#Blogmas 2018 Occupational therapy

Archive, blogmas 2018, Health, Hips, Hypermobility

The day is finally here, I’m not well enough to go, but I’m dragging myself there, as this is needed.

It all started as a disaster on my part, I thought the time was 9.30am but hubby informed me at 9.10am that it was in the calendar for 9.15am OH. MY. GOD. Mad panic ensued, and I had to ring them to tell them. Simple mistake, I desperately hoped they could still see me. Thankfully they were most accommodating.

Roll a pen between thumb and finger, with thumb doing all the work

Make an ‘O’ with hand, and then lift up first finger, feel ligaments stretch down finger and thumb.

Small movements, but I could really feel it. So I’m sure these are going to help a lot.

I’m so glad I went, it was so worth it. They listened, confirmed my hypermobility in each finger joint, showed me tools I can buy to help around the house. Gave me new exercises to try. And even made me some braces, that are bent to my shape, to help support thumbs.

I walked out of there feeling listened too, full of hope for the physio to work in mobility and pain levels. I am optimistic about the future, if I can do the hardwork.

So I’m back in six weeks time, and like any good Physiotherapist, she will be able to tell whether I’ve done them or not.

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#Blogmas 2018 Post #SteroidInjection day 4,5,6

Archive, blogmas 2018, Health, Hips, Hypermobility

Not exactly a Christmas story blog post, but this blog chronicles my actual life, so it makes sense to me o include it.

Following on from 6 days ago, I received an intra articular steroid injection in the right hand, the CMC joint to be precise.

Each day I’ve seen and felt an improvement in the functionality and pain levels, and in swelling too.

Day 4

I’m still doing my daily exercises with the bobble as a resistance band. I’m also not protecting it from normal daily chores. It’s ok, it’s not entirely painfree. Started to notice the DIP joint is tender, and stings at times.

The DIP joint is the top knuckle of the thumb (or fingers) this is a new pain? Also I’ve felt ridiculously tearful, literally over nothing!! But I know it’s a side effect so I’m not reading anything into it.

Headaches are pretty frequent as well, but again I know they are a common side effect, so I have to just ride it for a while. And hope it settles down.

Day 5

I’m noticing it’s not as painfree as the other hand was immediately, so that’s a bit frustrating. But at least it’s after the days exercise and only aches at night time after a full day of use. Maybe it’s slower to heal as it’s my dominant hand.

Some evenings I’m putting the brace on, to support it and rest it when I know I’m physically resting more. It’s mainly to stop the joints from flexing too much.

Both hands went sore and swollen at the MCP joints and CMC joints because I went for a woodland walk, only outside for 1hr 30mins with plenty of stops and rest. Not sure why they flared up? Thankfully they went down after 30mins.

Day 6

Wow nearly a week has passed, and though it has niggles it’s 90% better than before the injection. So for that it’s totally worth the added pains, swellings and mood swings. I just pray it will last a while, as really all that’s left to manage it, is bone removal, joint replacement (I’m going to end up as mostly machine)

In this the trapezium bone is removed and the fingers ligament is used to fill the space instead.

Here we have surface replacement, bit like a total hip replacement, creates new smoother surfaces that don’t rub together, unlike bones.

Next week I see the OT and I’m keen to see what they say, I honestly can’t face more surgeries, but then this pain can be so disabling as well. Torn by decisions.

Steroid injection day

Archive, Arthritis, Health, Hips, Hypermobility

Well the day is finally here, after the disappointing Friday. Where I had an appointment but sadly no ultrasound machine to carry out the said procedure.

So, what am I having done, it’s an intra- articular injection which simply means injection directly into the inflamed joint.

The injection itself is usually quick and easy for them to perform, I say quick but to me it feels ages!! And when guided by an ultrasound machine, they can easily guide the needle directly to the inflamed area.

This time however I had the injection site through the thumb pad, not like the picture above, but like the photo below. Thicker tougher skin, I definitely felt it more this time, and the wiggling needle, seriously ouchie. And let’s not forget the joint feeling like it’s about to burst when the steroid kenalog is filling the joint space.

I came prepared with a mango coke, as last time I felt dizzy, sick and almost fainted. And this time was no different. Instantly sick feeling as needle comes out, woozy and dizzy, the sugary drink helped level me out. You have to sit around afterwards to ensure you don’t have an allergic reaction. But once my head cleared and I felt normal again, we left to go home and rest.

As you have a local anaesthetic as well the area is numbed a bit to help ease the pain of the steroid, but I will admit you still feel it a fair bit. And certainly after it wears off about an hour or two, the area will be achy and sore for a good 24-36 hours afterwards.

So no exercise or strenuous exercise on the joint while it’s sore and stiff. You may even need to brace it, juts to protect the area for a few days. Certainly what I did last time. As it’s my dominant hand, I feel it’s going to be harder to rest.

7 weeks until #hipreplacement

Archive, Health, Hips, Hypermobility, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Feels like I’m going back in time!! Well now I have more time to play with, maybe it’s time to sort these hands a bit more long term?

So with that in mind I went to see the GP. As I’m at my wit’s end with pain.

Some days they are like lightening and I struggle to even hold my phone and scroll. Other days it’s like there’s never been an issue.

I have not found a reason of the fluctuations in mobility and pain levels. I eat the same way every week (the success of our weight loss and maintaining weight) and I do the same level of physio exercises. So it can’t be any of those.

Really I’d love a magic wand to take the pain away, but that’s not possible. Though 5% ibuprofen gel takes some of it away, but I can only use it 4 times a day.

No real answers to it all, except I am trying to book in with MiCats for another steroid injection, which admittedly the last one was July and has worked very well. Also seeing OT (occupational therapy) on 5th Dec to see if there is anything they can do to help.

Thankfully I managed to snag a cancellation appointment for Friday 23rd Nov instead of waiting until 31st Dec. But the steroid injection couldn’t be done on the Friday due to no ultrasound machine, so back on Tuesday 27th for a CMC joint kenalog injection.

We had a long chat, she gave me exercises to try, I grossed her out with how much range my thumb has, clearly it’s not a normal range. But we touched on the fact she doesn’t see steroid injections long term. Something I know my hip consultant says too, however rheumatologist and gp say different.

Hip wise, I’m back to doing the post hip replacement exercises, and I’d actually forgotten how hardcore they are, still no improvement on standing freely on one leg, it’s not happening. Or extending leg outstretched forwards, the leg is too heavy and too resistant.

Still shocks me how hard these actually are too do.
I can only hope they aim to improve the tone and muscle and my stamina, all for better smoother healing afterwards. And at least they are keeping me busy in the meantime too. Instead of wallowing in self pity.

I’ve rung to confirm the new official surgery date, so as of today it’s officially 9th Jan 2019 as long as nothing else happens. No date for pre op as of yet though.

Making Decisions…. 45 weeks post #hiparthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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At the start of the weekend I found myself asking this…..

Question – So how do you ever decide to do it or not? My history is I’ve had 2 triple pelvic osteotomies, 2 femoral osteotomies, 4 steroid injections, and now 1 Arthroscopy op which removed All my labrum and shaved the femoral head. I have grade 4 osteoarthritis in the acetabular and grade 3 in femoral head. And although I walk aided with a walking stick, I’m now still better than I’ve ever been in 10yrs. But I struggle with gait, still get pain when tired or walked too much. Since my latest steroid 27th June it’s been lovely, so now I’m doubting the decision to move towards a replacement, as surgeon McBryde has discussed it may not rid me of pain 100 percent, or rid me of my stick either. I’m so confused and frustrated.

Such a difficult decision to make, and the state of the NHS worries me. What if I delay and in a year or two it’s no longer an option? And of course it’s taking myself out of action again, recovery again and taking risks surgery wise.

So hard to make this decision. And one I’m not taking lightly either.

And now after a busy weekend, my mind is almost made up….

I’ve swung from delaying it to absolutely doing it once again!! And what has changed my mind? You ask. Well pain has, I think it’s the end of the steroid relief, it’s been 4.5 weeks since I had it done, and the white hot burning groin pain has started to creep back into my life. At first I thought I was just tired, or overdid it (ie went upstairs for the loo too many times) but no… As I sit here after all night resting it’s as angry as hell, and it makes me feel so angry, frustrated and murderous.

But I also question, is this flare up of pain due to the change in weather??

I have until 21st August and I’m keeping a note of pain levels and weather, to show the surgeon and get his opinion on this. But as it stands here and now, I say it’s gotta go, I’m over hips ruling my every waking/sleeping moment, my pain invades my happiness and clarity to think straight. I just want to live life and have adventures.

Bad back and hippie woes!

Archive, Family Adventures, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Travel, Triple Pelvic Ost, Femoral Ost, PAO

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This week I launched my Tragically hip tees on https://www.bonfire.com/to-all-those-tragically-hip/ and you too can own one, raise awareness for all us hippies, click Here

It has 10 days until campagin ends and then they ship out 15th August. So that was my Monday, feeling marginally better back wise, ice really being my friend for pain relief.

Tuesday I managed to go down to one crutch, feeling a lot less broken and I’ve started to actually move a bit more, I’m scared of it becoming too stiff.

Wednesday I did some gentle stretches, I found ones for back pain, I did the minimum as it was all about movement, not actually exercise.

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Simple and gentle was all I was after, and now I’m finally back onto my walking stick, huge improvement since Sunday. Last of the nice days tomorrow so we decided on an impromptu beach visit. I obviously felt better in my head.

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Thursday we popped to Barmouth, a journey I don’t usually mind, though this time it certainly was harder and more painful indeed. But sun was glorious, water was heavenly and to swim was a good giggle. Only time my back didn’t hurt was in the sea!! My head wanted to do loads, but in truth just a quick swim and stroll to the ice cream shop did me in. Had to keep sitting down, not that the seats are comfy.

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I practically slept all the way home, the day really took it out of me, way more than I imagined too. But I’m glad we did it, a sunny day at the beach is always worth it.

Phew then Friday it was my birthday, a lunar eclipse, blood moon and mercury in retrograde. I was bodily broken, still feeling the effects from the beach visit. But we’ve had a gentle day, with my parents, then a movie #spidermanhomecoming as I’m a Spidey fan. And pink gin, what could be better??

Sadly too cloudy for us, Thor God of thunder came to visit so we had no view of this spectacular celestial event, once in a century event. Gutted.

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42 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

 

Best Fitness Motivation Memes best 20 don t give up ideas on pinterest dreams e

Well if I was pregnant I have now done a full term and then some… But I’m not. However I do feel more in a position to judge the arthroscopy surgery and it’s results so far.

Am I pain free? Quick easy answer is NO. but I’m coming to terms with its unlikely to be that painfree ever.

Am I more mobile? This is more difficult to answer, Yes I am doing more, but mainly because my mind isn’t as broken as before. And the realization that this may be as good as it gets forever, spurs me to make the most of it regardless.

Before my mind was truly broken, I didn’t trust my ability and stamina, I definitely didn’t trust the legs.

This past 9 months has been going to basics, working the muscles from absolutely nothing into legs I do trust to hold me up, they are stronger, I am fitter. (Sadly not lighter though)

It’s been 2 weeks since the steroid injection and it’s been ok, but it’s not been the magic pain free injection I hoped for. But I did have some improvement, so I can’t complain really.

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This week it’s been about getting into an exercise routine once more, though I needed Monday off completely to recover from our barmouth weekend.

Tuesday I did the basic post hip replacement physio exercises

Glute squeeze 20reps x 2

Quad activation 20reps x 2

Heel Slide 20reps x 2

Hip abduction (lying down) 20reps x 2

Short Arc Quad 20reps x 2

External hip Rotation 20reps x 2

Bridging 20reps x 2

Pull in stomach breathing 20reps x 2

Hip flexion (ankle weights) 20reps x 2

Hip abduction (ankle weights) 20reps x2

Hip adduction (ankle weights) 20reps x 2

Hip extension forwards (ankle weights) 20reps x 2

Hip extension backwards (ankle weights) 20reps x 2

Heel to buttock (ankle weights) 20reps x 2

Mini squat (ankle weights) 20reps x 2

Hip pendulum (on step ankle weights) 20reps x 2

Looks like a lot, but broken down in an overall day of physio. It’s done slowly and methodically, with resting at times. All its for is muscle activation and strengthening.

Wednesday to rest the lower limbs it was a weights day. I’ve read that if you have Arthritis you should try and lift between 5% to 10% of your body weight, so you don’t lift too heavy and speed the disease up. I use 7kg for my arms now, but I started slowly and light at 2kg at first. I don’t do much as hands and elbows are in a joint flare up today.

Bicep curl 10reps x 2

Shoulder press 10reps x 2

Lateral raise 10reps x 2

Bicep row 10reps x 2

Tricep kickback 10reps x 2

Chest press 10reps x 2

Tricep overhead 10reps x 2

Kettle bell swing 10reps x 2

Again it looks more than it is in reality, and the sets are broken up between morning and afternoon. It’s to lubricate and activate, more than anything.

Thursday I can feel a change in the air, my joints ache, mainly my fingers and elbows. Although hip is niggly too. Opt for a day of mostly rest, painkillers and hot water bottles. I discovered I can’t even lunge my left foot behind me due to ankle issues ( I rolled it in may 2017 and it’s still not right now. Perhaps I should see someone) I did try some compound exercise for physio though, only 5 exercises but they killed me off.

Goblet Squat 10reps x 2

Three point row 10reps x 2

One dumbbell reverse lunge 10reps x 2 (actually can’t officially lunge, it’s more of a step back, and letting leading leg take weight, super easy for most folks but for me it’s painful and very difficult)

Single arm chest press 10reps x 2

Supine marching 10reps x 2 (this really pulled operated legs glutes into action, but also hurt my groin. Don’t think hip is ready for this? It’s meant to work your core, but I felt it all in the hip??)

Friday I honestly feel bodily broken so it’s probably a curl up on the sofa, hot water bottle and Netflix kind of day. Frustrating as brain says go, body says NO. But I’m pleased I managed 3 days of various physiotherapy exercises, so if I don’t do anything today that’s still self care and productive in my healing.

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Weekend away with family

Archive, Challenges, Randoms, Miscellaneous, Family Adventures, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

Day 9, 10, 11, 12 post #intra-articular steroid hip injection, and day 2,3,4,5 for post steroid hand injection. Both have been tested greatly in our weekend adventures.

Sunny Barmouth has been glorious this holiday!! We loved swimming in the sea, I got to have my nephew’s swimming with me, and such giggles we had all round.

The cottage was amazing, it was 300yrs old,the history and tales it could tell. All higgledy piggledy and full of character.

Walked along beaches, which is still hugely problematic hip and mobility wise. Hip is 80% better than before the steroid, so it’s not fully pain free. Hand however is absolutely fabulous. Aches yes at the end of the day, but I expected that. Beach walks take A LOT out of me, and pain levels soon rise quickly.

So now we are home, it’s time to rest for a while, to settle the hip down and see how long it stays angry for. But I’m definitely impressed with the hand pain which had totally crippled me up until that steroid injection. I wonder how long it will last for?

Day 7 + 8 post #intra-articular #steroid injection in Hip.

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

It’s been a week, and Wow that time has flown by!!

Today it’s a MiCats appointment for my hand, and I honestly expected nothing, except maybe a referral to a rheumatologist. Which did happen, hopefully appointment in 6-9 weeks time, but also I was offered the #steroid injection into the CMC joint today. I said yes, though nervous. Nicer to get it out of the way.

The doctor was lovely, she confirmed again there is no Rheumatoid Factor but high levels of inflammation. And the DIP joints ( finger top knuckles) as well as basal thumb joint all show wear and tear indications it’s Arthritis, or my Ehlers Danlos Syndrome. Something is happening, so it’s a process of elimination now.

Injection did smart a bit, once again I had Marcaine, Lidocaine and Kenalog injection. I’m happy as so far it’s just been hair loss as a side effect.

This is in the evening, so looks ok. Super stiff and achy though. Hurts to use, so having 24hours off. Been instructed to brace it as well.

Hand swelled up too, so I’ve removed my rings just in case.

Hip wise I confess it’s been nagging, bit grumbly and not quite right. But it’s nearly that time of the month, which usually sends ALL my joints haywire and extra painful too. So it could be that. That groin pain has gone again though so that’s all good.

Day 8 it’s mad dash packing day, why do I leave it until the last minute?? Only popping to barmouth in a cottage with family, but should be a giggle. 2 nights 3 days away, hope this weather lasts!! Packing one handed is pretty difficult I might add.

Woke up with a super stiff right shoulder and neck, not entirely sure why though? Going to need hot water bottles and ibuprofen today. Hand feels pretty good, just braced to limit its range for now.

Hopefully all will be ace while we are away, and I will be pain free too. Have a lovely weekend my lovelies xx

Steroid injection day 5 + 6

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

Pleased to say all is quiet on the hip front, although clearly I did too much yesterday as my operated leg quad muscle was aching all day on day 5. So that prompted a total lower body rest. Boring but I feel necessary, as I have Physio the following day anyways at the Hospital.

I chose to do free weights so I’d at least got a workout done, making me feel productive and it helps mentally as well as physically. And not forgetting to sunbathe, seriously can’t believe the luck we’ve been having with all this glorious sunshine and warmth.

My new appointment for my 6week post injection date came through, it’s for August 21st. Here I think I’ll push for more answers on scar tissue and if there’s any point in delaying a hip replacement now?!

Day 6 saw me at the hospital for physiotherapy, so I can ask advice and let her assess if there’s any movement improvement, better range or stamina. As it’s so hard to gage it yourself. Awoke with awful Glute pain, not sure why though? Seems weird it was the Quad muscle, now it’s the opposite Glute muscle?

Front leg raise

Then front leg raise to abduction

Football between knees hip bridges, then into sitting up and hip adduction.

Prone lying on front, bend knee and raise.

All these actually eased off some muscle aches. But it did hurt the groin so I’m having to rest up and increase painkillers. Bored though, so I think I best watch the football to entertain me.