Week 25 post #hipreplacement

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

I can’t believe how fast this time has gone, we are also halfway through the year, it’s been a real roller coaster of success and failure. Both hips and other joints, as one fixes others are breaking down.

I’ve made an appointment to see MiCats for steroid injection, but the assessment appointment isn’t until Sept so I’m looking at another 2 months of hand pain and swellings.

Testing the abilities and accepting some limitations for now. But overall I’m pleased with how it’s going. It’s not as fast as others, but I now know why and how to combat it as best as I can.

I’ve switched up my exercises for this week. Not too different but enough to challenge the muscle groups.

This week I’ve done

  • Hip flexion ankle weighted 20reps x 1
  • Hip abduction ankle weighted 20reps x 1
  • Hip extension forwards ankle weighted 20reps x 1
  • Hip extension backwards ankle weighted 20reps x 1
  • Heel to butt ankle weighted 20reps x 1
  • Ball squeezes ankles 20reps x 1
  • Ball squeezes knees 20reps x 1
  • Ball squeeze hip bridges 20reps x 1
  • Traditional side clam raise green band 20reps x 1 (omg this is so hard)
  • Duck walking green band 20reps x 1
  • Lunge walking ankle weighted 20reps x 1
  • Prone knee raise ankle weighted 20reps x 1
  • Prone heel to butt ankle weighted 20reps x 1

Somehow this really kicked my butt!! I felt so strong last week, but switching it up has activated muscles in different ways. So it’s all good but very very tiring.

Ive increased my water intake, started to think about foods more, and just have a more positive outlook on weight, life and health. Probably helps that the sun has been shining this week too. Love summer!!

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Finally getting answers?? 7 weeks til #TotalHipReplacement

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Well I’ve had the long awaited rheumatologist appointment, and it wasn’t at all as expected.

I wasn’t sure which would be a good result, if I’m being honest. As rheumatoid arthritis is no laughing matter, though thankfully there are certain medications to help with the inflammation.

However, I have certain distinctive wear and tear joint space narrowings of the joints, and none of the rheumatoid symptoms, so this meant it’s more likely my #EhlersDanlosSyndrome causing early Osteoarthritis, but the inflammatory kind. So still erosive and very painful, but less likely to be helped with medications that they use for rheumatoid arthritis sadly.

So it’s a limbo really, I can brace, splint and tape them up. Take ibuprofen, use hot water bottles and do physio and see if it helps. Though I am doing all these things already to be honest. So my future of a crafter (Jewellery and papercutting) is looking unlikely!!

I’m going to try and tinker more with food groups and try to find my triggers, if it is triggered by food that is.

So it seems my Zebra status is causing my early onset of Osteoarthritis which is notable in the hips, and now the hands. I haven’t dare touch upon the fact my ankles roll all the time, knees ache funny and elbows are odd. Because he signed me off straight away. So I think he just believes I need physio and perhaps go back to gps for help with better painkillers. (Do better painkillers even exist? Ones that don’t cause hair loss, sleeplessness, racing heartbeats, brain fog, nausea to name a few of the lovely side effects…)

I am allowed the kenalog injections in the hands, but is that in 1 joint, multiple joints? As sometimes it’s 1 thumb, 1 wrist, and 1 finger all at once! It’s unpredictable as to when and where it’s going to hurt, so taking painkillers seems weird. Ideally just reduce the inflammation would be a good start.

For now though I must just muddle through, manage the pain as best as I can, because it’s a mere 7 weeks now until my Hip Replacement Surgery. And I have so much to do to prepare for that. Any handy tips or hints? Let me know

And so it begins…..

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Here I am yesterday, at the hospital awaiting to find out my destiny. Nervous, sick with anxiety, yet excited!?! It all starts with this appointment.

Weird and eerily quiet, so unlike ROH we are seen quite quickly for there, about 40mins after my actual appointment time. Sadly no specific surgeon but a pleasant registrar no less.

Not familiar with symbios he gains an audience with another consultant that works more directly with my Surgeon to help explain the process. But he’s doesn’t do it well, he ignored my husband, who let’s face it needs the information more, as he’s living through it. And answered more like a politician than surgeon.

But not matter, we walk away being added to the waiting list and being referred for the 3D CT scan. How long this time frame is, anyone’s guess. Seen as he didn’t really answer. We got 4mths out of him, but 4 months to completion or 4mths to scan is unsure??

So moving forwards from that, it’s time to reflect on what’s ahead, read more, research more. Thankfully on Facebook there are countless supportive friends going through or been through the same process to help guide me.

Today was physio and I honestly walked in thinking we would revise the program in preparation for surgery, but instead she’s too happy with my progress and strength that as long as I do it at home, I’m fit enough already and muscles are strong enough to keep implant stable. So we’ve left it as an open appointment, to come back as soon as I can after surgery.

Bit disappointed in that I’ve left again, but I understand why. I do always do my at home physio and workouts, I am religious in doing it, so there isn’t a need to go in and show her each week.

Overall this year I’ve started to be unaided though it’s incredibly painful at times and not for long. It’s still a win.

I’ve also lost 12lbs since Jan. We are eating better, making better choices overall. And making so much more of an effort with physio, exercise and weights in general. So my physio is right, I’m in a much fitter stronger place than I was facing my Arthroscopy surgery back last Sept.

And if you facing helping me with buying a tragically hip tee, you can find the link here

And similar if you are a fellow zebra with ehlers danlos syndrome like me and my daughter, she designed a tee here she needs to sell 4 to start the campagin off.

*Disclaimer* we get a small commission from every one sold *

29 weeks post op #hiparthroscopy physiotherapy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Weeks are flying by and though I’m stuck in a limbo situation via the hip being unstable and super painful. The decision to do the exercises set aside for post op hip replacement patients has been working.

As they are designed to strengthen everything around the new implant and not cause a dislocation. I’ve noticed a small increase in stamina and strength, so I’m going to continue, and the hip hasn’t been unstable this week at all. So that’s progress.

This following week I’m going to increase the reps from 10reps to 15reps and see how that goes. I do find I exercise, do physio one day, but I need at least one day to rest.

Scar update, you can barely see them. Obviously they pale in comparison to my 10inch ones, but just an update for those only having Arthroscopic scars.

Now I’m itching to get out more once weather improves and work on uneven footing and inclines, as hip doesn’t like those situations so much.

No news as yet for the steroid injection for basal thumb or hip, hoping to hear more in the next 2 weeks time. I’m getting pretty eager to have them, even though they scare the pants off me at the same time.

Feeling old

Archive, Challenges, Randoms, Miscellaneous, Make Up, Beauty, Skincare

Now I’m over 40, I’ll be honest, I’ve REALLY really been feeling my age. And even my mortality too. Perhaps I need to grow up, start acting like life isn’t forever. After seeing friends pass, celebrities too that aren’t far off my own age, has started to freak me out. Obviously hip issues don’t help either, as pain and immobility aren’t actually a youthful combination.

So I’ve started to tweak some things in my life, to help ease the transition into middle age. I’d like to fight it off as long as possible. Immobility I’m addressing with physio, and basic workouts on Xbox kinnect, and free weights too.

I’ve started to eat fruits, salads, and more veggie dishes. Starting to cook a lot more from scratch again. So even if they are pizzas, it’s lower cals, fresh ingredients, and salt.

These little things make me feel a bit more productive and less old. Whether it’s placebo or actual results, if it helps then it helps.

I’ve also started to actually pay attention to my skin too, usually I’m slap dash, bog standard moisturizer and cleansing wipes are my go too. But now I’m buying and using an array of products, to rid myself of that grey lacklustre dry skin once and for all. I will blog about these at a later date, so I feel I have actual results to say about. Currently using #StIves blemish control exfoliating face cream, the deciem Lactic Acid, and deciem Rosehip facial oil.

With oils though, I’m comparing #BeautyKitchen #Deciem #DrBotanicals and newcomer #SofiaLatif

So any advice for this gal to fight aging, to feel that hedonistic vibe instead of impending doom??