Day 92 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s been a week since I saw the GP about my hands, and I’ll be honest the increased ibuprofen and ibuprofen gel hasn’t really made that much of a difference painwise. But maybe a week is too early to tell? So I will give it longer.

Wearing the splints help get things done but are cumbersome and irritating. But wearing the gloves at night are good, so that’s a win!!

Splints with weights are Interesting let’s say that. It’s hard while my hands are like this to actually hold weights, so in place of weights sometimes I use resistance bands instead.

Its not the weight itself I find difficult, more the grasp, it could be a pen at times and I simply can’t hold it. Frustrating to say the least.

So working the hip it is today, give the hands and shoulders a break. Though I’ve decided I’m staying away from any exercises that mean I have to lie on my operated side. It’s too dreadful for words.

  • Hip Flexion ankle weight 15 reps x 2
  • Hip abduction ankle weight 15 reps x 2
  • Hip extension ankle weight 15 reps x 2
  • Calf raises ankle weight 15 reps x 2
  • Heel to butt ankle weight 15 reps x 2
  • Mini squat 15 reps x 2

Not too much today, as joints are extremely lax this week. It’s the old Ehlers Danlos coming out to party, and by party I mean utter misery ball of pain.

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Day 90 #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

It’s always up and down health wise, I guess it’s the #EhlersDanlosSyndrome not really helping. But I’m pleased to say it’s not actually my hip causing any grief at the moment.

And because it’s that time of the dreaded month, every joint comes out to play. Cleaning the cooker, my shoulder decides to pop out!!

So with this is mind, I’m thinking I need to keep on going with the occupational therapists shoulder stabilizer exercises.

  • Ball on wall circle left 20 reps x 3
  • Ball on wall circle right 20 reps x 3
  • Ball on wall up + down 20 reps x 3

  • Band shoulder abduction 10 reps x 3
  • Band shoulder internal rotation 10 reps x 3
  • Band shoulder external rotation 10 reps x 3
  • Band shoulder extension 10 reps x 3

All this exercise is always to help stabilise my joints, help my muscles and tendons do the work the joint should actually do.

Finally getting answers?? 7 weeks til #TotalHipReplacement

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Well I’ve had the long awaited rheumatologist appointment, and it wasn’t at all as expected.

I wasn’t sure which would be a good result, if I’m being honest. As rheumatoid arthritis is no laughing matter, though thankfully there are certain medications to help with the inflammation.

However, I have certain distinctive wear and tear joint space narrowings of the joints, and none of the rheumatoid symptoms, so this meant it’s more likely my #EhlersDanlosSyndrome causing early Osteoarthritis, but the inflammatory kind. So still erosive and very painful, but less likely to be helped with medications that they use for rheumatoid arthritis sadly.

So it’s a limbo really, I can brace, splint and tape them up. Take ibuprofen, use hot water bottles and do physio and see if it helps. Though I am doing all these things already to be honest. So my future of a crafter (Jewellery and papercutting) is looking unlikely!!

I’m going to try and tinker more with food groups and try to find my triggers, if it is triggered by food that is.

So it seems my Zebra status is causing my early onset of Osteoarthritis which is notable in the hips, and now the hands. I haven’t dare touch upon the fact my ankles roll all the time, knees ache funny and elbows are odd. Because he signed me off straight away. So I think he just believes I need physio and perhaps go back to gps for help with better painkillers. (Do better painkillers even exist? Ones that don’t cause hair loss, sleeplessness, racing heartbeats, brain fog, nausea to name a few of the lovely side effects…)

I am allowed the kenalog injections in the hands, but is that in 1 joint, multiple joints? As sometimes it’s 1 thumb, 1 wrist, and 1 finger all at once! It’s unpredictable as to when and where it’s going to hurt, so taking painkillers seems weird. Ideally just reduce the inflammation would be a good start.

For now though I must just muddle through, manage the pain as best as I can, because it’s a mere 7 weeks now until my Hip Replacement Surgery. And I have so much to do to prepare for that. Any handy tips or hints? Let me know

First week of #marchmeetthemaker2018

Archive, Challenges, Randoms, Miscellaneous

Yes I’m back at it again, using @joannehawker guide to allow customers,followers etc to see the person behind the makes on their shops.

Now I’m never going to suddenly be a selfie queen, so this challenge actually helps me show myself, without some deranged mad woman’s selfie looking back at you.

Each day has a theme to base your Instagram photo on, some are easy, some hard, and maybe some impossible?!

Day 1 – You, here is me at the last #sbsevent2018

Day 2 – Where, my local town is half olde worlde and modern.

Day 3 – How you started, I started following this surgery, I had a #TriplePelvicOsteotomy and FemoralOsteotomy done at the same time, and was rendered immobile and housebound.

Day 4 – Favourite make, mine is the Gothic style jewellery I did, that also got featured in Shine On Jewellery magazine.

Day 5 – Photography, I honestly have nothing fancy. Occasionally I use a white box, nice surroundings, my child as a model. But always always use my phone as my camera.

Day 6 – Workspace, I don’t have an area just to work on, I’m often doing it on my lap while watching TV. I love that I can do it anywhere. My biggest workspace is really my brain, it all starts here.

Day 7 – Routine, I simply honestly have none. I can’t always make and create as my own body works against me sometimes. So I can only do it, when I can physically and mentally. And everything I do works around pain and limitations.

23 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

It’s 23 weeks and there’s NO physio this week again, but due to the weather this time. Icy roads and paths are not the friends of people with walking disabilities, so trapped indoors for over a week now.

So instead I’ve upped my game of physio at home, I’ve found my at home equipment out, so ankle weights, resistant bands, medicine ball, free weights, Swiss ball and step.

  • Swiss Ball Pelvic Tilt 20reps
  • Swiss Ball Hip Glides 20reps
  • Swiss Ball Knee Lifts 20reps
  • Swiss Knee Extensions 20reps
  • Swiss Ball Hip Abductions 20reps
  • Hip Bridges 20reps
  • Single Hip Bridges 20reps
  • Clam Raises with Band 20reps
  • Side Leg Raise with Band 20reps
  • Front Leg Raise with Band 20reps
  • Lie on front, Bent Knee Raise with Band 20reps
  • Sideways walking Squat with Band 20reps

I have to have breaks in between as I can’t do them all one after another, Right leg really struggling with front leg raises and lying on that side to workout the left leg. Hip glides activates groin pain, so perhaps that’s an exercise to avoid?? Single leg hip bridge is more of a collapsed heap lifting barely an inch!! But I try at least.

Also been battling some other issues health wise, my ankle I rolled last May is still aching, and it’s clicking and snapping as I walk, so that’s been braced to hold it steady. My left hand thumb is also struggling, I’m finding it hard to hold my phone, or cups, so that too has been braced to help hold it steady. These are probably flaring up due to the cold damp weather, for I suffer with Arthritis and Ehlers Danlos Syndrome.

After all this there’s only one way to feel good about yourself is knowing that last time you couldn’t do this many reps, or with resistant bands. Progress may be slow at times and with setbacks, but overall it’s progress.

19 weeks post #HipArthroscopy things I’ve learnt.

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

Here we are and the weeks are flying by, while at the same time it feels forever since the op.

Now I’m attempting normal living and activities, it’s pain and stiffness rearing its head yet again. I’m just not as fixed as I’d hoped to be by now.

I’ve tried to get onto #EAActive2 on the Xbox, and it’s shown some harsh realities to me. I’m no way near where I’d like to be, for this age. I should be able to do these simple things without huge restrictions.

I’ve discovered I can not jump, not even an inch off the floor, without hip flaring up and swelling immediately. That shows leg can’t handle impact, it’s not ready.

Attempting push ups on the knees, the knees could not take the weight, and were sore. Besides getting up and down is like a better on its back, takes a lot of effort, time and pain levels, so it’s not worth it.

So it’s back to extreme basics, and hope to improve, and hope some flexibility will return too. Because I feel as flexible as an oak trunk.

I’m not giving up yet, I have until Nov 2018, 9mths to go. I believe until I see the consultant again, and decide on the future of my hips.