was going to explode!! Wow that was awful. I had to lie down for a minute or two. Thankfully it passes pretty quickly though.

Home resting with splint on, and little pillow to help rest it.

Week 35 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

A quick relaxing break away before it’s all change and our youngest daughter paves her own path in life, when she starts university once we are home. So this week away is our last family holiday. So clinging onto the last second while we can.

So first aboard holiday with my hip replacement, I can honestly say I had envisioned that I would be skipping off into the sunset. And reality is, I’m still taking my walking stick, taking tramadol and ibuprofen, my splints and compression gloves. So there’s no rest or break away from health issues sadly.

I am armed with my sunflower lanyard for hidden disabilities, my first time ever using one for the airport.

Though with a splint on my hand and walking stick, I’m not sure it’s hidden!!

It helped with the security queue, though not mentioned I was ushered into a faster line, very professional. Once there though I was put into the x-ray machine is it? Then patted down, then with the wand all over, yes hip did bleep. I wore leggings so it would be easier to see that it’s my hip. They removed my hand splint, and put that through the machine, as well as my walking stick. Extremely thorough!!

Flight went ok, nothing to report, except I knew it would ache and it did, so plenty of fluids to help combat that, and moving the leg to prevent stiffness.

I will say I’m extremely disappointed that so many people will push in, shove and rush past me to get ahead. I was squeezed into a chair arm rest and this was the result.

The rush to get a seat on the bus was hilarious, and so obviously I’m slower,so I had to stand, complete with full death grip on pole and walking stick!!

But finally we arrived, middle of the night so it was a quick brew and water to drink then bed. Shattered.

But I’m determined to enjoy myself and kickback and forget my worries, if only for a week.

Catch you laters my lovelies.

Week 34 post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s been a weird old summer holidays, we’ve had a lot to do especially in the month of August. So fitness, physio has taken a back seat of late.

But Tuesday saw me heading off to physio at the hospital. Where after over two weeks from doing any physio at home, it was a killer workout.

We did the usual

  • Stationary bike level 2 x 5mins
  • Ball squeeze hip bridges x 20reps
  • Single leg hip bridges x 15reps
  • Single leg raise ankle weighted x 15reps
  • Prone knee raise ankle weighted x 15reps
  • Kettle bell squats x 15reps
  • Walking lunges with dumbbells x 20reps
  • Duck walking green banded x 20reps

Walked, well waddled out thinking OMG my groin is killing me, I do hope this pain settles down, it feels exactly like before surgery!! Physio thinks it may be osteophytes or loose bone spurs, so need to keep an eye on this pain, and see what activities cause it most.

photo credit

Then Wednesday I had to see the council about a blue badge, as I feel I benefit a lot from one, parking closer at times is a godsend. So armed with letters, splints, compression gloves and prescriptions (as they ask for them all) answering questions, and hoping for a good outcome. But it’s a 4 week wait to find out. I’d say fingers crossed but that’s not going to happen with my Hands!! Not feeling hopeful though.

photo credit

Thursday it’s MiCats for my hands, been waiting for this appointment since April. I’m hoping but also dreading it, as I’d like the steroid injections, but I know they hurt a lot too.

Gutted the ultrasound machine wasn’t available, so my earliest possible date for a steroid injection is 23rd September, I think I’m just doing the left hand first (walking stick hand) and have an open appointment for 3 months so I can return for the right hand.