5 weeks to go….. #THR

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

This week I have been faithfully doing physio, and I’ve learnt a few things from it.

1, my left (to be replaced) leg hates Hip Extension forward. It feels immensely heavy to lift, not sure why?

2, I’m still struggling with Clam raises, or Hip openers. It aches my left side glute, again it feels extra tight and resistant.

3, even this Heel slide (the easiest exercise) I’m struggling with on the left side too. The leg feels so heavy in comparison and it takes all my efforts to get them completed.

So I’m at a loss on how to improve these beforehand, as I’ve been doing these consistently this whole year, with zero improvement. I’m hoping once replaced, the action will improve.

Sidenote: since the weather has turned cold, and damp. I’ve noticed that my back is stiffer, I feel like a plank of wood. No flexibility in this Ehlers Danlos girl, and pain has increased. Maybe this is why I feel physio has gotten worse?? Hot water bottle is back out full time, and ibuprofen gel.

These are still available, on batch 4 at the moment and will end 31st October, ship 11th November. buy here

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54 weeks post #HipArthroscopy and I have good news

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Since holiday I’ve done zip, zlich, nada for a few days, because I got super sick as soon as I was home in the UK. I caught laryngitis and needed antibiotics, and lots and lots of rest.

While in this state, I’ve done a lot of resting as well as getting back into a routine, physio is a no no so far. But now it’s easing off, I’m hoping to return to it.

Instead we did do a walk, and attempt at #couch25k though we repeated week 3 run 1 as realistically that’s our actual level. Ended up being really good mentally, but physically it’s killed the hip (predictable) and following a bath to ease pains, I tried to lift my leg up to get dressed, and the hip feels like it’s coming out of joint?? It’s awful, painful and I’m grateful for my bathroom perch!!

Weather has made my hands so sore again, it was nice to have the week relief.

But my main news is….. I HAVE A DATE!! And it’s so soon. It’s exactly 8 weeks today, 29th November so a new hip for Christmas.

Thank goodness I got poorly now, rather than later. Now to plan, prepare and organise my house. It’s all too real now, it’s actually happening!! Woohoo

1yr #Hipaversary #hiparthroscopy

Archive, Challenges, Randoms, Miscellaneous, Family Adventures, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Travel

It’s finally been my 1year Anniversary since my last surgery, my Hip Arthroscopic surgery. And to celebrate it, we did it in style.

First off we visited #50cent for his 15th Anniversary Get Rich Or Die Trying Tour, this is immense, I loved every single second of it. We had Lethal Bizzle first up, then 50cent and GUnit. It was like the 00’s had come alive once again. And better yet, we knew once we got home and slept, we were off on Holiday!!

So off we flew the next day in the afternoon to #Rhodes hip obviously hates flying but I was well prepared for this.

To arrive here in the gorgeous sunshine, I knew it was the right decision to go.

This one wonderful week away, we visited as many sites as we could. Drove around the island and swam nearly everyday. I ate better here than I ever have done on a Spanish island (easier for veggie food too) the warmth honestly did my hip some good, as well as my hands. Though ankles continued to swell each day if we had been on our feet alot. But painwise the warm dry heat does absolute magic to them!! This is why pensioners move aboard.

We did a fair amount of steps, we had to stop every few so I could adjust hip, take stock and breathe into it. But boy oh boy was I rewarded. Going down was always my worse part, but I did it and so did my dodgy ole hip that’s going to be replaced. It’s like its final adventure with me. I get sad thinking that soon it won’t be with me, but I know it’s daft really. Anyone else feel a bit sad??

So I’ve made it to 1yr and it’s been a huge learning curve, my fitness has improved greatly, the muscles around the hip are stronger, I trust myself more which was a huge mental issue for many years. And all because I took physio seriously and did it religiously. I also stopped trying to race ahead and do more than my hip wanted to do, I kept to the basics and finally got results. Granted it never stopped my pain or limitations of the hip, but I’m sure that once it’s replaced, it will greatly improve my recovery period.

And better yet, I didn’t put on the usual 5lbs + that I usually do on holiday!! We ate more like at home, less carbs, more protein and salads and I came home 1lb heavier, which has already gone 3 days after getting home.

Obviously I got off the plane and I couldn’t speak, lost my voice. Maybe air con had something to do with it. The day after being home I had to see the doctor, as I felt super poorly. And it’s laryngitis so on antibiotics and feeling very sorry for myself right now. But what a week we had!!!!

Familiar aches are back… 50 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Charting my journey as its nearly a whole year since my Hip Arthroscopy Surgery, at the time I knew I was potentially only saving myself an extra year or so from Hip replacement. However it ended up a lot sooner than I imagined, meaning I sought a steroid injection to stabilise the joint back in June, and now already I’m in the process of being on the waiting list to replace it.

It’s been a good year however, I’ve improved all the muscles, and strength which was important to me, and I firmly believe it will give me a better foundation to build on, following the replacement.

It’s now 10 weeks since the Hip steroid and that pains been back a far while, and no surprise if I’m honest. It lasted at best 4 weeks. A bloody glorious 4 weeks too.

My CMC joint steroid was 9 weeks ago and it worked immediately, and completely too. And just today at 9 weeks, I’m starting to feel the bone crushing sensation on the joint. So hard to explain it really, just feels like a constant vice on the joint. Well that’s back, I’m thinking a turn in weather temperature brought that back into my life.

This poor hand never catches a break, as recently I fell over and created a TFCC tear in the same hand. So lots of bracing, ibuprofen and rest for now. Thankfully that pain which was intense, has subsided into an ache, and overall weakness.

I confess in the time since I’ve fell which was 2 weeks ago tomorrow, I haven’t done any #couch25k #couchto5k as I was too sore and swollen from falling. Then we did Blackpool a week later, and hip has been ­čĺ» bitch since. So sharp, so stabby, even while sitting down, or lying down, that the thought of standing on it has not appealed in the slightest.

Next week it’s 3d CT Scan time, it feels like things are actually happening, and there’s an end to this pain….

I have a date…

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Well kind of, it’s a pre op date, and hip workshop date and they are far sooner than I ever imagined. It’s for the 15th November this year!!

I believe before this though, I need the 3d CT scan and that sending off to Switzerland to be made from a 3d printed model. So it’s all go go go.

Weirdly I assumed I’d have at least 5mths to 1yr for this process, so maybe that registrar really meant 4mths for the whole process?

I got this date 4 days after my appointment at the ROH which blew me away. Usually I don’t hear from them for 3mths before any dates.

So it’s pre op, so ECG and height and weight checks, probably bloods too. Hoping by then I can confirm I have RA or tell them it’s just OA (RA rheumatoid arthritis, OA osteoarthritis) as this will affect medication allowed and treatment plans.

The hip workshop I’m not entirely convinced I need, this isn’t my first hip rodeo. My couch allows a seat at 90degrees (why we bought it) my bed is high too. I already have perches, bath boards, crutches and grabber. But I will go as required and see what they say.

I’m 49 weeks post hip arthroscopy and embarking on a new journey. It’s been 9 and 8 weeks since steroid injections in hip and CMC joint. And since then I’ve fallen over onto my outstretched hand (left one) I use with a walking stick. This seriously hurts, landed heavily on my left knee, which hurt more at the time, but now it’s 3 days old it’s only tender to touch. Unlike wrist, which feels worse now.

So I’m feeling a tad stupid for falling and hurting myself, I can only hope I fix soon and can use my walking stick on Friday for Blackpool’s big switch on!!

And so it begins…..

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Here I am yesterday, at the hospital awaiting to find out my destiny. Nervous, sick with anxiety, yet excited!?! It all starts with this appointment.

Weird and eerily quiet, so unlike ROH we are seen quite quickly for there, about 40mins after my actual appointment time. Sadly no specific surgeon but a pleasant registrar no less.

Not familiar with symbios he gains an audience with another consultant that works more directly with my Surgeon to help explain the process. But he’s doesn’t do it well, he ignored my husband, who let’s face it needs the information more, as he’s living through it. And answered more like a politician than surgeon.

But not matter, we walk away being added to the waiting list and being referred for the 3D CT scan. How long this time frame is, anyone’s guess. Seen as he didn’t really answer. We got 4mths out of him, but 4 months to completion or 4mths to scan is unsure??

So moving forwards from that, it’s time to reflect on what’s ahead, read more, research more. Thankfully on Facebook there are countless supportive friends going through or been through the same process to help guide me.

Today was physio and I honestly walked in thinking we would revise the program in preparation for surgery, but instead she’s too happy with my progress and strength that as long as I do it at home, I’m fit enough already and muscles are strong enough to keep implant stable. So we’ve left it as an open appointment, to come back as soon as I can after surgery.

Bit disappointed in that I’ve left again, but I understand why. I do always do my at home physio and workouts, I am religious in doing it, so there isn’t a need to go in and show her each week.

Overall this year I’ve started to be unaided though it’s incredibly painful at times and not for long. It’s still a win.

I’ve also lost 12lbs since Jan. We are eating better, making better choices overall. And making so much more of an effort with physio, exercise and weights in general. So my physio is right, I’m in a much fitter stronger place than I was facing my Arthroscopy surgery back last Sept.

And if you facing helping me with buying a tragically hip tee, you can find the link here

And similar if you are a fellow zebra with ehlers danlos syndrome like me and my daughter, she designed a tee here she needs to sell 4 to start the campagin off.

*Disclaimer* we get a small commission from every one sold *

Day 7 + 8 post #intra-articular #steroid injection in Hip.

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

It’s been a week, and Wow that time has flown by!!

Today it’s a MiCats appointment for my hand, and I honestly expected nothing, except maybe a referral to a rheumatologist. Which did happen, hopefully appointment in 6-9 weeks time, but also I was offered the #steroid injection into the CMC joint today. I said yes, though nervous. Nicer to get it out of the way.

The doctor was lovely, she confirmed again there is no Rheumatoid Factor but high levels of inflammation. And the DIP joints ( finger top knuckles) as well as basal thumb joint all show wear and tear indications it’s Arthritis, or my Ehlers Danlos Syndrome. Something is happening, so it’s a process of elimination now.

Injection did smart a bit, once again I had Marcaine, Lidocaine and Kenalog injection. I’m happy as so far it’s just been hair loss as a side effect.

This is in the evening, so looks ok. Super stiff and achy though. Hurts to use, so having 24hours off. Been instructed to brace it as well.

Hand swelled up too, so I’ve removed my rings just in case.

Hip wise I confess it’s been nagging, bit grumbly and not quite right. But it’s nearly that time of the month, which usually sends ALL my joints haywire and extra painful too. So it could be that. That groin pain has gone again though so that’s all good.

Day 8 it’s mad dash packing day, why do I leave it until the last minute?? Only popping to barmouth in a cottage with family, but should be a giggle. 2 nights 3 days away, hope this weather lasts!! Packing one handed is pretty difficult I might add.

Woke up with a super stiff right shoulder and neck, not entirely sure why though? Going to need hot water bottles and ibuprofen today. Hand feels pretty good, just braced to limit its range for now.

Hopefully all will be ace while we are away, and I will be pain free too. Have a lovely weekend my lovelies xx

Steroid injection day 5 + 6

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

Pleased to say all is quiet on the hip front, although clearly I did too much yesterday as my operated leg quad muscle was aching all day on day 5. So that prompted a total lower body rest. Boring but I feel necessary, as I have Physio the following day anyways at the Hospital.

I chose to do free weights so I’d at least got a workout done, making me feel productive and it helps mentally as well as physically. And not forgetting to sunbathe, seriously can’t believe the luck we’ve been having with all this glorious sunshine and warmth.

My new appointment for my 6week post injection date came through, it’s for August 21st. Here I think I’ll push for more answers on scar tissue and if there’s any point in delaying a hip replacement now?!

Day 6 saw me at the hospital for physiotherapy, so I can ask advice and let her assess if there’s any movement improvement, better range or stamina. As it’s so hard to gage it yourself. Awoke with awful Glute pain, not sure why though? Seems weird it was the Quad muscle, now it’s the opposite Glute muscle?

Front leg raise

Then front leg raise to abduction

Football between knees hip bridges, then into sitting up and hip adduction.

Prone lying on front, bend knee and raise.

All these actually eased off some muscle aches. But it did hurt the groin so I’m having to rest up and increase painkillers. Bored though, so I think I best watch the football to entertain me.

Feeling Lost and Frustrated 34 weeks Hip Arthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

We’ve had some amazing days out, some glorious weather and family adventures, and I’m truly grateful. I really am.

But one thing always brings me down, and that is PAIN!! It’s limiting, it’s depressing, and it’s always always there!!

If it’s not my Hand it’s my Hip, or Lower back. The pain that blurs the edges of all the good that you do, the pain that awakens you from sleep, the pain you can’t escape. But what has kept me going is knowing that my steroid injection should be soon.

But I’ve learnt that although I was penciled in for end of May, it’s now looking more like mid to end of June. Which has admittedly took the wind out of my sails. I’m so frustrated by the waiting, and wondering, it’s agony.

It’s something I can’t change, and though I feel a little lost as to what to do. My husband is right I should just forget it, keep on, keep going, and don’t get stuck or hung up on this date. It will happen when it does.

So for now, it’s continue as often as I can with physio at home to help ease pains and stability, while understanding that I’m not a failure if there’s days I can’t do things (hardest thing to realise) rest days are important too.

Small progress 31 weeks post #HipArthroscopy

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4b5c23acbc31a97a79615e054ca019d6-road-to-recovery-bpd-recovery

I feel like I’ve not shared anything positive for a while, soooooo today is the day!!

It’s not huge progress but I’m finally standing more straight, I had/have a huge anterior pelvic tilt, and these hip replacement physio exercises are actually correcting that. See the exercises┬áhere

images (5)

So this week I’ve done these ones Monday, Wednesday, Friday. And on Tuesday and Thursday I’ve done weights with my arms see┬áhere

But with this said, I’ve not left the house except for physio appointment, so hip isn’t under any walking stress, as that seems to be it’s worst activity lately. I know it’s only 1 week since it last slipped, but it feels better being conservative with my activities and certainly pain level has reduced.

That however can not be said for my thumb joint. Blood tests are back, but being retested, as inflammation markers were detected in CRP and ESR but no Rheumatoid Factor. Leading GP to believe it may be Seronegative rheumatoid arthritis. But being rechecked just in case. Not sure what this means for the future, it’s pretty scary honestly. I always put my sore joints down to Osteoarthritis or Ehlers Danlos Syndrome. Hopefully I’ll know more by next week.

Steroid injection is provisionally booked for end of May, so that’s not long now at least. Though the medical secretary scared me when she said, you have been spoken too because it’s under a local!! Why did I agree to this? I read my blog posts from 2016 and I’ve scared myself again. But I do remember recovering quicker because I did it this way. You can read them┬áhere