Day 15 staples are out!!

Archive, Arthritis, Health, Hips, Hypermobility, Hip replacement, SURGERY

Getting to this day has been equally long and hard as well as quick and easy, a total contradiction of sorts. Long and hard as the leg has been waking up more, thus creating more aches and pains, and stinging.

But quick and easy too, as is it really only 2 weeks ago I was nervously getting ready to have this surgery done?!

Taking my own hospital provided dressing in, to replace the surgical one I’ve worn for 2 weeks. Though it may be dried and not leaking now, once the staples come out, it has a tendency to bleed a bit from the staple holes. So another dressing is needed.

As you can see the dressing measures over 13inches long! I think my scar is between 11-12inches from my measurements.

Also needed and provided by the hospital is my staple remover tool to hand to the nurse, she will use this to snip the staple in half which then levers them out.

Here it is before the staples came out, a bit plucked chicken skin, but the wound itself is clean (surprised after I had the same dressing on for 2 weeks) it looks a normal colour, no redness, or oozing. So that eased a lot of anxiety seeing it so good.

Felt a touch faint at times, the nurse did alternate ones at first, they tug, they sting, and although it doesn’t especially hurt, it makes me woozy, and hot. So I had to stop for a few seconds pause, to adjust myself (I was standing) and to ensure I didn’t faint. The last few came out while I sat down thankfully.

New dressing on now for a couple of days, as staples leave little open holes, so these need to close as well. But the tight feeling the skin had has gone. Glad it’s done and dusted.

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Finally getting answers?? 7 weeks til #TotalHipReplacement

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Well I’ve had the long awaited rheumatologist appointment, and it wasn’t at all as expected.

I wasn’t sure which would be a good result, if I’m being honest. As rheumatoid arthritis is no laughing matter, though thankfully there are certain medications to help with the inflammation.

However, I have certain distinctive wear and tear joint space narrowings of the joints, and none of the rheumatoid symptoms, so this meant it’s more likely my #EhlersDanlosSyndrome causing early Osteoarthritis, but the inflammatory kind. So still erosive and very painful, but less likely to be helped with medications that they use for rheumatoid arthritis sadly.

So it’s a limbo really, I can brace, splint and tape them up. Take ibuprofen, use hot water bottles and do physio and see if it helps. Though I am doing all these things already to be honest. So my future of a crafter (Jewellery and papercutting) is looking unlikely!!

I’m going to try and tinker more with food groups and try to find my triggers, if it is triggered by food that is.

So it seems my Zebra status is causing my early onset of Osteoarthritis which is notable in the hips, and now the hands. I haven’t dare touch upon the fact my ankles roll all the time, knees ache funny and elbows are odd. Because he signed me off straight away. So I think he just believes I need physio and perhaps go back to gps for help with better painkillers. (Do better painkillers even exist? Ones that don’t cause hair loss, sleeplessness, racing heartbeats, brain fog, nausea to name a few of the lovely side effects…)

I am allowed the kenalog injections in the hands, but is that in 1 joint, multiple joints? As sometimes it’s 1 thumb, 1 wrist, and 1 finger all at once! It’s unpredictable as to when and where it’s going to hurt, so taking painkillers seems weird. Ideally just reduce the inflammation would be a good start.

For now though I must just muddle through, manage the pain as best as I can, because it’s a mere 7 weeks now until my Hip Replacement Surgery. And I have so much to do to prepare for that. Any handy tips or hints? Let me know

I’m annoyed….

Archive, Health, Hips, Hypermobility

With myself. I was meant to see MiCats

Musculoskeletal Integrated Clinical Assessment and Treatment Service (MICATS)

on the 30th May to discuss my issues with my hand, and how I struggle at times to hold things, to pick up cups etc…

But I rescheduled for the Stafford County Show, knowing I had the GP the following day, and I could get the x-ray results.

Well…… That didn’t happen, somehow my appointment was 8.40am and I thought it was 1.40pm or 1.45pm so I rang to ask which one, and they dropped the info that I’d actually already missed it!! And the earliest I can get in, is 20th June!!

This is ridiculous, I feel like I’m never going to get my hand sorted out. Yes it’s totally my fault, so I’m annoyed with myself. Ggggrrrrr

Feeling Lost and Frustrated 34 weeks Hip Arthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

We’ve had some amazing days out, some glorious weather and family adventures, and I’m truly grateful. I really am.

But one thing always brings me down, and that is PAIN!! It’s limiting, it’s depressing, and it’s always always there!!

If it’s not my Hand it’s my Hip, or Lower back. The pain that blurs the edges of all the good that you do, the pain that awakens you from sleep, the pain you can’t escape. But what has kept me going is knowing that my steroid injection should be soon.

But I’ve learnt that although I was penciled in for end of May, it’s now looking more like mid to end of June. Which has admittedly took the wind out of my sails. I’m so frustrated by the waiting, and wondering, it’s agony.

It’s something I can’t change, and though I feel a little lost as to what to do. My husband is right I should just forget it, keep on, keep going, and don’t get stuck or hung up on this date. It will happen when it does.

So for now, it’s continue as often as I can with physio at home to help ease pains and stability, while understanding that I’m not a failure if there’s days I can’t do things (hardest thing to realise) rest days are important too.

33 weeks post #hiparthroscopy. Clun Greenman Festival

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

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No physio this week, instead it’s been daily activities that normal people do. And I’m failing!! I just about manage an activity in a day, but it costs 2 days of complete reduction of any movement, or chores, or physio.

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Monday we visited Clun for the green man festival, glorious sunshine and pagan friends, bringing in the summer blessings for Beltaine, it was perfect. I bought a #Selenite wand and #Quartz point, while hubby bought a gorgeous green man plaque.

We watched the battle on the bridge between the ice Queen and green man, and with his victory sunshine, warmth and life spring forth. And judging by the weather and flowers I’d say he’d successively achieved it.

Following this one day out Monday, I could not move much Tuesday, and Wednesday. The hip was crunchy, and unstable once again. I took to my crutch for support. Used a lot of hot water bottles too, to control the pain.

What I did manage to do was ring for my x-ray results (for my hand, my walking stick hand)…. Which are?? Well I don’t know, it says I require to see the doctor to discuss results, but not urgent (is to me, my hand is all but useless at this point) so appointment for gp is 31st May!! Curiosity is killing me. Only bonus is my MiCats appointment to see about steroid injection in hand is 30th May. Though I fear they will just do a consultation first, so I’ll have even longer to wait to deal with my hand!!

Bear in mind this hand has ALL of my weight going through it, it’s important so I can walk correctly and not waddle. It’s crucial to get it fixed.

And of course while hip slipped with no exercise present, shows me it’s 100% unreliable, unpredictable and I’m scared to make plans too much, as it can go at any time! I seriously hate my hip.

 

29 weeks post op #hiparthroscopy physiotherapy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, SURGERY, Triple Pelvic Ost, Femoral Ost, PAO

Weeks are flying by and though I’m stuck in a limbo situation via the hip being unstable and super painful. The decision to do the exercises set aside for post op hip replacement patients has been working.

As they are designed to strengthen everything around the new implant and not cause a dislocation. I’ve noticed a small increase in stamina and strength, so I’m going to continue, and the hip hasn’t been unstable this week at all. So that’s progress.

This following week I’m going to increase the reps from 10reps to 15reps and see how that goes. I do find I exercise, do physio one day, but I need at least one day to rest.

Scar update, you can barely see them. Obviously they pale in comparison to my 10inch ones, but just an update for those only having Arthroscopic scars.

Now I’m itching to get out more once weather improves and work on uneven footing and inclines, as hip doesn’t like those situations so much.

No news as yet for the steroid injection for basal thumb or hip, hoping to hear more in the next 2 weeks time. I’m getting pretty eager to have them, even though they scare the pants off me at the same time.

27 weeks post #hiparthroscopy

Archive, Health, Hips, Hypermobility, Hip Arthroscopy, Triple Pelvic Ost, Femoral Ost, PAO

Moving on from week to week and not much has happened this week, except I’m poorly again!! Just a chesty cough and woolly headedness, so I’ll live.

But I did visit the doctor over my hand, as it’s getting too hard to hold the simplest of things lately. The basal joint of the thumb feels like electric shocks, when I try to hold cups, plates or my phone. It’s been like it on and off for a year or so?? Wonder if Arthritis or just Ehlers Danlos Syndrome. Anyways had bloods taken to check, and I’m being referred to MiCats for physiotherapy and steroid injection for it. So that’s 2 steroids in 2 different joints this year!! I need this hand for my walking stick. For now I brace it on bad days, but when it settles I take it off, so it’s not solely dependant on it.

So for physio it’s been PANTS for a week, barely done any, as I’ve had family visits, doctor’s visits, then blood test visits, and honestly they’ve just took it out of me. Just being still hurts so I’ve had no desire to move the hip. Maybe it’s increased on pain because the weather is so damp? Or because it’s that time of cycle when it all flares up (when my whole body feels broken and shattered) or simply being ill makes me feel things more?

Just waiting on blood results next and of course appointments to come through from steroid in hip, physio for hand, and steroid for hand. Can’t wait to get them all done and dusted, though I’m scared!!

2018 has not gone to plan so far….

Archive, Health, Hips, Hypermobility, Hip Arthroscopy

Hello my lovelies, Well 2018 is sucking lemons for this household right now. We have all collectively been ill on and off since before Christmas. I got much much worse on the 30th Dec, resulting in tonsillitis and bacterial infection, that can potentially affect my hip operation site. And they (mini moon and Mr moon, are now developing it, and have just started their antibiotics) we are taking it in turns to nurse eachother.

At the moment I’m currently halfway through my second lot of antibiotics, much stronger more aggressive ones, as the hip pain is very very out of control and character. So you can imagine, I’ve done no physio, in fact I’ve barely moved off the sofa. I’m even sleeping on the sofa, as it allows heat pads and hot water bottles to sit in position better.

This week I’m 18 weeks post hip arthroscopy and if I’m 100% honest my hip feels worse than before surgery!! I never expected to say that, especially as I’ve done nothing at all. Silver lining it shows that instead of being worn away, worked out funny, the pain instead has to be from illness, so could potentially go away as well.

So I’ve been occupying myself with #Spiral on #Bbc4 a French police crime series, that is fast paced and very addictive.

And just last night I found #Beforewedie a #Walterpresents on #Channel4 another police thriller (I love crime shows) hoping I soon get sucked into this.

I’ve had some jewellery to create and post, but it’s been extremely difficult to do while feeling so woolly headed. But I managed a little bespoke order off to USA, one for #Dysautonomia and #Lupus

Hoping in 8 days time we are fit enough to go and see #TheLionKing in #London