54 weeks post #HipArthroscopy and I have good news

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Since holiday I’ve done zip, zlich, nada for a few days, because I got super sick as soon as I was home in the UK. I caught laryngitis and needed antibiotics, and lots and lots of rest.

While in this state, I’ve done a lot of resting as well as getting back into a routine, physio is a no no so far. But now it’s easing off, I’m hoping to return to it.

Instead we did do a walk, and attempt at #couch25k though we repeated week 3 run 1 as realistically that’s our actual level. Ended up being really good mentally, but physically it’s killed the hip (predictable) and following a bath to ease pains, I tried to lift my leg up to get dressed, and the hip feels like it’s coming out of joint?? It’s awful, painful and I’m grateful for my bathroom perch!!

Weather has made my hands so sore again, it was nice to have the week relief.

But my main news is….. I HAVE A DATE!! And it’s so soon. It’s exactly 8 weeks today, 29th November so a new hip for Christmas.

Thank goodness I got poorly now, rather than later. Now to plan, prepare and organise my house. It’s all too real now, it’s actually happening!! Woohoo

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1yr #Hipaversary #hiparthroscopy

Archive, Challenges, Randoms, Miscellaneous, Family Adventures, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Travel

It’s finally been my 1year Anniversary since my last surgery, my Hip Arthroscopic surgery. And to celebrate it, we did it in style.

First off we visited #50cent for his 15th Anniversary Get Rich Or Die Trying Tour, this is immense, I loved every single second of it. We had Lethal Bizzle first up, then 50cent and GUnit. It was like the 00’s had come alive once again. And better yet, we knew once we got home and slept, we were off on Holiday!!

So off we flew the next day in the afternoon to #Rhodes hip obviously hates flying but I was well prepared for this.

To arrive here in the gorgeous sunshine, I knew it was the right decision to go.

This one wonderful week away, we visited as many sites as we could. Drove around the island and swam nearly everyday. I ate better here than I ever have done on a Spanish island (easier for veggie food too) the warmth honestly did my hip some good, as well as my hands. Though ankles continued to swell each day if we had been on our feet alot. But painwise the warm dry heat does absolute magic to them!! This is why pensioners move aboard.

We did a fair amount of steps, we had to stop every few so I could adjust hip, take stock and breathe into it. But boy oh boy was I rewarded. Going down was always my worse part, but I did it and so did my dodgy ole hip that’s going to be replaced. It’s like its final adventure with me. I get sad thinking that soon it won’t be with me, but I know it’s daft really. Anyone else feel a bit sad??

So I’ve made it to 1yr and it’s been a huge learning curve, my fitness has improved greatly, the muscles around the hip are stronger, I trust myself more which was a huge mental issue for many years. And all because I took physio seriously and did it religiously. I also stopped trying to race ahead and do more than my hip wanted to do, I kept to the basics and finally got results. Granted it never stopped my pain or limitations of the hip, but I’m sure that once it’s replaced, it will greatly improve my recovery period.

And better yet, I didn’t put on the usual 5lbs + that I usually do on holiday!! We ate more like at home, less carbs, more protein and salads and I came home 1lb heavier, which has already gone 3 days after getting home.

Obviously I got off the plane and I couldn’t speak, lost my voice. Maybe air con had something to do with it. The day after being home I had to see the doctor, as I felt super poorly. And it’s laryngitis so on antibiotics and feeling very sorry for myself right now. But what a week we had!!!!

51 weeks Post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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Nearly one year since my Arthroscopy, and so much has happened. It’s slipped and crunched it’s way through this year.

I’ve simultaneously felt stronger fitter and healthier, while feeling more vulnerable, more disabled at times, and more anxious that I can’t trust the joint.

So you could say it’s been a huge roller coaster, all the more frustrating as the times it’s at the highest peak it’s been amazing, I can almost taste a normal life. Only to come crashing down, and feel lost and depressed.

Not to worry though, it’s all go for the upcoming surgery. So now I feel positive and Energized for the future, and what it could bring us too.

Bloods taken this week to test for ESR and CRP levels once again. Apparently I should of had them done in May, but no one told me!! See what they say and I see the rheumatologist in one month’s time too.

Familiar aches are back… 50 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Charting my journey as its nearly a whole year since my Hip Arthroscopy Surgery, at the time I knew I was potentially only saving myself an extra year or so from Hip replacement. However it ended up a lot sooner than I imagined, meaning I sought a steroid injection to stabilise the joint back in June, and now already I’m in the process of being on the waiting list to replace it.

It’s been a good year however, I’ve improved all the muscles, and strength which was important to me, and I firmly believe it will give me a better foundation to build on, following the replacement.

It’s now 10 weeks since the Hip steroid and that pains been back a far while, and no surprise if I’m honest. It lasted at best 4 weeks. A bloody glorious 4 weeks too.

My CMC joint steroid was 9 weeks ago and it worked immediately, and completely too. And just today at 9 weeks, I’m starting to feel the bone crushing sensation on the joint. So hard to explain it really, just feels like a constant vice on the joint. Well that’s back, I’m thinking a turn in weather temperature brought that back into my life.

This poor hand never catches a break, as recently I fell over and created a TFCC tear in the same hand. So lots of bracing, ibuprofen and rest for now. Thankfully that pain which was intense, has subsided into an ache, and overall weakness.

I confess in the time since I’ve fell which was 2 weeks ago tomorrow, I haven’t done any #couch25k #couchto5k as I was too sore and swollen from falling. Then we did Blackpool a week later, and hip has been 💯 bitch since. So sharp, so stabby, even while sitting down, or lying down, that the thought of standing on it has not appealed in the slightest.

Next week it’s 3d CT Scan time, it feels like things are actually happening, and there’s an end to this pain….

And so it begins…..

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Here I am yesterday, at the hospital awaiting to find out my destiny. Nervous, sick with anxiety, yet excited!?! It all starts with this appointment.

Weird and eerily quiet, so unlike ROH we are seen quite quickly for there, about 40mins after my actual appointment time. Sadly no specific surgeon but a pleasant registrar no less.

Not familiar with symbios he gains an audience with another consultant that works more directly with my Surgeon to help explain the process. But he’s doesn’t do it well, he ignored my husband, who let’s face it needs the information more, as he’s living through it. And answered more like a politician than surgeon.

But not matter, we walk away being added to the waiting list and being referred for the 3D CT scan. How long this time frame is, anyone’s guess. Seen as he didn’t really answer. We got 4mths out of him, but 4 months to completion or 4mths to scan is unsure??

So moving forwards from that, it’s time to reflect on what’s ahead, read more, research more. Thankfully on Facebook there are countless supportive friends going through or been through the same process to help guide me.

Today was physio and I honestly walked in thinking we would revise the program in preparation for surgery, but instead she’s too happy with my progress and strength that as long as I do it at home, I’m fit enough already and muscles are strong enough to keep implant stable. So we’ve left it as an open appointment, to come back as soon as I can after surgery.

Bit disappointed in that I’ve left again, but I understand why. I do always do my at home physio and workouts, I am religious in doing it, so there isn’t a need to go in and show her each week.

Overall this year I’ve started to be unaided though it’s incredibly painful at times and not for long. It’s still a win.

I’ve also lost 12lbs since Jan. We are eating better, making better choices overall. And making so much more of an effort with physio, exercise and weights in general. So my physio is right, I’m in a much fitter stronger place than I was facing my Arthroscopy surgery back last Sept.

And if you facing helping me with buying a tragically hip tee, you can find the link here

And similar if you are a fellow zebra with ehlers danlos syndrome like me and my daughter, she designed a tee here she needs to sell 4 to start the campagin off.

*Disclaimer* we get a small commission from every one sold *

Ninja Warrior, Weekends, And New Thoughts….

Archive, Blogger Reviews, Events, Family Adventures, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

The weekend passed in a haze of recovering from Friday, we were in the audience for #NinjaWarriorUk it was filmed in Manchester Central.

I got tickets for us to watch our favourite show, a bit like a birthday treat for our youngest daughter, to see it live. Never expected it to be as tiring as it was, but though we were knackered it was a lot of fun and an experience.

We definitely shouted ‘Beat the Wall’ a lot!!

Spotted some bees but not too many as we struggled with time sadly, and it was freezing cold this day!!

Hands swelled up and were extremely painful all weekend. This convinces me its more likely to be rheumatoid arthritis.

Hip didn’t behave either and was extremely painful, so it’s definitely time to ask to see if I can start the process of replacement. I’m over trying to wait it out, waiting for life to start, it needs to end or at least give it my all. So roll on next appointment which is Tuesday!! Woohoo. Wish me luck.

47 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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What’s been going on since we last spoke? Well I’ve been wrestling my own demons trying to make a decision, and honestly I’m no closer. I speak to fellow hippies, family and physiotherapist, and ultimately they all say it’s up to me, but I’m confused and overwhelmed.

But warm weather has returned and sadly pain hasn’t gone with the wet weather, so I know for sure now that the steroid injection has worn off, I had a glorious month, I’m just sad it wasn’t longer.

Not only has my hip steroid worn off but so too has my thumb one too, so I’m feeling like most joints and bones ache beyond belief. And the opposite thumb is flaring up too. Thank goodness for splints. Sadly for this I don’t see a rheumatologist until 9th October, so heck of a wait. Least hip is in 2 weeks time.

Because it’s all kicked off again, my physio appointment was gentle this time, lower reps, some exercises removed too, as she could see the pain some brought on. I fear I’m coming to the end of any possible improvement physio wise, as muscles are strong now, stronger than they’ve ever been. I see them again after seeing the Surgeon.

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Pleased to say I’ve completed week 4 of #couch25k #couchto5k yes it totally took 3 weeks to do the three runs, but life, flare ups and events filled my time in between. But I’m over the moon we are still on this improvement train, ankles and knees are benefiting from it. Now up to 3mins brisk walking, slight bounce to step unaided. After 3 mins it’s either breathing or piriform is that kicks in, so it’s not fully sustainable, but it’s improving. Only bad thing is, I constantly feel like my hip joint is a sword, each step is a stab!!

Making Decisions…. 45 weeks post #hiparthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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At the start of the weekend I found myself asking this…..

Question – So how do you ever decide to do it or not? My history is I’ve had 2 triple pelvic osteotomies, 2 femoral osteotomies, 4 steroid injections, and now 1 Arthroscopy op which removed All my labrum and shaved the femoral head. I have grade 4 osteoarthritis in the acetabular and grade 3 in femoral head. And although I walk aided with a walking stick, I’m now still better than I’ve ever been in 10yrs. But I struggle with gait, still get pain when tired or walked too much. Since my latest steroid 27th June it’s been lovely, so now I’m doubting the decision to move towards a replacement, as surgeon McBryde has discussed it may not rid me of pain 100 percent, or rid me of my stick either. I’m so confused and frustrated.

Such a difficult decision to make, and the state of the NHS worries me. What if I delay and in a year or two it’s no longer an option? And of course it’s taking myself out of action again, recovery again and taking risks surgery wise.

So hard to make this decision. And one I’m not taking lightly either.

And now after a busy weekend, my mind is almost made up….

I’ve swung from delaying it to absolutely doing it once again!! And what has changed my mind? You ask. Well pain has, I think it’s the end of the steroid relief, it’s been 4.5 weeks since I had it done, and the white hot burning groin pain has started to creep back into my life. At first I thought I was just tired, or overdid it (ie went upstairs for the loo too many times) but no… As I sit here after all night resting it’s as angry as hell, and it makes me feel so angry, frustrated and murderous.

But I also question, is this flare up of pain due to the change in weather??

I have until 21st August and I’m keeping a note of pain levels and weather, to show the surgeon and get his opinion on this. But as it stands here and now, I say it’s gotta go, I’m over hips ruling my every waking/sleeping moment, my pain invades my happiness and clarity to think straight. I just want to live life and have adventures.

3 weeks post intra-articular steroid injection in hip

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How time is flying by, it’s already been 3 weeks since the hip injection and even 2 weeks since the thumb one too.

Since then I’ve been active on our weekend away, getting into some exercise routines and just generally loving the improvement. Only marred by that in the hip it’s not a total fix. After activity it soon flares up again.

My thumb on the right hand however is awful. As soon as my left had its injection I needed to rely on my right one more, which has caused this one to flare up the same way. So although my left is feeling 90% better, I can’t escape splints and pain because of this stupid one starting up. Roll on rheumatologist appointment and maybe request a steroid in this as soon as possible.

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We haven’t done any of our couch to 5k for over 2 weeks simply because real life have taken over and it’s been difficult to fit it in. However I have done physio or weights or that other workout on most days.

Monday we decided to do week 4 run 1 and OMG I felt like I was dying. It’s 3mins run walk for 1.5mins then 5min run walk 2.5mins and repeat once more. In the runs I’m shuffling along as upright as I can, as fast as I can to increase the heart rate and lung functions, and practice my walking unaided. But I soon felt piriformis pain in the back, so waddle returned on the second set. But I’m still impressed, less resting, using uneven ground. The walk is getting straighter.

Tuesday’s physio appointment consisted of

Hip Bridges with Football between knees 25reps

Front leg raise and abduction red banded 25reps

Lie on front, bend knee and lift red banded 25reps

Sitting red band around knees hip abduction 25reps

Swiss ball between knees and squeeze adduction 25reps

Side steps red band around knees 80 steps

Came out barely able to walk!! Combined with Mondays couch to 5k and this physio session I’m done. Feels like walking on a dagger in the joint. And my lower back is aching. Need hot water bottle and rest now.

Had good discussion about a replacement with physiotherapist, but I’m still unsure. Whereas before my steroid injection I was deadly sure, so although the pain isn’t 100% gone it’s obviously improved enough that my mind has changed. Ever mindful that it will wear off soon though.

Wednesday is Mama Moons birthday so all exercise is halted as it’s a day of family and celebrating!! Wish I could spoil her more, but what do you buy the lady that has everything already?

 

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Thursday is #WyattWedding prep, we are invited to our Nephew’s wedding, so of course I had to make some hairpins for myself

 

Didn’t do my hand any good, but I enjoyed the relaxing craft (though it’s difficult on my hand – right hand, left one still wonderful). Now just to pack and ensure everything is already, and we are all prepared for the next few days ahead.

Nails I’m wearing are #Primark nails as I totally rate them, they are my favourite go to nails. I buy a separate brush on glue 99p from #HomeBargains or #BM and they easily last me a week, usually 2 weeks.

So that’s me I’m 43 weeks post #hiparthroscopy and due to steroid injections I’m enjoying life with some niggles.

42 weeks post #HipArthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

 

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Well if I was pregnant I have now done a full term and then some… But I’m not. However I do feel more in a position to judge the arthroscopy surgery and it’s results so far.

Am I pain free? Quick easy answer is NO. but I’m coming to terms with its unlikely to be that painfree ever.

Am I more mobile? This is more difficult to answer, Yes I am doing more, but mainly because my mind isn’t as broken as before. And the realization that this may be as good as it gets forever, spurs me to make the most of it regardless.

Before my mind was truly broken, I didn’t trust my ability and stamina, I definitely didn’t trust the legs.

This past 9 months has been going to basics, working the muscles from absolutely nothing into legs I do trust to hold me up, they are stronger, I am fitter. (Sadly not lighter though)

It’s been 2 weeks since the steroid injection and it’s been ok, but it’s not been the magic pain free injection I hoped for. But I did have some improvement, so I can’t complain really.

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This week it’s been about getting into an exercise routine once more, though I needed Monday off completely to recover from our barmouth weekend.

Tuesday I did the basic post hip replacement physio exercises

Glute squeeze 20reps x 2

Quad activation 20reps x 2

Heel Slide 20reps x 2

Hip abduction (lying down) 20reps x 2

Short Arc Quad 20reps x 2

External hip Rotation 20reps x 2

Bridging 20reps x 2

Pull in stomach breathing 20reps x 2

Hip flexion (ankle weights) 20reps x 2

Hip abduction (ankle weights) 20reps x2

Hip adduction (ankle weights) 20reps x 2

Hip extension forwards (ankle weights) 20reps x 2

Hip extension backwards (ankle weights) 20reps x 2

Heel to buttock (ankle weights) 20reps x 2

Mini squat (ankle weights) 20reps x 2

Hip pendulum (on step ankle weights) 20reps x 2

Looks like a lot, but broken down in an overall day of physio. It’s done slowly and methodically, with resting at times. All its for is muscle activation and strengthening.

Wednesday to rest the lower limbs it was a weights day. I’ve read that if you have Arthritis you should try and lift between 5% to 10% of your body weight, so you don’t lift too heavy and speed the disease up. I use 7kg for my arms now, but I started slowly and light at 2kg at first. I don’t do much as hands and elbows are in a joint flare up today.

Bicep curl 10reps x 2

Shoulder press 10reps x 2

Lateral raise 10reps x 2

Bicep row 10reps x 2

Tricep kickback 10reps x 2

Chest press 10reps x 2

Tricep overhead 10reps x 2

Kettle bell swing 10reps x 2

Again it looks more than it is in reality, and the sets are broken up between morning and afternoon. It’s to lubricate and activate, more than anything.

Thursday I can feel a change in the air, my joints ache, mainly my fingers and elbows. Although hip is niggly too. Opt for a day of mostly rest, painkillers and hot water bottles. I discovered I can’t even lunge my left foot behind me due to ankle issues ( I rolled it in may 2017 and it’s still not right now. Perhaps I should see someone) I did try some compound exercise for physio though, only 5 exercises but they killed me off.

Goblet Squat 10reps x 2

Three point row 10reps x 2

One dumbbell reverse lunge 10reps x 2 (actually can’t officially lunge, it’s more of a step back, and letting leading leg take weight, super easy for most folks but for me it’s painful and very difficult)

Single arm chest press 10reps x 2

Supine marching 10reps x 2 (this really pulled operated legs glutes into action, but also hurt my groin. Don’t think hip is ready for this? It’s meant to work your core, but I felt it all in the hip??)

Friday I honestly feel bodily broken so it’s probably a curl up on the sofa, hot water bottle and Netflix kind of day. Frustrating as brain says go, body says NO. But I’m pleased I managed 3 days of various physiotherapy exercises, so if I don’t do anything today that’s still self care and productive in my healing.

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