Day 52 lazy weekend vibes

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Weekend is here, and I literally have nothing planned in particular. All I know is my hands are like claws, so there’s no chance of weights. Arthritis really sucks, it’s hard to admit that some days you can’t open the milk, or hold a kettle at times.

And my poor hip buckled on my last goblet squat yesterday, I felt the familiar hot burning sting as I started to squat. Like when I stepped up wrongly. So I immediately stood up, and stopped the exercise. Thankfully it was the last rep anyway.

So following that I know bodily I need a rest day, to help heal and grow stronger. Although I hurt myself a bit, I definitely didn’t do half the damage, so the two days off at the weekend will do me some good.

Let’s hope it stays behaved and doesn’t give me too much grief.

Advertisements

Day 20 it’s OT day

Archive, Arthritis, Health, Hips, Hypermobility

In the last few weeks it’s all been hips and I’ve had to take a step back from my hands. Thankfully the recent weeks has been kind to me and they’ve swelled up minimally. But I’m kinda thinking that’s due to taking dihydrocodeine?!

My worse area was the CMC joint and where they put the cannula in. But now it’s all settled down and being reasonable.

After a week it was minimal

And now it’s completely cleared up.

So today is the day to show my lovely occupational therapist how I’ve done my exercises to build up the thumbs, and lengthen the finger ligaments. The physio I’ve done for them has helped, but so did the steroid injection.

Now medication is absolutely minimum, I’m feeling the familiar aches, pains and swellings. So I need advice on how to move forward.

Advice is to make the stretches harder using an elastic band or bobble, like what MiCats told me to do back in July. Now I have better strength and alignment, it should be easier to do.

Ive also got a new splint for my DIP joint of middle finger, as it’s extending all the time. I need to wear this when I’m doing things, like my thumb splints too (see above)

So hideous, but so needed as well. Back in 6 weeks time, to monitor how well they respond. But this is one thing that will get progressively worse over time, with little we can do about it to slow or control it.

#Blogmas 2018 Post #SteroidInjection day 4,5,6

Archive, blogmas 2018, Health, Hips, Hypermobility

Not exactly a Christmas story blog post, but this blog chronicles my actual life, so it makes sense to me o include it.

Following on from 6 days ago, I received an intra articular steroid injection in the right hand, the CMC joint to be precise.

Each day I’ve seen and felt an improvement in the functionality and pain levels, and in swelling too.

Day 4

I’m still doing my daily exercises with the bobble as a resistance band. I’m also not protecting it from normal daily chores. It’s ok, it’s not entirely painfree. Started to notice the DIP joint is tender, and stings at times.

The DIP joint is the top knuckle of the thumb (or fingers) this is a new pain? Also I’ve felt ridiculously tearful, literally over nothing!! But I know it’s a side effect so I’m not reading anything into it.

Headaches are pretty frequent as well, but again I know they are a common side effect, so I have to just ride it for a while. And hope it settles down.

Day 5

I’m noticing it’s not as painfree as the other hand was immediately, so that’s a bit frustrating. But at least it’s after the days exercise and only aches at night time after a full day of use. Maybe it’s slower to heal as it’s my dominant hand.

Some evenings I’m putting the brace on, to support it and rest it when I know I’m physically resting more. It’s mainly to stop the joints from flexing too much.

Both hands went sore and swollen at the MCP joints and CMC joints because I went for a woodland walk, only outside for 1hr 30mins with plenty of stops and rest. Not sure why they flared up? Thankfully they went down after 30mins.

Day 6

Wow nearly a week has passed, and though it has niggles it’s 90% better than before the injection. So for that it’s totally worth the added pains, swellings and mood swings. I just pray it will last a while, as really all that’s left to manage it, is bone removal, joint replacement (I’m going to end up as mostly machine)

In this the trapezium bone is removed and the fingers ligament is used to fill the space instead.

Here we have surface replacement, bit like a total hip replacement, creates new smoother surfaces that don’t rub together, unlike bones.

Next week I see the OT and I’m keen to see what they say, I honestly can’t face more surgeries, but then this pain can be so disabling as well. Torn by decisions.

Steroid injection day

Archive, Arthritis, Health, Hips, Hypermobility

Well the day is finally here, after the disappointing Friday. Where I had an appointment but sadly no ultrasound machine to carry out the said procedure.

So, what am I having done, it’s an intra- articular injection which simply means injection directly into the inflamed joint.

The injection itself is usually quick and easy for them to perform, I say quick but to me it feels ages!! And when guided by an ultrasound machine, they can easily guide the needle directly to the inflamed area.

This time however I had the injection site through the thumb pad, not like the picture above, but like the photo below. Thicker tougher skin, I definitely felt it more this time, and the wiggling needle, seriously ouchie. And let’s not forget the joint feeling like it’s about to burst when the steroid kenalog is filling the joint space.

I came prepared with a mango coke, as last time I felt dizzy, sick and almost fainted. And this time was no different. Instantly sick feeling as needle comes out, woozy and dizzy, the sugary drink helped level me out. You have to sit around afterwards to ensure you don’t have an allergic reaction. But once my head cleared and I felt normal again, we left to go home and rest.

As you have a local anaesthetic as well the area is numbed a bit to help ease the pain of the steroid, but I will admit you still feel it a fair bit. And certainly after it wears off about an hour or two, the area will be achy and sore for a good 24-36 hours afterwards.

So no exercise or strenuous exercise on the joint while it’s sore and stiff. You may even need to brace it, juts to protect the area for a few days. Certainly what I did last time. As it’s my dominant hand, I feel it’s going to be harder to rest.

Familiar aches are back… 50 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Charting my journey as its nearly a whole year since my Hip Arthroscopy Surgery, at the time I knew I was potentially only saving myself an extra year or so from Hip replacement. However it ended up a lot sooner than I imagined, meaning I sought a steroid injection to stabilise the joint back in June, and now already I’m in the process of being on the waiting list to replace it.

It’s been a good year however, I’ve improved all the muscles, and strength which was important to me, and I firmly believe it will give me a better foundation to build on, following the replacement.

It’s now 10 weeks since the Hip steroid and that pains been back a far while, and no surprise if I’m honest. It lasted at best 4 weeks. A bloody glorious 4 weeks too.

My CMC joint steroid was 9 weeks ago and it worked immediately, and completely too. And just today at 9 weeks, I’m starting to feel the bone crushing sensation on the joint. So hard to explain it really, just feels like a constant vice on the joint. Well that’s back, I’m thinking a turn in weather temperature brought that back into my life.

This poor hand never catches a break, as recently I fell over and created a TFCC tear in the same hand. So lots of bracing, ibuprofen and rest for now. Thankfully that pain which was intense, has subsided into an ache, and overall weakness.

I confess in the time since I’ve fell which was 2 weeks ago tomorrow, I haven’t done any #couch25k #couchto5k as I was too sore and swollen from falling. Then we did Blackpool a week later, and hip has been 💯 bitch since. So sharp, so stabby, even while sitting down, or lying down, that the thought of standing on it has not appealed in the slightest.

Next week it’s 3d CT Scan time, it feels like things are actually happening, and there’s an end to this pain….

3 weeks post intra-articular steroid injection in hip

Archive, Family Adventures, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

37ac4c14b6017865774922cf45fa10fc--fibromyalgia-quotes-fibromyalgia-pain

How time is flying by, it’s already been 3 weeks since the hip injection and even 2 weeks since the thumb one too.

Since then I’ve been active on our weekend away, getting into some exercise routines and just generally loving the improvement. Only marred by that in the hip it’s not a total fix. After activity it soon flares up again.

My thumb on the right hand however is awful. As soon as my left had its injection I needed to rely on my right one more, which has caused this one to flare up the same way. So although my left is feeling 90% better, I can’t escape splints and pain because of this stupid one starting up. Roll on rheumatologist appointment and maybe request a steroid in this as soon as possible.

IMG_20180717_205047_198

We haven’t done any of our couch to 5k for over 2 weeks simply because real life have taken over and it’s been difficult to fit it in. However I have done physio or weights or that other workout on most days.

Monday we decided to do week 4 run 1 and OMG I felt like I was dying. It’s 3mins run walk for 1.5mins then 5min run walk 2.5mins and repeat once more. In the runs I’m shuffling along as upright as I can, as fast as I can to increase the heart rate and lung functions, and practice my walking unaided. But I soon felt piriformis pain in the back, so waddle returned on the second set. But I’m still impressed, less resting, using uneven ground. The walk is getting straighter.

Tuesday’s physio appointment consisted of

Hip Bridges with Football between knees 25reps

Front leg raise and abduction red banded 25reps

Lie on front, bend knee and lift red banded 25reps

Sitting red band around knees hip abduction 25reps

Swiss ball between knees and squeeze adduction 25reps

Side steps red band around knees 80 steps

Came out barely able to walk!! Combined with Mondays couch to 5k and this physio session I’m done. Feels like walking on a dagger in the joint. And my lower back is aching. Need hot water bottle and rest now.

Had good discussion about a replacement with physiotherapist, but I’m still unsure. Whereas before my steroid injection I was deadly sure, so although the pain isn’t 100% gone it’s obviously improved enough that my mind has changed. Ever mindful that it will wear off soon though.

Wednesday is Mama Moons birthday so all exercise is halted as it’s a day of family and celebrating!! Wish I could spoil her more, but what do you buy the lady that has everything already?

 

Screenshot_20180514-081744

Thursday is #WyattWedding prep, we are invited to our Nephew’s wedding, so of course I had to make some hairpins for myself

 

Didn’t do my hand any good, but I enjoyed the relaxing craft (though it’s difficult on my hand – right hand, left one still wonderful). Now just to pack and ensure everything is already, and we are all prepared for the next few days ahead.

Nails I’m wearing are #Primark nails as I totally rate them, they are my favourite go to nails. I buy a separate brush on glue 99p from #HomeBargains or #BM and they easily last me a week, usually 2 weeks.

So that’s me I’m 43 weeks post #hiparthroscopy and due to steroid injections I’m enjoying life with some niggles.

Day 7 + 8 post #intra-articular #steroid injection in Hip.

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

It’s been a week, and Wow that time has flown by!!

Today it’s a MiCats appointment for my hand, and I honestly expected nothing, except maybe a referral to a rheumatologist. Which did happen, hopefully appointment in 6-9 weeks time, but also I was offered the #steroid injection into the CMC joint today. I said yes, though nervous. Nicer to get it out of the way.

The doctor was lovely, she confirmed again there is no Rheumatoid Factor but high levels of inflammation. And the DIP joints ( finger top knuckles) as well as basal thumb joint all show wear and tear indications it’s Arthritis, or my Ehlers Danlos Syndrome. Something is happening, so it’s a process of elimination now.

Injection did smart a bit, once again I had Marcaine, Lidocaine and Kenalog injection. I’m happy as so far it’s just been hair loss as a side effect.

This is in the evening, so looks ok. Super stiff and achy though. Hurts to use, so having 24hours off. Been instructed to brace it as well.

Hand swelled up too, so I’ve removed my rings just in case.

Hip wise I confess it’s been nagging, bit grumbly and not quite right. But it’s nearly that time of the month, which usually sends ALL my joints haywire and extra painful too. So it could be that. That groin pain has gone again though so that’s all good.

Day 8 it’s mad dash packing day, why do I leave it until the last minute?? Only popping to barmouth in a cottage with family, but should be a giggle. 2 nights 3 days away, hope this weather lasts!! Packing one handed is pretty difficult I might add.

Woke up with a super stiff right shoulder and neck, not entirely sure why though? Going to need hot water bottles and ibuprofen today. Hand feels pretty good, just braced to limit its range for now.

Hopefully all will be ace while we are away, and I will be pain free too. Have a lovely weekend my lovelies xx

I’m annoyed….

Archive, Health, Hips, Hypermobility

With myself. I was meant to see MiCats

Musculoskeletal Integrated Clinical Assessment and Treatment Service (MICATS)

on the 30th May to discuss my issues with my hand, and how I struggle at times to hold things, to pick up cups etc…

But I rescheduled for the Stafford County Show, knowing I had the GP the following day, and I could get the x-ray results.

Well…… That didn’t happen, somehow my appointment was 8.40am and I thought it was 1.40pm or 1.45pm so I rang to ask which one, and they dropped the info that I’d actually already missed it!! And the earliest I can get in, is 20th June!!

This is ridiculous, I feel like I’m never going to get my hand sorted out. Yes it’s totally my fault, so I’m annoyed with myself. Ggggrrrrr

Feeling Lost and Frustrated 34 weeks Hip Arthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

We’ve had some amazing days out, some glorious weather and family adventures, and I’m truly grateful. I really am.

But one thing always brings me down, and that is PAIN!! It’s limiting, it’s depressing, and it’s always always there!!

If it’s not my Hand it’s my Hip, or Lower back. The pain that blurs the edges of all the good that you do, the pain that awakens you from sleep, the pain you can’t escape. But what has kept me going is knowing that my steroid injection should be soon.

But I’ve learnt that although I was penciled in for end of May, it’s now looking more like mid to end of June. Which has admittedly took the wind out of my sails. I’m so frustrated by the waiting, and wondering, it’s agony.

It’s something I can’t change, and though I feel a little lost as to what to do. My husband is right I should just forget it, keep on, keep going, and don’t get stuck or hung up on this date. It will happen when it does.

So for now, it’s continue as often as I can with physio at home to help ease pains and stability, while understanding that I’m not a failure if there’s days I can’t do things (hardest thing to realise) rest days are important too.

30 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

It’s now 7 months since my surgery and I’m ready to say it’s not worked. In fact I’m actually worse off. Not pain wise initially, but this unstable joint is far more life hindering.

A few days ago you saw I popped to the cinema, we used disabled parking so it was minimal walking, seats were amazing, yet somehow my hip still went from under me in the evening.

Cue tears, lots of pain, swelling, leg is 3inches fatter than other one!! And I’m back to one crutch. I’d only just been saying earlier, if hip stayed in the joint life is perfect. Now I’m sat here thinking if popping out my house once a week is enough to make it unstable, then I’m ready to rip it out. I want to live, do things and not merely exist.

So with this said I’m still chasing steroid injection appointment, it’s not been done yet. I now have to rest the joint. So I’m going all in on arms. This way I feel productive and not bored and useless. I use it as a tool to distract from hip pain too.

Bicep curls 15reps x 3

Shoulder press 15reps x 3

Side lateral raises 15reps x 3

Bicep row 15reps x 3

Tricep extension 15reps x 3

Chest press 15reps x 3

Tricep overhead 15reps x 3

My weights are only 3.5kg and I know it’s not much, but it makes me ache, I do it to failure. And I feel better once I’ve done them. The ache is unreal afterwards, I feel like I can’t lift my arms, so clearly it’s needed for me.

My new joggers came, so that’s a silver lining too. You can get yours here and use my affiliate code which helps me out and you get 10% off too DEBORAHWY10