Here I am yesterday, at the hospital awaiting to find out my destiny. Nervous, sick with anxiety, yet excited!?! It all starts with this appointment.
Weird and eerily quiet, so unlike ROH we are seen quite quickly for there, about 40mins after my actual appointment time. Sadly no specific surgeon but a pleasant registrar no less.
Not familiar with symbios he gains an audience with another consultant that works more directly with my Surgeon to help explain the process. But he’s doesn’t do it well, he ignored my husband, who let’s face it needs the information more, as he’s living through it. And answered more like a politician than surgeon.
But not matter, we walk away being added to the waiting list and being referred for the 3D CT scan. How long this time frame is, anyone’s guess. Seen as he didn’t really answer. We got 4mths out of him, but 4 months to completion or 4mths to scan is unsure??
So moving forwards from that, it’s time to reflect on what’s ahead, read more, research more. Thankfully on Facebook there are countless supportive friends going through or been through the same process to help guide me.
Today was physio and I honestly walked in thinking we would revise the program in preparation for surgery, but instead she’s too happy with my progress and strength that as long as I do it at home, I’m fit enough already and muscles are strong enough to keep implant stable. So we’ve left it as an open appointment, to come back as soon as I can after surgery.
Bit disappointed in that I’ve left again, but I understand why. I do always do my at home physio and workouts, I am religious in doing it, so there isn’t a need to go in and show her each week.
Overall this year I’ve started to be unaided though it’s incredibly painful at times and not for long. It’s still a win.
I’ve also lost 12lbs since Jan. We are eating better, making better choices overall. And making so much more of an effort with physio, exercise and weights in general. So my physio is right, I’m in a much fitter stronger place than I was facing my Arthroscopy surgery back last Sept.
And if you facing helping me with buying a tragically hip tee, you can find the link here
And similar if you are a fellow zebra with ehlers danlos syndrome like me and my daughter, she designed a tee here she needs to sell 4 to start the campagin off.
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