Day 20 it’s OT day

Archive, Arthritis, Health, Hips, Hypermobility

In the last few weeks it’s all been hips and I’ve had to take a step back from my hands. Thankfully the recent weeks has been kind to me and they’ve swelled up minimally. But I’m kinda thinking that’s due to taking dihydrocodeine?!

My worse area was the CMC joint and where they put the cannula in. But now it’s all settled down and being reasonable.

After a week it was minimal

And now it’s completely cleared up.

So today is the day to show my lovely occupational therapist how I’ve done my exercises to build up the thumbs, and lengthen the finger ligaments. The physio I’ve done for them has helped, but so did the steroid injection.

Now medication is absolutely minimum, I’m feeling the familiar aches, pains and swellings. So I need advice on how to move forward.

Advice is to make the stretches harder using an elastic band or bobble, like what MiCats told me to do back in July. Now I have better strength and alignment, it should be easier to do.

Ive also got a new splint for my DIP joint of middle finger, as it’s extending all the time. I need to wear this when I’m doing things, like my thumb splints too (see above)

So hideous, but so needed as well. Back in 6 weeks time, to monitor how well they respond. But this is one thing that will get progressively worse over time, with little we can do about it to slow or control it.

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Ninja Warrior, Weekends, And New Thoughts….

Archive, Blogger Reviews, Events, Family Adventures, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

The weekend passed in a haze of recovering from Friday, we were in the audience for #NinjaWarriorUk it was filmed in Manchester Central.

I got tickets for us to watch our favourite show, a bit like a birthday treat for our youngest daughter, to see it live. Never expected it to be as tiring as it was, but though we were knackered it was a lot of fun and an experience.

We definitely shouted ‘Beat the Wall’ a lot!!

Spotted some bees but not too many as we struggled with time sadly, and it was freezing cold this day!!

Hands swelled up and were extremely painful all weekend. This convinces me its more likely to be rheumatoid arthritis.

Hip didn’t behave either and was extremely painful, so it’s definitely time to ask to see if I can start the process of replacement. I’m over trying to wait it out, waiting for life to start, it needs to end or at least give it my all. So roll on next appointment which is Tuesday!! Woohoo. Wish me luck.

47 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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What’s been going on since we last spoke? Well I’ve been wrestling my own demons trying to make a decision, and honestly I’m no closer. I speak to fellow hippies, family and physiotherapist, and ultimately they all say it’s up to me, but I’m confused and overwhelmed.

But warm weather has returned and sadly pain hasn’t gone with the wet weather, so I know for sure now that the steroid injection has worn off, I had a glorious month, I’m just sad it wasn’t longer.

Not only has my hip steroid worn off but so too has my thumb one too, so I’m feeling like most joints and bones ache beyond belief. And the opposite thumb is flaring up too. Thank goodness for splints. Sadly for this I don’t see a rheumatologist until 9th October, so heck of a wait. Least hip is in 2 weeks time.

Because it’s all kicked off again, my physio appointment was gentle this time, lower reps, some exercises removed too, as she could see the pain some brought on. I fear I’m coming to the end of any possible improvement physio wise, as muscles are strong now, stronger than they’ve ever been. I see them again after seeing the Surgeon.

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Pleased to say I’ve completed week 4 of #couch25k #couchto5k yes it totally took 3 weeks to do the three runs, but life, flare ups and events filled my time in between. But I’m over the moon we are still on this improvement train, ankles and knees are benefiting from it. Now up to 3mins brisk walking, slight bounce to step unaided. After 3 mins it’s either breathing or piriform is that kicks in, so it’s not fully sustainable, but it’s improving. Only bad thing is, I constantly feel like my hip joint is a sword, each step is a stab!!

Making Decisions…. 45 weeks post #hiparthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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At the start of the weekend I found myself asking this…..

Question – So how do you ever decide to do it or not? My history is I’ve had 2 triple pelvic osteotomies, 2 femoral osteotomies, 4 steroid injections, and now 1 Arthroscopy op which removed All my labrum and shaved the femoral head. I have grade 4 osteoarthritis in the acetabular and grade 3 in femoral head. And although I walk aided with a walking stick, I’m now still better than I’ve ever been in 10yrs. But I struggle with gait, still get pain when tired or walked too much. Since my latest steroid 27th June it’s been lovely, so now I’m doubting the decision to move towards a replacement, as surgeon McBryde has discussed it may not rid me of pain 100 percent, or rid me of my stick either. I’m so confused and frustrated.

Such a difficult decision to make, and the state of the NHS worries me. What if I delay and in a year or two it’s no longer an option? And of course it’s taking myself out of action again, recovery again and taking risks surgery wise.

So hard to make this decision. And one I’m not taking lightly either.

And now after a busy weekend, my mind is almost made up….

I’ve swung from delaying it to absolutely doing it once again!! And what has changed my mind? You ask. Well pain has, I think it’s the end of the steroid relief, it’s been 4.5 weeks since I had it done, and the white hot burning groin pain has started to creep back into my life. At first I thought I was just tired, or overdid it (ie went upstairs for the loo too many times) but no… As I sit here after all night resting it’s as angry as hell, and it makes me feel so angry, frustrated and murderous.

But I also question, is this flare up of pain due to the change in weather??

I have until 21st August and I’m keeping a note of pain levels and weather, to show the surgeon and get his opinion on this. But as it stands here and now, I say it’s gotta go, I’m over hips ruling my every waking/sleeping moment, my pain invades my happiness and clarity to think straight. I just want to live life and have adventures.

3 weeks post intra-articular steroid injection in hip

Archive, Family Adventures, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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How time is flying by, it’s already been 3 weeks since the hip injection and even 2 weeks since the thumb one too.

Since then I’ve been active on our weekend away, getting into some exercise routines and just generally loving the improvement. Only marred by that in the hip it’s not a total fix. After activity it soon flares up again.

My thumb on the right hand however is awful. As soon as my left had its injection I needed to rely on my right one more, which has caused this one to flare up the same way. So although my left is feeling 90% better, I can’t escape splints and pain because of this stupid one starting up. Roll on rheumatologist appointment and maybe request a steroid in this as soon as possible.

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We haven’t done any of our couch to 5k for over 2 weeks simply because real life have taken over and it’s been difficult to fit it in. However I have done physio or weights or that other workout on most days.

Monday we decided to do week 4 run 1 and OMG I felt like I was dying. It’s 3mins run walk for 1.5mins then 5min run walk 2.5mins and repeat once more. In the runs I’m shuffling along as upright as I can, as fast as I can to increase the heart rate and lung functions, and practice my walking unaided. But I soon felt piriformis pain in the back, so waddle returned on the second set. But I’m still impressed, less resting, using uneven ground. The walk is getting straighter.

Tuesday’s physio appointment consisted of

Hip Bridges with Football between knees 25reps

Front leg raise and abduction red banded 25reps

Lie on front, bend knee and lift red banded 25reps

Sitting red band around knees hip abduction 25reps

Swiss ball between knees and squeeze adduction 25reps

Side steps red band around knees 80 steps

Came out barely able to walk!! Combined with Mondays couch to 5k and this physio session I’m done. Feels like walking on a dagger in the joint. And my lower back is aching. Need hot water bottle and rest now.

Had good discussion about a replacement with physiotherapist, but I’m still unsure. Whereas before my steroid injection I was deadly sure, so although the pain isn’t 100% gone it’s obviously improved enough that my mind has changed. Ever mindful that it will wear off soon though.

Wednesday is Mama Moons birthday so all exercise is halted as it’s a day of family and celebrating!! Wish I could spoil her more, but what do you buy the lady that has everything already?

 

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Thursday is #WyattWedding prep, we are invited to our Nephew’s wedding, so of course I had to make some hairpins for myself

 

Didn’t do my hand any good, but I enjoyed the relaxing craft (though it’s difficult on my hand – right hand, left one still wonderful). Now just to pack and ensure everything is already, and we are all prepared for the next few days ahead.

Nails I’m wearing are #Primark nails as I totally rate them, they are my favourite go to nails. I buy a separate brush on glue 99p from #HomeBargains or #BM and they easily last me a week, usually 2 weeks.

So that’s me I’m 43 weeks post #hiparthroscopy and due to steroid injections I’m enjoying life with some niggles.

42 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

 

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Well if I was pregnant I have now done a full term and then some… But I’m not. However I do feel more in a position to judge the arthroscopy surgery and it’s results so far.

Am I pain free? Quick easy answer is NO. but I’m coming to terms with its unlikely to be that painfree ever.

Am I more mobile? This is more difficult to answer, Yes I am doing more, but mainly because my mind isn’t as broken as before. And the realization that this may be as good as it gets forever, spurs me to make the most of it regardless.

Before my mind was truly broken, I didn’t trust my ability and stamina, I definitely didn’t trust the legs.

This past 9 months has been going to basics, working the muscles from absolutely nothing into legs I do trust to hold me up, they are stronger, I am fitter. (Sadly not lighter though)

It’s been 2 weeks since the steroid injection and it’s been ok, but it’s not been the magic pain free injection I hoped for. But I did have some improvement, so I can’t complain really.

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This week it’s been about getting into an exercise routine once more, though I needed Monday off completely to recover from our barmouth weekend.

Tuesday I did the basic post hip replacement physio exercises

Glute squeeze 20reps x 2

Quad activation 20reps x 2

Heel Slide 20reps x 2

Hip abduction (lying down) 20reps x 2

Short Arc Quad 20reps x 2

External hip Rotation 20reps x 2

Bridging 20reps x 2

Pull in stomach breathing 20reps x 2

Hip flexion (ankle weights) 20reps x 2

Hip abduction (ankle weights) 20reps x2

Hip adduction (ankle weights) 20reps x 2

Hip extension forwards (ankle weights) 20reps x 2

Hip extension backwards (ankle weights) 20reps x 2

Heel to buttock (ankle weights) 20reps x 2

Mini squat (ankle weights) 20reps x 2

Hip pendulum (on step ankle weights) 20reps x 2

Looks like a lot, but broken down in an overall day of physio. It’s done slowly and methodically, with resting at times. All its for is muscle activation and strengthening.

Wednesday to rest the lower limbs it was a weights day. I’ve read that if you have Arthritis you should try and lift between 5% to 10% of your body weight, so you don’t lift too heavy and speed the disease up. I use 7kg for my arms now, but I started slowly and light at 2kg at first. I don’t do much as hands and elbows are in a joint flare up today.

Bicep curl 10reps x 2

Shoulder press 10reps x 2

Lateral raise 10reps x 2

Bicep row 10reps x 2

Tricep kickback 10reps x 2

Chest press 10reps x 2

Tricep overhead 10reps x 2

Kettle bell swing 10reps x 2

Again it looks more than it is in reality, and the sets are broken up between morning and afternoon. It’s to lubricate and activate, more than anything.

Thursday I can feel a change in the air, my joints ache, mainly my fingers and elbows. Although hip is niggly too. Opt for a day of mostly rest, painkillers and hot water bottles. I discovered I can’t even lunge my left foot behind me due to ankle issues ( I rolled it in may 2017 and it’s still not right now. Perhaps I should see someone) I did try some compound exercise for physio though, only 5 exercises but they killed me off.

Goblet Squat 10reps x 2

Three point row 10reps x 2

One dumbbell reverse lunge 10reps x 2 (actually can’t officially lunge, it’s more of a step back, and letting leading leg take weight, super easy for most folks but for me it’s painful and very difficult)

Single arm chest press 10reps x 2

Supine marching 10reps x 2 (this really pulled operated legs glutes into action, but also hurt my groin. Don’t think hip is ready for this? It’s meant to work your core, but I felt it all in the hip??)

Friday I honestly feel bodily broken so it’s probably a curl up on the sofa, hot water bottle and Netflix kind of day. Frustrating as brain says go, body says NO. But I’m pleased I managed 3 days of various physiotherapy exercises, so if I don’t do anything today that’s still self care and productive in my healing.

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Steroid injection day 5 + 6

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

Pleased to say all is quiet on the hip front, although clearly I did too much yesterday as my operated leg quad muscle was aching all day on day 5. So that prompted a total lower body rest. Boring but I feel necessary, as I have Physio the following day anyways at the Hospital.

I chose to do free weights so I’d at least got a workout done, making me feel productive and it helps mentally as well as physically. And not forgetting to sunbathe, seriously can’t believe the luck we’ve been having with all this glorious sunshine and warmth.

My new appointment for my 6week post injection date came through, it’s for August 21st. Here I think I’ll push for more answers on scar tissue and if there’s any point in delaying a hip replacement now?!

Day 6 saw me at the hospital for physiotherapy, so I can ask advice and let her assess if there’s any movement improvement, better range or stamina. As it’s so hard to gage it yourself. Awoke with awful Glute pain, not sure why though? Seems weird it was the Quad muscle, now it’s the opposite Glute muscle?

Front leg raise

Then front leg raise to abduction

Football between knees hip bridges, then into sitting up and hip adduction.

Prone lying on front, bend knee and raise.

All these actually eased off some muscle aches. But it did hurt the groin so I’m having to rest up and increase painkillers. Bored though, so I think I best watch the football to entertain me.

Steroid injection day 3 + 4 successes!!

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

What can I say, I woke up feeling great today, though sticky from all our UK heatwave. But I’m not complaining, this heat is glorious. I expected at least 2 weeks of grumpy hip issues, and a catalogue of side effects like in 2016. But this time I’ve not really had any, a small extra amount of hair loss, but I have such thick hair it’s not too bad!!

Gently gently I’ve done some post operative physio exercises, and some days the groin pulled, but today on day 3 it didn’t!! And I’m not walking with a limp as much. Been eating light and well in this sunshine, so that’s a bonus.

So on Day 3 we decided in the gorgeous sunset to complete our week 3 of #couch25k. Crazy probably, but my god we did it. Hip coped fine, though I activated my #piriformis pain near my glute scar. I must stress I’m not actually doing the required times like a normie would, it’s all adapted to me and my disability and abilities.

Day 4 slightly sore knees, not sure if from just arthritis in general or from the steroid?? Side effects seem to be near to zero, whereas before I had 2 weeks of hell. Though last time I had Kenalog I got vertigo?! Wonder if that happens again.

Felt fine with physio exercises, so I introduced

  • Swiss ball pelvic tilts 20reps
  • Swiss ball hip glides 20reps
  • Swiss ball knee lifts 20reps
  • Swiss ball knee extensions 20reps
  • Swiss ball hip adduction squeezes 20reps

Then I continued with

  • Heel slides (lying down) 20reps
  • Front leg raise (lying down) 20reps
  • Front leg raise+ abduction (lying down) 20reps

It aches afterwards but that’s to be expected, and I rest well afterwards too. Only taking 1 x ibuprofen 400mg when really needed, often choosing hot water bottles even in this heatwave.

 

Intra-articular steroid injection Day 1 + 2

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On the 27th I had my injection and this time round I had

  • 1ml Kenalog 40mg
  • 4ml Marcaine 0.25%
  • 5ml Lidocaine 2%

So that’s 10mls in total inside the hip. I had a different steroid in 2016, not had Kenalog since 2012? Or 2013.

I slept pretty well, the hip feels tender and bulky, so movement was restricted and I needed Ibuprofen 400mg as soon as I got home and 1 again for bed time.

Woke up feeling good, managed a few heel slides, front leg raise and hip abduction while lying down, just to lubricate the joint moving. But after a couple of these, I felt a sharp groin ache.

So that was my cue it’s too early to aggregate hip. Which means I should probably sunbathe and rest up as much as possible.

Lets see what the next few days bring, I have to do a pain diary for 6 weeks, until I see my Consultant, so I can give him as much information as possible.

Had a brilliant BBQ outside, so that was a lovely way to spend my evening. I am managing well with my walking stick, just pulls as I walk (perhaps that’s the hip flexor?)

Today I’m attempting some hip flexion, hip abduction, hip extension while standing, but only 10 reps of each, to assess its working. My aches are mainly felt in outer hip under my glute scar. And of course the dreaded groin ache too. But they are dull manageable aches at least. Still taking ibuprofen 400mg.

It’s another sunny day, so no doubt more sunbathing and resting at least for now. Hoping it all kicks in soon, so we can continue with our couch25k walking and not lose our progress.

Steroid injection day!!

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

In the run up to this day, we’ve had a birthday party for our brother in law Simon, cue hilarious evening all round. I even won prosecco pong!!

But I did drink a tad too much, so Sunday morning was a hangover day!!

Monday came and went so fast, we had glorious sunshine and we sunbathed outside while we can. Feeling a tad poorly and snotty at this point. Stressed out they may cancel my steroid injection! Eek!! That would be awful.

Tuesday is here and I feel better in myself thankfully. Just a small cough and bit snotty but nothing like yesterday. So I’m going to try and do my appointment, as it’s not a general anaesthesia it’s only local. Throughout the day I felt better and better, I took an antihistamine and it cleared up the runny nose, so I’m thinking it was hayfever??

Wednesday is here and it’s the day I get the injection. Packed light overnight bag just in case, with just sone PJ’s in, I’m wearing easy leggings and t-shirt and flossy shoes, so everything is easy to slip in and out of. Packed a book. #ReadyPlayerOne headphones and phone, that should be me all set!

Sidenote this heat has been perfect for my hand pain, it’s not gone entirely but overall it’s amazingly different. So that’s a bonus.

Got there and had an hour’s wait straight away. This was 1.30pm. Nothing too major. I was then called through, weighed and measured height. Then off to a ward to wait.

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Ace it’s empty or so I thought, I get pulled into theatre and get my arrow. This was 2pm.

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Then I’m told to wait in the waiting room, gutted I thought I was being done now.

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Finally at 3.10pm I’m called through, it’s my turn. Easy quick check that I am who I say I am, that I know what they are doing. Then it’s time to lie down.

Steroid done, and omg that HURT, so much more than before. Last one like this was 2 yes ago. Also he said ‘what on earth is that? oh must be scar tissue, I haven’t seen it that bad on someonebefore’ he told me that’s why it was extra painful.

It was painful! The initial needle was ok, but it needed moving around, the sensation is odd and I flinched a few times I’m embarrassed to say. Holding my nurses hand to stop me moving too much. The air had to be blown into it, to ensure correct area, weird tightening feeling but at least not too painful. Then finally the steroid is pushed into joint, and I could feel it going in, odd feeling but at least it didn’t last long.

Once done it was time to wiggle hip to work it in, and then off to sit on the ward to wait 20-30mins before I can go home.

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Least I have coffee and biscuits to ease my shellshockedness. Once I knew I was free to go, off I went to find my husband. Free to go home and relax at long last at 4pm. Bit of a long day, but could of been worse. And though it HURT I still rather do it this way, than be under a general anaesthesic because I get to go home, eat and move so much quicker.

So that’s me for now. I have to keep a pain diary and see my consultant in 6weeks time.