21 weeks post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

After all the excitement of orbital on Friday 31st may, I’ve done little in moving, due to massive increase of pains. So much so I’d had to take tramadol on that Friday.

So the whole weekend was catching up with #Terminator 1 and 2 movies, and various TV shows too. It was a tad boring, but very very necessary to allow pains to subside.

This week has seen me go back to basics, more to train the mind to muscle memory, so no weights, no resistance. Just purely focusing the mind on the muscle and contracting it, ensuring they are engaging properly, and not having other muscles (stronger ones from taking over the job) I find my quads do this over my glutes.

  • Glute squeezes 20reps
  • Quad (pull knee caps up) 20reps
  • Heel Slide 20reps
  • Short Arc quad 20reps
  • Hip abduction 20reps
  • Clam side drop downs 20reps
  • Clam side raise 20reps (finally I’m ok ish lying on operated side)
  • Hip bridge (really squeezing glutes, so quads don’t take over) 20reps
  • Dead bugs 20reps
  • Long arc quad 20reps
  • Ball squeezes between ankles 20reps
  • Ball squeezes between knees 20reps

Felt good to get thing moving and lubricated. I’m seeing improvements on the operated leg, though the weakness the opposite hip has is apparent!! So is that bone or muscle? Not sure, there’s no pain just utter weakness and limitations.

Really focusing on each muscle during the exercise, made it easier to contract the muscle, and hold for longer, tighter. So this week I’m definitely putting this into practice more. Even going to try it with the upper body too.

Had a physio appointment this week which was in a previous post here. It was a pure killer one too. The ache and stiffness afterwards was no joke!!

So Wednesday my official 21 weeks post op day is rest day. And that means #terminator3 never seen before. I know it’s pants, but I don’t care I’m watching it. Awful wet weather outside, so no walking planned either. It’s hot water bottles and rest rest rest.

Thursday I’m still aching a fair bit (groin and lower back especially), so resting the lower half and just doing exercises for the upper body. No weights just contracting the muscle and moving them in isolation. Or use a towel to grip and tighten (really helps) I use a towel, as it makes me focus easier on contracting the muscles.

  • Tricep overhead 20 reps
  • Tricep kickback 20 reps
  • Bicep curl 20 reps
  • Lateral raise 20 reps
  • Shoulder press 20 reps

Slow and steady wins the race at this point, keeping it simple and small for now. Not using weights helps with the thumbs and fingers at the moment, which are predictably flaring up.

I’m resorting to using ibuprofen gel 4 times a day, using compression gloves nightly, and splints during the day. ( Night time is when it’s horrendously bad, like being in a vice grips!!) But I have rung the GP so I’m going to enquire on regular blood tests, and better medication too.

Friday it’s my Wedding Anniversary 18yrs married, 20years together. I can honestly say it’s flown by so fast, it’s scary. There’s not a day he hasn’t made me giggle. I would not be without my biggest champion.

And we are off on Saturday to hopefully sunny Barmouth, probably will rain. But no matter, a night away with family to bond, relax and change of scenery too. So Friday was prepping our clothes, packing essentials, and doing good to take for the journey. Sadly tramadol will be also coming along with me too.

Advertisements

20 weeks post #HipReplacement

Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Time to share again what I’ve learnt or experienced over this last week. Well I’ve learnt even with a walking stick I simply can’t stand, it hurts my back, my thigh, ankles and even the ball of my feet swelled up!!

So a day out is still equalling a few days rest, so not where I’d like to be in terms of daily living.

But I did manage to paint my toes for the first time since my op. And finally my big toe nails have grown back, for some reason I lose my big toe nails after surgery?

Ankles are often swollen now, especially after days out, so I need to see the GP again. As even my ball of my foot is swelling up. God knows why.

Scar is looking pretty decent, and I only remember it when it stings, aches after a long day. It’s still so numb around 3inches side to side all down the length of it. But it’s early days yet, it may come back.

In between days of doing things out and about, and rest days, I try to squeeze in at least 2 sessions of physio at home, using my step and ankle weights.

And in doing both legs in my physio, my left leg (non replaced hip) is painfree but so much weaker than the replaced hip. Hoping by regularly doing both legs now it will catch up at bit.

Day 129 post #hipreplacement Pedal Fest 2019

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

So here it is, never heard of it before, but hubby got tickets so why not. We planned on the Saturday at first, but weather was going to be better for Sunday, so that’s the day we planned.

Which honestly helped, as the hip needed some recovery days between this and that physio session. Man that ached my abducters and glutes so much!!

But if you lived closer you could easily do both days. As it’s Free!! Crazy right, especially when you see what’s on offer too….

It’s meant to be a family fun weekend and located in Sherwood Pines Forest. There they have live music, bike demo, bike stunt shows to name but a few things on offer.

They also offer things especially for little ones, games and activities with competitions and even freebies.

And of course if you fancy trying out some bikes, such as Raleigh, Haibike and Lapierre then all that’s needed is your photo id, get a wristband and demo bikes away.

I’d like to ride a bike again, but I’m not convinced I’m entirely ready yet. A simple level 3 resistance on a stationary bike is hard enough, for 5 mins, so I’m unsure. But I believe hubby is going to demo some bikes if we are early enough to do so. Maybe he could try out some electric bikes for me.

Hubby signed up to try some demo bikes.

We got some bunny holding in. Saw chickens, tarantula, snails, and tortoise too.

We watched #Fumbledore kids entertainer while Mr Moon rode the electric bike. I found Fumbledore was hilarious.

Ted Robbins comedian doing Man Vs Food which was good sports! Loved it .

Grove Street gave us songs to bop along too, and sing along with. Great atmosphere.

The famous Gold Burner Raleigh!!

Savage Skills entertainment, Alec and Tom riding bikes and jumping, ramps and flips.

Ted Robbins was a brilliant host, although he had no voice at all.

And lastly we heard Christina And Harry singing the last hour out. But I was sadly work out by this point, hip aching beyond belief, so I needed to get home, and a decent seat.

After today I feel that although the hip is improving, it’s still far from normal. I still get pains, and stiffness, and I feel unable to stand for long. I have a long way to go to be fixed.

15 weeks post #HipReplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Has the weather turned for you? It sure has here, sadly with that comes the ever present extra aches, my hands are becoming clicky and stiff once again. (The reprieve wasn’t long enough)

The hip is achy and not feeling so painfree, but as every other joint hurts I know it’s just that time it’s all meant to hurt again. So it’s definitely shoots my happiness in the foot. But I need to make the most of it, as the weather is never going to be permanently dry and warm, mores the pity!!

I still can’t do weights, but as joints hurt, I have to do some physio to engage the muscles and stop them from dislocating.

Can’t hold weights, but I can pull the theraband resistance bands, that o have tied to my door. These are stabilizer exercises for the shoulders, but they help my wrists and elbows too.

Finished off with rolling a ball in a circle to the right, then circle to the left, then push the ball up and down the wall, do this both shoulders.

So it’s week 15 and though I have had rapid recovery as predicted. I’m still walking with a walking stick, I have numb areas, (seriously cant feel a thing!) Niggles of pain in groin occasionally, and thigh aches. Knee pain occurs with physio but quickly disappears. And the whole thigh still swells up.

But upon reading medical journals, it seems it’s not unusual for the recovery to keep going albeit at a slower rate for the first 2 years. So it seems frustrating at times, but really it is early days.

And here ends my daily updates, as now the progress is more minimal, and things are just going to be repeated until it gets fully better. I’m thrilled that I never once felt alone in this recovery, so thank you so much.

Day 96 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Last night I hit a victory!! On the last time I walked down the stairs, I walked like a ‘normie’ one foot one step at a time. Loving the new strength to do this. But keen not to tear it or set myself backwards.

So it’s Monday, and I’m feeling reasonable, a bit of mid thigh pain leads me to think of doing upper body exercises instead of lower body.

  • Shoulder Press 15 reps x 1
  • Bicep Curl 15 reps x 1
  • Later Raise 15 reps x 1
  • Bicep Row 15 reps x 1
  • Tricep Kickback 15 reps x 1
  • Goblet Squat 15 reps x 1 (knees weren’t happy, so not a squat persay)
  • Kettle bell Swing 15 reps x 1 (again knees not loving bending even a bit)
  • Chest Press 15 reps x 1
  • Butterfly Raise 15 reps x 1
  • Tricep Overhead 15 reps x 1

I feel like I could of done more, but today has been the first day my shoulders and hands haven’t hurt a lot, so I don’t want to change that.

Not sure why knees hurt, could be from doing the stairs yesterday. So again I’m not keen on doing too much to then make them an issue.

Day 95 Sunday Funday

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

At weekends we are normally at our busiest with visiting family members, so there’s never a chance of physio. Although I do class climbing their stairs as physio. As I don’t have stairs at home to practice on like others do.

My hands have been feeling a bit calmer since Saturday morning, is it from weather or taking ibuprofen religiously? Not sure yet, either way it’s definitely welcomed.

Using ankle weights certainly kicked my butt, but huge improvement from how I was before to how I am now, so that’s encouraging. But I am waddling all the time if I walk unaided. Aarrrgggghhh super frustrating. Am I waddling from this hip, or maybe other one? Must ask physio on Thursday.

Anyone else thinking their weekend just flies by in a blink? I know I do. I feel like it’s over in a split second and boom its Monday all over again!!

I’m glad I use weekends as my main rest days, as I truly appreciate them, and it’s easier to just enjoy being with family, rather than trying so hard to squeeze in physio, and being exhausted.

Day 93 #hipreplacement #EhlersDanlosSyndrome

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

After receiving a comment from a fellow blogger (find them here) they suggested I should explain more about #EhlersDanlosSyndrome and honestly I should.

What is Eds?

So Ehlers-Danlos syndromes (EDS) is a group of 13 individual genetic conditions, all of which affect the body’s connective tissue.This Connective tissue lies between other tissues and organs like a glue, keeping these separate whilst connecting them, this glue is tasked with holding everything in place and providing support.

In EDS, there is a gene mutation (like an X Man, the nerd in me loves this!!) that causes a certain kind of connective tissue, what kind will depend on the type of EDS (which type out of 13) (Hypermobile Eds, Hypermobility spectrum disorders, Classical Eds, Vascular Eds. They all fit under these umbrella labels)

This gene mutation is usually a form of collagen, this causes it to be fragile and stretchy. This stretchiness can sometimes be seen in the skin of someone with EDS (NOT ME) My skin has never stretched like that, but I scar and bruise incredibly easy. Individuals with the condition may also be able to extend their joints further than is usual (This is ME) this is known as being hypermobile, bendy or double-jointed. As collagen is present throughout the body, Everyone’s bodies, people with EDS tend to experience a broad range of symptoms, most of them less visible than the skin and joint differences. These are complex syndromes affecting many systems of the body at once, this makes it hard to connect and diagnose, despite this EDS is often an invisible disability.

Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person, even in the same type of EDS and within the same family.

Now it’s important to remember my #EDS isn’t the same as another #EDS as we are all individuals, and with that said it’s also why it’s incredibly hard to diagnose. We have a collection of symptoms, that are easily explained away and not connected.

I mean who thinks, velvet soft skin is connected to a thundering heartbeat because you stood up? So they came up with a series of movements to test for it.

The old way to classify Ehlers Danlos Syndrome was to use the Beighton Scale. The Beighton score is a set of manoeuvres used to judge if there is evidence of joint hypermobility. There are 9 points, and a score of 4 or more is considered a sign of there likely being generalised joint hypermobility present.

Now at the time of diagnosis in my early 30s I scored 8 of 9. Now there’s a more comprehensive way of scoring, found here Now I’m older and a lot more stiffer, so flexible I am not anymore. Therefore I would fail this tests above, but that doesn’t mean I don’t have it.

But these new ways of scoring takes that into account. So if you could touch the floor with flat hands without bending legs, bit no longer can you still score a point.

This helps the reclassification of certain symptoms, so I was diagnosed with EDS type 3 which is the Hypermobility type. Now it’s known as hEds Hypermobility Ehlers Danlos.

How does it affect you?

How does it affect me? Good question that I’m not entirely sure of myself. I know I feel pain all the time, from holding my own skeleton together and in the correct position. It’s so easy for my shoulders and hands to go beyond their natural range. Now I personally find this extra lax during my menstrual cycle, it’s like every joint I have comes out of joint, super super easy. It’s due to hormones creating the environment for this to happen around the cycle.

But as I said earlier it affects how I heal, so bones take longer to knit together, but likewise I’ll produce more scar tissue inside healing sites. Scars are often keloid or stretched and wrinkly. I bruise from being barely touched at times.

My three biggest ways I’m personally affected is the early onset of Osteoarthritis, my hip was grade 4, my mobility is awful, but I use to do gymnastics and horse ride. Now I can barely walk unaided. My hands are stiff and painful as they too have Osteoarthritis too.

My teeth are weak and crumbling, and dental visits are scary. For many years I have cried and complained that the anaesthetic doesn’t work, but no one listened to me, and then a few years ago they found it was an EDS symptom!! I have dentist now that knows about this and adjusts accordingly.

Finally how does it affect me, in a major way it screws up painrelief, I’m in pain but the meds don’t work. So fentanyl strongest drug out there? Nah doesn’t work, worst way to find out was when I had my first big op, it was a triple pelvic osteotomies and valgus femur lengthening. I was given Epidural (this does NOT work either) and Fentanyl, worst week of my life. But some gps out there, think you are attention seeking or drug dependant. You need these meds to function, to complete normal daily living, not to get high!

Since my first surgery, we’ve adjusted it to spinal, and morphine pump that I control. Now surgeries haven’t been as bad since thankfully, as I’ve had another 9. I find natural morphine better for me than synthetic versions of it that don’t work.

Now I’ve prattled on long enough, I best let you go. Hopefully by now you’ve learnt a bit more about Ehlers Danlos Syndrome. I’m still learning myself.

Day 92 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s been a week since I saw the GP about my hands, and I’ll be honest the increased ibuprofen and ibuprofen gel hasn’t really made that much of a difference painwise. But maybe a week is too early to tell? So I will give it longer.

Wearing the splints help get things done but are cumbersome and irritating. But wearing the gloves at night are good, so that’s a win!!

Splints with weights are Interesting let’s say that. It’s hard while my hands are like this to actually hold weights, so in place of weights sometimes I use resistance bands instead.

Its not the weight itself I find difficult, more the grasp, it could be a pen at times and I simply can’t hold it. Frustrating to say the least.

So working the hip it is today, give the hands and shoulders a break. Though I’ve decided I’m staying away from any exercises that mean I have to lie on my operated side. It’s too dreadful for words.

  • Hip Flexion ankle weight 15 reps x 2
  • Hip abduction ankle weight 15 reps x 2
  • Hip extension ankle weight 15 reps x 2
  • Calf raises ankle weight 15 reps x 2
  • Heel to butt ankle weight 15 reps x 2
  • Mini squat 15 reps x 2

Not too much today, as joints are extremely lax this week. It’s the old Ehlers Danlos coming out to party, and by party I mean utter misery ball of pain.

13 weeks post #hipreplacement

Archive, Arthritis, Family Adventures, Health, Hips, Hypermobility, Hip replacement, SURGERY

Goals for this week is to keep up my red band resistance exercises, but maybe try and add some ankle weights in some exercises, such as step ups, hip abduction, extension and flexion. (as the band gets hard to use at times)

To roller my scar area, to try and awaken some nerves and break down scar tissue. The area is still NUMB as hell. I feel pressure if I press down, but the sensation of touch has gone altogether.

Had another #Geocaching adventure, I love this as it gives you a purpose to get outside and walk where you might not of thought to visit. It’s chilly, but wrapped up from the biting wind, we set off to find 1st of 3 caches, first one gives co-ordinates to the second and so on, so no treasure, just hunting the clues.

First cache above, have us numbers for the second cache below.

More numbers to add, to find the third

Oh no, cache 3 is missing (we have found it a few years ago) instead this tree had an egg in the trunk. So careful not to disturb, took photo to share with the cache owner.

Oh well had fun finding the clues, time to head back after walking in heather and weird spongey grass (adder fear was real at this point)

On the way back to the car, Mr Moon spotted on the GPS another cache close by, so we headed to this one, making it 4 in one day!!

Erm…. This wasn’t hidden, it seems someone forgot the memo. Not to worry logged we found it, and carefully hidden once again.

As much as I love all this walking, my hip still has its pain moments, and nags to go and rest. Walking is good for me, mentally especially. But physio works on the actual muscles I need waking up, so it can’t replace that for me.

I was pleased to get home and rest my aches with a hot water bottle, knee twinges and thigh pains are still real here. And I am still on a walking stick, just not strong enough to walk unaided outside.

Day 90 #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s always up and down health wise, I guess it’s the #EhlersDanlosSyndrome not really helping. But I’m pleased to say it’s not actually my hip causing any grief at the moment.

And because it’s that time of the dreaded month, every joint comes out to play. Cleaning the cooker, my shoulder decides to pop out!!

So with this is mind, I’m thinking I need to keep on going with the occupational therapists shoulder stabilizer exercises.

  • Ball on wall circle left 20 reps x 3
  • Ball on wall circle right 20 reps x 3
  • Ball on wall up + down 20 reps x 3

  • Band shoulder abduction 10 reps x 3
  • Band shoulder internal rotation 10 reps x 3
  • Band shoulder external rotation 10 reps x 3
  • Band shoulder extension 10 reps x 3

All this exercise is always to help stabilise my joints, help my muscles and tendons do the work the joint should actually do.